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Pregnant women's experiences, needs, and preferences regarding information about malformations detected by ultrasound scan.

Abstract

OBJECTIVES
The aim of the study was to explore pregnant women's experiences of received information in relation to fetal malformation detected on ultrasound.
METHOD
An exploratory descriptive design was used. Semi-structured interviews with women who continued their pregnancy and women who chose to terminate were audiotaped, the information pathway described, and the text subjected to qualitative content analysis.
RESULTS
Most of the women who expected a baby with an abnormality experienced the information given as insufficient, often misleading, conflicting, or incoherent, and sometimes negative. Important factors for interaction between women and caregivers were timing, duration, and manner of the initial dialog and ongoing support. Positive interactions improved the women's ability to understand the information, fostered feelings of trust and safety which reduced their anxiety.
CONCLUSION
Women expressed dissatisfaction both regarding the care-givers' methods of giving information and apply for information from different specialists and continuity. The study highlights important factors which may be helpful to the professionals for improving the information to this vulnerable group of women.

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  • Publisher Full Text
  • Authors

    Asplin N, Wessel H, Marions L, Georgsson Öhman S

    Institution

    Department of Women's and Children's Health, Karolinska Institutet, SE-17176 Solna Stockholm, Sweden. nina.asplin@ki.se

    Source

    Sexual & reproductive healthcare : official journal of the Swedish Association of Midwives 3:2 2012 Jun pg 73-8

    MeSH

    Abortion, Eugenic
    Adult
    Congenital Abnormalities
    Empathy
    Female
    Humans
    Interviews as Topic
    Midwifery
    Needs Assessment
    Patient Education as Topic
    Patient Preference
    Patient Satisfaction
    Pregnancy
    Pregnancy Trimester, Second
    Pregnant Women
    Professional-Patient Relations
    Ultrasonography, Prenatal

    Pub Type(s)

    Journal Article
    Research Support, Non-U.S. Gov't

    Language

    eng

    PubMed ID

    22578754