- Effectiveness and Cost-Effectiveness of Models of Healthcare for People With Intellectual Disability in Australia: A Scoping Review. [Journal Article]J Intellect Disabil Res. 2026 Jul 18. [Online ahead of print]JI
- CONCLUSIONS: The models of care were heterogeneous, and evaluations indicated positive outcomes including better health outcomes and reduced costs. The scope of evaluations and therefore generalisability of findings was limited. More high-quality research and suitable measures of outcome are needed to guide the design of best practice healthcare for people with intellectual disability. These findings provide important guidance for the implementation of the National Roadmap for Improving the Health of People with Intellectual Disability, a current policy initiative in Australia. The effectiveness and cost-effectiveness of cross-sectoral care coordination suggest that coordinated care at the intersection of the health and disability sectors could improve health outcomes. We suggest that strategies for effective delivery of healthcare are structured and standardised to enable more widespread implementation and evaluation by policy makers and practitioners.
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- Psychosocial Well-Being and Caregiving Challenges Among Parents of Children With 1p36 Deletion Syndrome. [Journal Article]J Intellect Disabil Res. 2026 Jul 18. [Online ahead of print]JI
- CONCLUSIONS: Parents of children with 1p36 deletion syndrome experience limited access to information from medical and genetic specialists, diverse medical and welfare challenges across developmental stages, and potentially high levels of affiliate stigma. These findings suggest the need for psychosocial support that considers the potential impact of affiliate stigma and is tailored to the evolving challenges experienced across the child's developmental stages.
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- What Constitutes Effective Support and Provision Within Day Service Centres for People With Intellectual Disabilities? A Systematic Review of Qualitative Research. [Review]J Intellect Disabil Res. 2026 Jul 15. [Online ahead of print]JI
- CONCLUSIONS: Day service centres for people with intellectual disabilities may enhance their effectiveness and quality of provision by concentrating on promoting communication, engagement, relationships, social networks and community integration. Addressing the methodological shortcomings and incomplete reporting of related research in future would contribute to improvements in overall confidence in the evidence base. This can then be better used to inform and further enhance day service provision for people with intellectual disabilities.
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- Prevalence of Psychotropic Use and Psychotropic Polypharmacy in a Finnish National Cohort of Persons With Intellectual Disabilities. [Journal Article]J Intellect Disabil Res. 2026 Jul 15. [Online ahead of print]JI
- CONCLUSIONS: Our findings highlight concerns about psychotropic polypharmacy and potential overmedication. Using a comprehensive, nationwide cohort, this study emphasises the need for more evidence-based, person-centred approaches, including careful diagnostics, non-pharmacological interventions and regular treatment reviews.
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- The Impact of an Interactive Art Session on Resident Physicians' Views Towards Treating Adults With Intellectual and Developmental Disabilities: A Qualitative Analysis. [Journal Article]J Intellect Disabil Res. 2026 Jul 09. [Online ahead of print]JI
- CONCLUSIONS: Utilizing contact theory led to a successful program where resident physicians gained the opportunity to engage with adults with IDD in a unique way, allowing them to gain experience communicating with this population and see them as dynamic individuals rather than solely patients. This led to increased comfort treating patients with IDD.
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- Securing Educational Support for Children With Rare Genetic Conditions: Mothers' Experiences and Impacts on the Family. [Journal Article]J Intellect Disabil Res. 2026 Jul 08. [Online ahead of print]JI
- CONCLUSIONS: Accessing educational support was challenging, lengthy and stressful, with negative effects on mothers' mental health and relationships with wider family members. Parents of children with rare genetic conditions may face additional challenges securing support.
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- Belonging in Reduced-Size Classrooms: Student Outcomes Among Chinese Upper Secondary Students With Intellectual and Other Documented Disabilities. [Journal Article]J Intellect Disabil Res. 2026 Jul 08. [Online ahead of print]JI
- CONCLUSIONS: Reduced-size placement was associated with more favourable student-reported outcomes when students perceived stronger relational security, individualized instruction and teacher support. Because placement was nonrandom and the quantitative data were cross-sectional, findings should be interpreted as associational rather than causal. The study shifts attention from a simple inclusion-versus-segregation binary toward placement quality and support processes that may be especially relevant for students with substantial support needs in upper secondary education.
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- Perceived Autonomy in People With Intellectual Disabilities: Psychometric Properties of an Easy-to-Read Self-Administered Scale. [Journal Article]J Intellect Disabil Res. 2026 Jul 07. [Online ahead of print]JI
- CONCLUSIONS: The findings support the reliability and validity of the E2R scale as a self-report measure of perceived autonomy in people with ID. The two-factor structure indicates that this population distinguishes between autonomy in daily activities and autonomy in future planning, and that, when adequately adapted, people with ID can report their own perceived autonomy directly.
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- Are Bioimpedance Parameters Altered in Adults With Down Syndrome? A Cross-Sectional Study. [Journal Article]J Intellect Disabil Res. 2026 Jul 07. [Online ahead of print]JI
- CONCLUSIONS: Adults with DS showed a distinct hydration pattern in comparison with non-DS adults, as shown in BIA and BIVA analysis.
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- Evaluating Scoring Mechanisms for Measuring the Stroop Effect in Individuals With Down Syndrome. [Journal Article]J Intellect Disabil Res. 2026 Jul 03. [Online ahead of print]JI
- CONCLUSIONS: For consistency in how the Cat/Dog Stroop task is scored for children and adults with DS, we recommend that the number of correct responses in the incongruent condition should be divided by completion time in the incongruent condition. Additionally, for adults, incongruent completion time minus the congruent completion time or incongruent completion time divided by congruent completion time may also be appropriate.
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- Identifying Key Gaps: A Qualitative Exploration of Physicians-in-Training Caring for Adults With Intellectual and Developmental Disabilities. [Journal Article]J Intellect Disabil Res. 2026 Jul 02. [Online ahead of print]JI
- CONCLUSIONS: Residents in adult specialties felt ill-equipped to care for adults with IDD and limited experiences heightened their fear of making mistakes. Greater experiential learning and better support resources could improve their confidence and future care quality for this important population.
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- Preliminary Testing of the English Version of the Adolescent Screener for Intelligence and Learning Disabilities (SCIL) Among Adolescents in Nigeria. [Journal Article]J Intellect Disabil Res. 2026 Jul 02. [Online ahead of print]JI
- CONCLUSIONS: The SCIL has good psychometric properties when used with Nigerian adolescents. Further factor analytic work is needed.
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- Predictors of Mental Healthcare Need and Utilisation Among Asian American Adolescents With Intellectual and Developmental Disabilities. [Journal Article]J Intellect Disabil Res. 2026 Jul 02. [Online ahead of print]JI
- CONCLUSIONS: Adolescents with I/DD in the United States experience racial/ethnic disparities in mental healthcare. The findings from this suggest the need to investigate further into the intersection of race/ethnicity and I/DD in mental healthcare and the creation of policies that promote equitable access to mental healthcare services for adolescents with I/DD, especially for minority individuals.
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- Repetitive Behaviours in Williams Syndrome: A Cross-Cultural Comparison Between the United Kingdom and Japan. [Journal Article]J Intellect Disabil Res. 2026 Jun 28. [Online ahead of print]JI
- CONCLUSIONS: These findings are consistent with previous studies of caregiver-reported RRBs among autistic individuals, suggesting that insistence on sameness and circumscribed interests may be reported differently across cultural contexts. In WS, caregiver-reported RBQ profiles may vary by cultural context and show tentative cross-sectional age-related patterns, highlighting the need to consider contextual and developmental factors when interpreting parent-report measures of these behaviours.
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- Validation of the Q87.11 ICD Code for Prader-Willi Syndrome. [Journal Article]J Intellect Disabil Res. 2026 Jun 24. [Online ahead of print]JI
- CONCLUSIONS: A single use of the Q87.11 diagnostic code produces excellent sensitivity, specificity, PPV and NPV for identifying patients with PWS, although sensitivity is lower for individual outpatient encounters compared with inpatient ones. The overall accuracy of the Q87.11 code supports the validity of using this code in the analysis of administrative claims datasets.
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