Tags

Type your tag names separated by a space and hit enter

Family satisfaction with end-of-life care in seriously ill hospitalized adults.
J Am Geriatr Soc. 2000 05; 48(S1):S61-9.JA

Abstract

OBJECTIVE

To examine factors associated with family satisfaction with end-of-life care in the Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT).

DESIGN

A prospective cohort study with patients randomized to either usual care or an intervention that included clinical nurse specialists to assist in symptom control and facilitation of communication and decision-making.

SETTING

Five teaching hospitals in the United States.

PARTICIPANTS

Family members and other surrogate respondents for 767 seriously ill hospitalized adults who died.

MEASUREMENTS

Eight questionnaire items regarding satisfaction with the patient's medical care expressed as two scores, one measuring satisfaction with patient comfort and the other measuring satisfaction with communication and decision-making.

RESULTS

Sixteen percent of respondents reported dissatisfaction with patient comfort and 30% reported dissatisfaction with communication and decision-making. Factors found to be significantly associated with satisfaction with communication and decision-making were hospital site, whether death occurred during the index hospitalization (adjusted odds ratio (AOR) 2.2, 95% CI, 1.3-3.9), and for patients who died following discharge, whether the patient received the SUPPORT intervention (AOR 2.0, 1.2-3.2). For satisfaction with comfort, male surrogates reported less satisfaction (0.6, 0.4-1.0), surrogates who reported patients' preferences were followed moderately to not at all had less satisfaction (0.2, 0.1-0.4), and surrogates who reported the patient's illness had greater effect on family finances had less satisfaction (0.4, 0.2-0.8).

CONCLUSIONS

Satisfaction scores suggest the need for improvement in end-of-life care, especially in communication and decision making. Further research is needed to understand how factors affect satisfaction with end-of-life care. An intervention like that used in SUPPORT may help family members.

Authors+Show Affiliations

APACHE Medical Systems, Inc., McLean, Virginia, USA.No affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Clinical Trial
Journal Article
Multicenter Study
Randomized Controlled Trial

Language

eng

PubMed ID

10809458

Citation

Baker, R, et al. "Family Satisfaction With End-of-life Care in Seriously Ill Hospitalized Adults." Journal of the American Geriatrics Society, vol. 48, no. S1, 2000, pp. S61-9.
Baker R, Wu AW, Teno JM, et al. Family satisfaction with end-of-life care in seriously ill hospitalized adults. J Am Geriatr Soc. 2000;48(S1):S61-9.
Baker, R., Wu, A. W., Teno, J. M., Kreling, B., Damiano, A. M., Rubin, H. R., Roach, M. J., Wenger, N. S., Phillips, R. S., Desbiens, N. A., Connors, A. F., Knaus, W., & Lynn, J. (2000). Family satisfaction with end-of-life care in seriously ill hospitalized adults. Journal of the American Geriatrics Society, 48(S1), S61-9.
Baker R, et al. Family Satisfaction With End-of-life Care in Seriously Ill Hospitalized Adults. J Am Geriatr Soc. 2000;48(S1):S61-9. PubMed PMID: 10809458.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Family satisfaction with end-of-life care in seriously ill hospitalized adults. AU - Baker,R, AU - Wu,A W, AU - Teno,J M, AU - Kreling,B, AU - Damiano,A M, AU - Rubin,H R, AU - Roach,M J, AU - Wenger,N S, AU - Phillips,R S, AU - Desbiens,N A, AU - Connors,A F,Jr AU - Knaus,W, AU - Lynn,J, PY - 2000/5/16/pubmed PY - 2000/6/8/medline PY - 2000/5/16/entrez KW - Death and Euthanasia KW - Empirical Approach SP - S61 EP - 9 JF - Journal of the American Geriatrics Society JO - J Am Geriatr Soc VL - 48 IS - S1 N2 - OBJECTIVE: To examine factors associated with family satisfaction with end-of-life care in the Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). DESIGN: A prospective cohort study with patients randomized to either usual care or an intervention that included clinical nurse specialists to assist in symptom control and facilitation of communication and decision-making. SETTING: Five teaching hospitals in the United States. PARTICIPANTS: Family members and other surrogate respondents for 767 seriously ill hospitalized adults who died. MEASUREMENTS: Eight questionnaire items regarding satisfaction with the patient's medical care expressed as two scores, one measuring satisfaction with patient comfort and the other measuring satisfaction with communication and decision-making. RESULTS: Sixteen percent of respondents reported dissatisfaction with patient comfort and 30% reported dissatisfaction with communication and decision-making. Factors found to be significantly associated with satisfaction with communication and decision-making were hospital site, whether death occurred during the index hospitalization (adjusted odds ratio (AOR) 2.2, 95% CI, 1.3-3.9), and for patients who died following discharge, whether the patient received the SUPPORT intervention (AOR 2.0, 1.2-3.2). For satisfaction with comfort, male surrogates reported less satisfaction (0.6, 0.4-1.0), surrogates who reported patients' preferences were followed moderately to not at all had less satisfaction (0.2, 0.1-0.4), and surrogates who reported the patient's illness had greater effect on family finances had less satisfaction (0.4, 0.2-0.8). CONCLUSIONS: Satisfaction scores suggest the need for improvement in end-of-life care, especially in communication and decision making. Further research is needed to understand how factors affect satisfaction with end-of-life care. An intervention like that used in SUPPORT may help family members. SN - 0002-8614 UR - https://www.unboundmedicine.com/medline/citation/10809458/Family_satisfaction_with_end_of_life_care_in_seriously_ill_hospitalized_adults_ L2 - https://onlinelibrary.wiley.com/resolve/openurl?genre=article&sid=nlm:pubmed&issn=0002-8614&date=2000&volume=48&issue=S1&spage=S61 DB - PRIME DP - Unbound Medicine ER -