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Treatment of oralfacial clefts by state-affiliated craniofacial centers and cleft palate clinics.
Birth Defects Res A Clin Mol Teratol. 2003 Sep; 67(9):643-6.BD

Abstract

BACKGROUND

Oralfacial clefting (OFC) disorders require expedient evaluation and treatment to obtain optimal outcome. In Florida, there is a statewide program targeted to the care of infants with OFC. We therefore sought to determine statewide referral and treatment patterns of children born with OFC identified through the Florida Birth Defects Registry.

METHODS

Using data for 1996 and 1997 and ICD-9 CM codes 749.00 - 749.25, we identified 539 OFC cases. All cases were matched with the evaluation and treatment records of the statewide Children's Medical Services' (CMS) craniofacial centers (CFC) and cleft palate clinics (CPC). The likelihood of CMS contact was examined with respect to demographic and other descriptive data characterizing the OFC cases.

RESULTS

42% (227/539) of OFC cases were evaluated at or known to the CFC or CPC. Children with cleft lip and palate were more likely to have had contact than were those with cleft lip or cleft palate alone. The CFC and CPC programs were most likely to provide evaluation between age 2 months and 3 years. Of 12 counties with occurrences of more than 15 OFC cases, 2 had significantly lower contact rates, suggesting possible problems in accessibility or reporting of services.

CONCLUSIONS

Statewide Birth Defect Registry data can be used in collaboration with statewide treatment programs to gain insight into referral patterns and provision of services. Factors influencing access to services and quality of care, though not addressed by this study, could be prospectively incorporated into such a project.

Authors+Show Affiliations

Division of Genetics, Department of Pediatrics, University of Florida College of Medicine, Gainesville, Florida 32610, USA. willicx@peds.ufl.eduNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Comparative Study
Journal Article
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

14703787

Citation

Williams, Charles A., et al. "Treatment of Oralfacial Clefts By State-affiliated Craniofacial Centers and Cleft Palate Clinics." Birth Defects Research. Part A, Clinical and Molecular Teratology, vol. 67, no. 9, 2003, pp. 643-6.
Williams CA, Mardon RE, Grove D, et al. Treatment of oralfacial clefts by state-affiliated craniofacial centers and cleft palate clinics. Birth Defects Res A Clin Mol Teratol. 2003;67(9):643-6.
Williams, C. A., Mardon, R. E., Grove, D., Wharton, P., Hauser, K. W., & Frías, J. L. (2003). Treatment of oralfacial clefts by state-affiliated craniofacial centers and cleft palate clinics. Birth Defects Research. Part A, Clinical and Molecular Teratology, 67(9), 643-6.
Williams CA, et al. Treatment of Oralfacial Clefts By State-affiliated Craniofacial Centers and Cleft Palate Clinics. Birth Defects Res A Clin Mol Teratol. 2003;67(9):643-6. PubMed PMID: 14703787.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Treatment of oralfacial clefts by state-affiliated craniofacial centers and cleft palate clinics. AU - Williams,Charles A, AU - Mardon,Russell E, AU - Grove,Douglas, AU - Wharton,Paul, AU - Hauser,Kimberlea W, AU - Frías,Jaime L, PY - 2004/1/6/pubmed PY - 2004/5/20/medline PY - 2004/1/6/entrez SP - 643 EP - 6 JF - Birth defects research. Part A, Clinical and molecular teratology JO - Birth Defects Res A Clin Mol Teratol VL - 67 IS - 9 N2 - BACKGROUND: Oralfacial clefting (OFC) disorders require expedient evaluation and treatment to obtain optimal outcome. In Florida, there is a statewide program targeted to the care of infants with OFC. We therefore sought to determine statewide referral and treatment patterns of children born with OFC identified through the Florida Birth Defects Registry. METHODS: Using data for 1996 and 1997 and ICD-9 CM codes 749.00 - 749.25, we identified 539 OFC cases. All cases were matched with the evaluation and treatment records of the statewide Children's Medical Services' (CMS) craniofacial centers (CFC) and cleft palate clinics (CPC). The likelihood of CMS contact was examined with respect to demographic and other descriptive data characterizing the OFC cases. RESULTS: 42% (227/539) of OFC cases were evaluated at or known to the CFC or CPC. Children with cleft lip and palate were more likely to have had contact than were those with cleft lip or cleft palate alone. The CFC and CPC programs were most likely to provide evaluation between age 2 months and 3 years. Of 12 counties with occurrences of more than 15 OFC cases, 2 had significantly lower contact rates, suggesting possible problems in accessibility or reporting of services. CONCLUSIONS: Statewide Birth Defect Registry data can be used in collaboration with statewide treatment programs to gain insight into referral patterns and provision of services. Factors influencing access to services and quality of care, though not addressed by this study, could be prospectively incorporated into such a project. SN - 1542-0752 UR - https://www.unboundmedicine.com/medline/citation/14703787/Treatment_of_oralfacial_clefts_by_state_affiliated_craniofacial_centers_and_cleft_palate_clinics_ L2 - https://doi.org/10.1002/bdra.10115 DB - PRIME DP - Unbound Medicine ER -