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Prevalence and characteristics of children with special health care needs.
Arch Pediatr Adolesc Med. 2004 Sep; 158(9):884-90.AP

Abstract

BACKGROUND

Children with special health care needs (SHCNs) are an important population from health care services, economic, and policy perspectives. However, until recently, no national data on their prevalence and health care service needs that use a commonly accepted definition have existed.

OBJECTIVE

To provide national estimates of the number of children with SHCNs and their characteristics, including an assessment of how well their needs are being met.

SETTING

The United States.

PARTICIPANTS

Interviews were conducted by telephone with the families of 38 866 children with SHCNs younger than 18 years using the State and Local Area Integrated Telephone Survey platform developed by the Centers for Disease Control and Prevention, Atlanta, Ga.

MAIN OUTCOME MEASURES

Prevalence of SHCNs, demographic and socioeconomic correlates of SHCNs, access to care, satisfaction with care, and impact on the family.

RESULTS

An estimated 12.8% of US children experienced an SHCN in 2001. Prevalence was highest among boys, school-age children, and children in lower-income families. A substantial minority of these children experienced unmet health needs (17.7%) or lacked critical elements of family-centered health care (33.5%). The impact on families was pronounced, as 20.9% reported their child's health care caused financial problems, and 29.9% reported cutting back or quitting work because of their child's condition. These adverse child- and family-level impacts were concentrated among low-income and uninsured children with SHCNs.

CONCLUSIONS

Children with SHCNs and their families represent an important underserved population. In addition, substantial disparities are present in access, satisfaction, and family impact.

Authors+Show Affiliations

Maternal and Child Health Bureau, Health Resources and Services Administration/NIH, 5600 Fishers Lane, Rockville, MD 20857, USA.No affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Comparative Study
Journal Article

Language

eng

PubMed ID

15351754

Citation

van Dyck, Peter C., et al. "Prevalence and Characteristics of Children With Special Health Care Needs." Archives of Pediatrics & Adolescent Medicine, vol. 158, no. 9, 2004, pp. 884-90.
van Dyck PC, Kogan MD, McPherson MG, et al. Prevalence and characteristics of children with special health care needs. Arch Pediatr Adolesc Med. 2004;158(9):884-90.
van Dyck, P. C., Kogan, M. D., McPherson, M. G., Weissman, G. R., & Newacheck, P. W. (2004). Prevalence and characteristics of children with special health care needs. Archives of Pediatrics & Adolescent Medicine, 158(9), 884-90.
van Dyck PC, et al. Prevalence and Characteristics of Children With Special Health Care Needs. Arch Pediatr Adolesc Med. 2004;158(9):884-90. PubMed PMID: 15351754.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Prevalence and characteristics of children with special health care needs. AU - van Dyck,Peter C, AU - Kogan,Michael D, AU - McPherson,Merle G, AU - Weissman,Gloria R, AU - Newacheck,Paul W, PY - 2004/9/8/pubmed PY - 2004/10/22/medline PY - 2004/9/8/entrez SP - 884 EP - 90 JF - Archives of pediatrics & adolescent medicine JO - Arch Pediatr Adolesc Med VL - 158 IS - 9 N2 - BACKGROUND: Children with special health care needs (SHCNs) are an important population from health care services, economic, and policy perspectives. However, until recently, no national data on their prevalence and health care service needs that use a commonly accepted definition have existed. OBJECTIVE: To provide national estimates of the number of children with SHCNs and their characteristics, including an assessment of how well their needs are being met. SETTING: The United States. PARTICIPANTS: Interviews were conducted by telephone with the families of 38 866 children with SHCNs younger than 18 years using the State and Local Area Integrated Telephone Survey platform developed by the Centers for Disease Control and Prevention, Atlanta, Ga. MAIN OUTCOME MEASURES: Prevalence of SHCNs, demographic and socioeconomic correlates of SHCNs, access to care, satisfaction with care, and impact on the family. RESULTS: An estimated 12.8% of US children experienced an SHCN in 2001. Prevalence was highest among boys, school-age children, and children in lower-income families. A substantial minority of these children experienced unmet health needs (17.7%) or lacked critical elements of family-centered health care (33.5%). The impact on families was pronounced, as 20.9% reported their child's health care caused financial problems, and 29.9% reported cutting back or quitting work because of their child's condition. These adverse child- and family-level impacts were concentrated among low-income and uninsured children with SHCNs. CONCLUSIONS: Children with SHCNs and their families represent an important underserved population. In addition, substantial disparities are present in access, satisfaction, and family impact. SN - 1072-4710 UR - https://www.unboundmedicine.com/medline/citation/15351754/Prevalence_and_characteristics_of_children_with_special_health_care_needs_ L2 - https://jamanetwork.com/journals/jamapediatrics/fullarticle/10.1001/archpedi.158.9.884 DB - PRIME DP - Unbound Medicine ER -