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Access and referral to specialist palliative care: patients' and professionals' experiences.
Int J Palliat Nurs. 2004 Aug; 10(8):381-9.IJ

Abstract

The aim of this study was to explore the reasons why patients and families are referred to specialist palliative care. Semi-structured interviews were undertaken with patients and professionals from primary care and specialist palliative care services in the north of England. A content analysis of the transcripts was undertaken, key issues were identified and common themes grouped. Twelve professionals working in specialist palliative care, three GPs, six community nurses and thirteen patients were interviewed (n = 34). Five key themes are reported: reasons why patients are referred to specialist palliative care; reasons why patients are not referred to specialist palliative care; timeliness of referrals; continuity of care; and use of referral criteria. It was found that the professionals in primary care would like more training and education about how to refer patients to specialist palliative care and how to deal with issues of death and dying. The patients were generally satisfied with the service but wanted to be able to be supported at home in their final days. Further training and education may improve the knowledge of professionals who refer patients to specialist palliative care. There are currently no standardized criteria in the UK to determine when a referral should be triggered. The development of a set of standardized referral criteria may be useful in aiding a referral decision.

Authors+Show Affiliations

Academic Palliative Medicine Unit, Division of Clinical Sciences (South), Section of Surgical and Anaesthetic Sciences, University of Sheffield, K Floor, Royal Hallamshire Hospital, Glossop Road, Sheffield S10 2JF, UK. j.c.bestall@sheffield.ac.ukNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article

Language

eng

PubMed ID

15365492

Citation

Bestall, Janine C., et al. "Access and Referral to Specialist Palliative Care: Patients' and Professionals' Experiences." International Journal of Palliative Nursing, vol. 10, no. 8, 2004, pp. 381-9.
Bestall JC, Ahmed N, Ahmedzai SH, et al. Access and referral to specialist palliative care: patients' and professionals' experiences. Int J Palliat Nurs. 2004;10(8):381-9.
Bestall, J. C., Ahmed, N., Ahmedzai, S. H., Payne, S. A., Noble, B., & Clark, D. (2004). Access and referral to specialist palliative care: patients' and professionals' experiences. International Journal of Palliative Nursing, 10(8), 381-9.
Bestall JC, et al. Access and Referral to Specialist Palliative Care: Patients' and Professionals' Experiences. Int J Palliat Nurs. 2004;10(8):381-9. PubMed PMID: 15365492.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Access and referral to specialist palliative care: patients' and professionals' experiences. AU - Bestall,Janine C, AU - Ahmed,Nisar, AU - Ahmedzai,Sam H, AU - Payne,Sheila A, AU - Noble,Bill, AU - Clark,David, PY - 2004/9/15/pubmed PY - 2004/10/28/medline PY - 2004/9/15/entrez SP - 381 EP - 9 JF - International journal of palliative nursing JO - Int J Palliat Nurs VL - 10 IS - 8 N2 - The aim of this study was to explore the reasons why patients and families are referred to specialist palliative care. Semi-structured interviews were undertaken with patients and professionals from primary care and specialist palliative care services in the north of England. A content analysis of the transcripts was undertaken, key issues were identified and common themes grouped. Twelve professionals working in specialist palliative care, three GPs, six community nurses and thirteen patients were interviewed (n = 34). Five key themes are reported: reasons why patients are referred to specialist palliative care; reasons why patients are not referred to specialist palliative care; timeliness of referrals; continuity of care; and use of referral criteria. It was found that the professionals in primary care would like more training and education about how to refer patients to specialist palliative care and how to deal with issues of death and dying. The patients were generally satisfied with the service but wanted to be able to be supported at home in their final days. Further training and education may improve the knowledge of professionals who refer patients to specialist palliative care. There are currently no standardized criteria in the UK to determine when a referral should be triggered. The development of a set of standardized referral criteria may be useful in aiding a referral decision. SN - 1357-6321 UR - https://www.unboundmedicine.com/medline/citation/15365492/Access_and_referral_to_specialist_palliative_care:_patients'_and_professionals'_experiences_ L2 - https://www.magonlinelibrary.com/doi/10.12968/ijpn.2004.10.8.15874?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub=pubmed DB - PRIME DP - Unbound Medicine ER -