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Exploring the role of partnership in the home care of children with special health needs: qualitative findings from two service evaluations.
Int J Nurs Stud. 2008 May; 45(5):714-26.IJ

Abstract

BACKGROUND

Advances in therapeutics and the increasing survival rate among premature infants means that more parents now have to adapt to caring at home for children with special health needs. Community paediatric nurses require a wide range of specialist skills and the concept of partnership appears to be foundational to their care of parents and children.

OBJECTIVES

Drawing on data gathered during the course of two service evaluations of community paediatric nursing care of children with special health needs, this paper explores the extent to which a concept analysis of partnership can be verified empirically.

EVALUATION METHODS

In-depth interviews were carried out with parents, a range of professionals and members of different agencies who received training from the nursing team. The sample comprised 17 parents and 20 professionals.

FINDINGS

Respect for parental routine was strongly evidenced in both areas, was highly valued in the training of carers and contributed to mothers' confidence. Parents acknowledged that nurses' interactional strategies engendered trust, demonstrated respect for them and empathy for their child. These features of care resonate strongly with partnership attributes identified in the conceptual analysis. Nursing support of parents demonstrated a deep understanding of different styles of adult learning, of how to alleviate psychological and emotional stress and of parental vulnerability. In addition, there was evidence of extensive partnership working across health and social care boundaries. The findings demonstrated the wide range of such collaboration, the time necessary to make it work and the benefit that accrues to the families.

CONCLUSIONS

It was possible to make empirical links with the partnership attributes identified in the concept analysis although the data highlight the complexity of some of the individual attributes. While there may be overlap between professional-parent partnership and partnership at the level of service co-ordination, there may also be important differences which merit further enquiry. In terms of policy and practice, findings suggest that partnership in the community setting is central to effective service delivery but is knowledge, skill and resource intensive.

Authors+Show Affiliations

Community Nursing Research, Glasgow Caledonian University, 70 Cowcaddens Road, Glasgow, Scotland G4 0BA, UK. J.mnIntosh@gcal.ac.ukNo affiliation info available

Pub Type(s)

Evaluation Study
Journal Article

Language

eng

PubMed ID

17307182

Citation

McIntosh, Jean, and Phil Runciman. "Exploring the Role of Partnership in the Home Care of Children With Special Health Needs: Qualitative Findings From Two Service Evaluations." International Journal of Nursing Studies, vol. 45, no. 5, 2008, pp. 714-26.
McIntosh J, Runciman P. Exploring the role of partnership in the home care of children with special health needs: qualitative findings from two service evaluations. Int J Nurs Stud. 2008;45(5):714-26.
McIntosh, J., & Runciman, P. (2008). Exploring the role of partnership in the home care of children with special health needs: qualitative findings from two service evaluations. International Journal of Nursing Studies, 45(5), 714-26.
McIntosh J, Runciman P. Exploring the Role of Partnership in the Home Care of Children With Special Health Needs: Qualitative Findings From Two Service Evaluations. Int J Nurs Stud. 2008;45(5):714-26. PubMed PMID: 17307182.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Exploring the role of partnership in the home care of children with special health needs: qualitative findings from two service evaluations. AU - McIntosh,Jean, AU - Runciman,Phil, Y1 - 2007/02/16/ PY - 2006/10/03/received PY - 2006/12/01/revised PY - 2006/12/16/accepted PY - 2007/2/20/pubmed PY - 2008/10/3/medline PY - 2007/2/20/entrez SP - 714 EP - 26 JF - International journal of nursing studies JO - Int J Nurs Stud VL - 45 IS - 5 N2 - BACKGROUND: Advances in therapeutics and the increasing survival rate among premature infants means that more parents now have to adapt to caring at home for children with special health needs. Community paediatric nurses require a wide range of specialist skills and the concept of partnership appears to be foundational to their care of parents and children. OBJECTIVES: Drawing on data gathered during the course of two service evaluations of community paediatric nursing care of children with special health needs, this paper explores the extent to which a concept analysis of partnership can be verified empirically. EVALUATION METHODS: In-depth interviews were carried out with parents, a range of professionals and members of different agencies who received training from the nursing team. The sample comprised 17 parents and 20 professionals. FINDINGS: Respect for parental routine was strongly evidenced in both areas, was highly valued in the training of carers and contributed to mothers' confidence. Parents acknowledged that nurses' interactional strategies engendered trust, demonstrated respect for them and empathy for their child. These features of care resonate strongly with partnership attributes identified in the conceptual analysis. Nursing support of parents demonstrated a deep understanding of different styles of adult learning, of how to alleviate psychological and emotional stress and of parental vulnerability. In addition, there was evidence of extensive partnership working across health and social care boundaries. The findings demonstrated the wide range of such collaboration, the time necessary to make it work and the benefit that accrues to the families. CONCLUSIONS: It was possible to make empirical links with the partnership attributes identified in the concept analysis although the data highlight the complexity of some of the individual attributes. While there may be overlap between professional-parent partnership and partnership at the level of service co-ordination, there may also be important differences which merit further enquiry. In terms of policy and practice, findings suggest that partnership in the community setting is central to effective service delivery but is knowledge, skill and resource intensive. SN - 0020-7489 UR - https://www.unboundmedicine.com/medline/citation/17307182/Exploring_the_role_of_partnership_in_the_home_care_of_children_with_special_health_needs:_qualitative_findings_from_two_service_evaluations_ L2 - https://linkinghub.elsevier.com/retrieve/pii/S0020-7489(07)00023-5 DB - PRIME DP - Unbound Medicine ER -