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A family-centered, community-based system of services for children and youth with special health care needs.
Arch Pediatr Adolesc Med. 2007 Oct; 161(10):933-6.AP

Abstract

OBJECTIVE

To present a conceptual definition of a family-centered system of services for children and youth with special health care needs (CYSHCN). Previous work by the Maternal and Child Health Bureau to define CYSHCN has had widespread program effects. This article similarly seeks to provide a definition of a system of services.

DESIGN

Comprehensive literature review of systems of services and consensus panel organized to review and refine the definition.

SETTING

Policy research group and advisors at multiple sites.

PARTICIPANTS

Policy researchers, content experts on CYSHCN, family representatives, and state program directors.

OUTCOME

Definition of a system of services for CYSHCN.

RESULTS

This article defines a system of services for CYSHCN as a family-centered network of community-based services designed to promote the healthy development and well-being of these children and their families. The definition can guide discussion among policy makers, practitioners, state programs, researchers, and families for implementing the "community-based systems of services" contained in Title V of the Social Security Act. Critical characteristics of a system include coordination of child and family services, effective communication among providers and the family, family partnership in care provision, and flexibility.

CONCLUSIONS

This definition provides a conceptual model that can help measurement development and assessment of how well systems work and achieve their goals. Currently available performance objectives for the provision of care for CYSHCN and national surveys of child health could be modified to assess systems of services in general.

Authors+Show Affiliations

Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, and Harvard Medical School, Boston, MA 02114, USA. jperrin@partners.orgNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article
Research Support, U.S. Gov't, P.H.S.
Review

Language

eng

PubMed ID

17909135

Citation

Perrin, James M., et al. "A Family-centered, Community-based System of Services for Children and Youth With Special Health Care Needs." Archives of Pediatrics & Adolescent Medicine, vol. 161, no. 10, 2007, pp. 933-6.
Perrin JM, Romm D, Bloom SR, et al. A family-centered, community-based system of services for children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007;161(10):933-6.
Perrin, J. M., Romm, D., Bloom, S. R., Homer, C. J., Kuhlthau, K. A., Cooley, C., Duncan, P., Roberts, R., Sloyer, P., Wells, N., & Newacheck, P. (2007). A family-centered, community-based system of services for children and youth with special health care needs. Archives of Pediatrics & Adolescent Medicine, 161(10), 933-6.
Perrin JM, et al. A Family-centered, Community-based System of Services for Children and Youth With Special Health Care Needs. Arch Pediatr Adolesc Med. 2007;161(10):933-6. PubMed PMID: 17909135.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - A family-centered, community-based system of services for children and youth with special health care needs. AU - Perrin,James M, AU - Romm,Diane, AU - Bloom,Sheila R, AU - Homer,Charles J, AU - Kuhlthau,Karen A, AU - Cooley,Carl, AU - Duncan,Paula, AU - Roberts,Richard, AU - Sloyer,Phyllis, AU - Wells,Nora, AU - Newacheck,Paul, PY - 2007/10/3/pubmed PY - 2007/11/14/medline PY - 2007/10/3/entrez SP - 933 EP - 6 JF - Archives of pediatrics & adolescent medicine JO - Arch Pediatr Adolesc Med VL - 161 IS - 10 N2 - OBJECTIVE: To present a conceptual definition of a family-centered system of services for children and youth with special health care needs (CYSHCN). Previous work by the Maternal and Child Health Bureau to define CYSHCN has had widespread program effects. This article similarly seeks to provide a definition of a system of services. DESIGN: Comprehensive literature review of systems of services and consensus panel organized to review and refine the definition. SETTING: Policy research group and advisors at multiple sites. PARTICIPANTS: Policy researchers, content experts on CYSHCN, family representatives, and state program directors. OUTCOME: Definition of a system of services for CYSHCN. RESULTS: This article defines a system of services for CYSHCN as a family-centered network of community-based services designed to promote the healthy development and well-being of these children and their families. The definition can guide discussion among policy makers, practitioners, state programs, researchers, and families for implementing the "community-based systems of services" contained in Title V of the Social Security Act. Critical characteristics of a system include coordination of child and family services, effective communication among providers and the family, family partnership in care provision, and flexibility. CONCLUSIONS: This definition provides a conceptual model that can help measurement development and assessment of how well systems work and achieve their goals. Currently available performance objectives for the provision of care for CYSHCN and national surveys of child health could be modified to assess systems of services in general. SN - 1072-4710 UR - https://www.unboundmedicine.com/medline/citation/17909135/A_family_centered_community_based_system_of_services_for_children_and_youth_with_special_health_care_needs_ L2 - https://jamanetwork.com/journals/jamapediatrics/fullarticle/10.1001/archpedi.161.10.933 DB - PRIME DP - Unbound Medicine ER -