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Comparison of impact on mood, health, and daily living experiences of primary caregivers of walking and non-walking children with cerebral palsy and provided community services support.
Eur J Paediatr Neurol. 2010 May; 14(3):239-46.EJ

Abstract

Many children with cerebral palsy (CP), especially non-walkers, were previously reported to have cold extremities, pain, sleeping disorders, constipation, and impaired well-being - besides accompanying impairments. Most children had had one or more of these symptoms for more than 1 year, and the symptoms were largely untreated. This study (1) describes mood, health, and daily life experiences of the children's parents; (2) explains impact that the child's impairments and symptoms have on the family; and (3) investigates community services support. Information in this study was gathered from parents of 106 children, ages 5-16, with CP, who lived in northern Sweden. Compared with parents of walkers, parents with non-walking children and several disorders were more frequently anxious for their children's physical and psychological health; often experienced restricted time for themselves; reported frequent daily living interferences; and stated that their health was affected due to the child's health. 10 percent of all families reported that their need of community services support was unmet. To improve health and to provide good community services support for the entire family, regular follow-up and evaluation of the child's treatment and family support are important.

Authors+Show Affiliations

Institute of Neuroscience and Physiology, Sahlgrenska Academy, Göteborg University, Göteborg, Sweden. lena.svedberg@fhs.gu.seNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Comparative Study
Journal Article
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

19628416

Citation

Svedberg, Lena E., et al. "Comparison of Impact On Mood, Health, and Daily Living Experiences of Primary Caregivers of Walking and Non-walking Children With Cerebral Palsy and Provided Community Services Support." European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society, vol. 14, no. 3, 2010, pp. 239-46.
Svedberg LE, Englund E, Malker H, et al. Comparison of impact on mood, health, and daily living experiences of primary caregivers of walking and non-walking children with cerebral palsy and provided community services support. Eur J Paediatr Neurol. 2010;14(3):239-46.
Svedberg, L. E., Englund, E., Malker, H., & Stener-Victorin, E. (2010). Comparison of impact on mood, health, and daily living experiences of primary caregivers of walking and non-walking children with cerebral palsy and provided community services support. European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society, 14(3), 239-46. https://doi.org/10.1016/j.ejpn.2009.07.001
Svedberg LE, et al. Comparison of Impact On Mood, Health, and Daily Living Experiences of Primary Caregivers of Walking and Non-walking Children With Cerebral Palsy and Provided Community Services Support. Eur J Paediatr Neurol. 2010;14(3):239-46. PubMed PMID: 19628416.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Comparison of impact on mood, health, and daily living experiences of primary caregivers of walking and non-walking children with cerebral palsy and provided community services support. AU - Svedberg,Lena E, AU - Englund,Erling, AU - Malker,Hans, AU - Stener-Victorin,Elisabet, Y1 - 2009/07/23/ PY - 2008/10/31/received PY - 2009/06/25/revised PY - 2009/07/02/accepted PY - 2009/7/25/entrez PY - 2009/7/25/pubmed PY - 2010/7/14/medline SP - 239 EP - 46 JF - European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society JO - Eur J Paediatr Neurol VL - 14 IS - 3 N2 - Many children with cerebral palsy (CP), especially non-walkers, were previously reported to have cold extremities, pain, sleeping disorders, constipation, and impaired well-being - besides accompanying impairments. Most children had had one or more of these symptoms for more than 1 year, and the symptoms were largely untreated. This study (1) describes mood, health, and daily life experiences of the children's parents; (2) explains impact that the child's impairments and symptoms have on the family; and (3) investigates community services support. Information in this study was gathered from parents of 106 children, ages 5-16, with CP, who lived in northern Sweden. Compared with parents of walkers, parents with non-walking children and several disorders were more frequently anxious for their children's physical and psychological health; often experienced restricted time for themselves; reported frequent daily living interferences; and stated that their health was affected due to the child's health. 10 percent of all families reported that their need of community services support was unmet. To improve health and to provide good community services support for the entire family, regular follow-up and evaluation of the child's treatment and family support are important. SN - 1532-2130 UR - https://www.unboundmedicine.com/medline/citation/19628416/Comparison_of_impact_on_mood_health_and_daily_living_experiences_of_primary_caregivers_of_walking_and_non_walking_children_with_cerebral_palsy_and_provided_community_services_support_ L2 - https://linkinghub.elsevier.com/retrieve/pii/S1090-3798(09)00115-9 DB - PRIME DP - Unbound Medicine ER -