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The invisible side of war: families caring for US service members with traumatic brain injuries and polytrauma.
J Head Trauma Rehabil. 2012 Jan-Feb; 27(1):3-13.JH

Abstract

OBJECTIVES

: To (1) identify informal caregivers to injured US service members following acute rehabilitation for polytraumatic injuries, principally traumatic brain injury (TBI), and (2) describe the prevalence and variation of care recipient and caregiver experiences.

DESIGN

: Cross-sectional survey of caregivers.

PARTICIPANTS

: Caregivers (N = 564) of service members with TBI who received inpatient rehabilitation care in a Veterans Affairs' Polytrauma Rehabilitation Center between 2001 and 2009.

MAIN OUTCOME MEASURES

: Questions about caregiver and patient characteristics, type, and quantity of care currently being provided.

RESULTS

: Caregiving responsibilities fall primarily on women (79%), typically a parent (62%) or spouse (32%). After a median 4 years since injury, 22% of patients still required assistance with activities of daily living and instrumental activities of daily living. An additional 48% required assistance with only instrumental activities of daily living. Nearly 25% of caregivers reported more than 40 h/wk of care and another 20% reported 5 to 40 h/wk of care. Of caregivers providing assistance with activities of daily living, 49% provided care ≥ 80 h/wk. Nearly 60% of caregivers were solely responsible for the caregiving. Most caregivers also reported providing other help, including managing emotions and navigating health and legal systems.

CONCLUSIONS

: Caregivers who provide assistance with either activities of daily living or instrumental activities of daily living may need additional resources to meet the long-term needs of their injured family member.

Authors+Show Affiliations

Center for Chronic Disease Outcomes Research, Department of Veterans Affairs Health Care System, Minneapolis, Minnesota, USA. joan.griffin2@va.govNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article
Research Support, U.S. Gov't, Non-P.H.S.

Language

eng

PubMed ID

21873883

Citation

Griffin, Joan M., et al. "The Invisible Side of War: Families Caring for US Service Members With Traumatic Brain Injuries and Polytrauma." The Journal of Head Trauma Rehabilitation, vol. 27, no. 1, 2012, pp. 3-13.
Griffin JM, Friedemann-Sánchez G, Jensen AC, et al. The invisible side of war: families caring for US service members with traumatic brain injuries and polytrauma. J Head Trauma Rehabil. 2012;27(1):3-13.
Griffin, J. M., Friedemann-Sánchez, G., Jensen, A. C., Taylor, B. C., Gravely, A., Clothier, B., Simon, A. B., Bangerter, A., Pickett, T., Thors, C., Ceperich, S., Poole, J., & van Ryn, M. (2012). The invisible side of war: families caring for US service members with traumatic brain injuries and polytrauma. The Journal of Head Trauma Rehabilitation, 27(1), 3-13. https://doi.org/10.1097/HTR.0b013e3182274260
Griffin JM, et al. The Invisible Side of War: Families Caring for US Service Members With Traumatic Brain Injuries and Polytrauma. J Head Trauma Rehabil. 2012 Jan-Feb;27(1):3-13. PubMed PMID: 21873883.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - The invisible side of war: families caring for US service members with traumatic brain injuries and polytrauma. AU - Griffin,Joan M, AU - Friedemann-Sánchez,Greta, AU - Jensen,Agnes C, AU - Taylor,Brent C, AU - Gravely,Amy, AU - Clothier,Barbara, AU - Simon,Alisha Baines, AU - Bangerter,Ann, AU - Pickett,Treven, AU - Thors,Christina, AU - Ceperich,Sherry, AU - Poole,John, AU - van Ryn,Michelle, PY - 2011/8/30/entrez PY - 2011/8/30/pubmed PY - 2012/5/9/medline SP - 3 EP - 13 JF - The Journal of head trauma rehabilitation JO - J Head Trauma Rehabil VL - 27 IS - 1 N2 - OBJECTIVES: : To (1) identify informal caregivers to injured US service members following acute rehabilitation for polytraumatic injuries, principally traumatic brain injury (TBI), and (2) describe the prevalence and variation of care recipient and caregiver experiences. DESIGN: : Cross-sectional survey of caregivers. PARTICIPANTS: : Caregivers (N = 564) of service members with TBI who received inpatient rehabilitation care in a Veterans Affairs' Polytrauma Rehabilitation Center between 2001 and 2009. MAIN OUTCOME MEASURES: : Questions about caregiver and patient characteristics, type, and quantity of care currently being provided. RESULTS: : Caregiving responsibilities fall primarily on women (79%), typically a parent (62%) or spouse (32%). After a median 4 years since injury, 22% of patients still required assistance with activities of daily living and instrumental activities of daily living. An additional 48% required assistance with only instrumental activities of daily living. Nearly 25% of caregivers reported more than 40 h/wk of care and another 20% reported 5 to 40 h/wk of care. Of caregivers providing assistance with activities of daily living, 49% provided care ≥ 80 h/wk. Nearly 60% of caregivers were solely responsible for the caregiving. Most caregivers also reported providing other help, including managing emotions and navigating health and legal systems. CONCLUSIONS: : Caregivers who provide assistance with either activities of daily living or instrumental activities of daily living may need additional resources to meet the long-term needs of their injured family member. SN - 1550-509X UR - https://www.unboundmedicine.com/medline/citation/21873883/The_invisible_side_of_war:_families_caring_for_US_service_members_with_traumatic_brain_injuries_and_polytrauma_ L2 - https://doi.org/10.1097/HTR.0b013e3182274260 DB - PRIME DP - Unbound Medicine ER -