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Having a brother or sister with Down syndrome: perspectives from siblings.
. 2011 Oct; 155A(10):2348-59.

Abstract

This study asks brothers and sisters about their feelings and perceptions toward their sibling with Down syndrome (DS). We analyzed valid and reliable surveys from 822 brothers and sisters whose families were on the mailing lists of six non-profit DS organizations around the country. More than 96% of brothers/sisters that responded to the survey indicated that they had affection toward their sibling with DS; and 94% of older siblings expressed feelings of pride. Less than 10% felt embarrassed, and less than 5% expressed a desire to trade their sibling in for another brother or sister without DS. Among older siblings, 88% felt that they were better people because of their siblings with DS, and more than 90% plan to remain involved in their sibling's lives as they become adults. The vast majority of brothers and sisters describe their relationship with their sibling with DS as positive and enhancing.

Authors+Show Affiliations

Division of Genetics, Department of Medicine, Children's Hospital Boston, MA, USA. brian.skotko@childrens.harvard.eduNo affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

21910244

Citation

Skotko, Brian G., et al. "Having a Brother or Sister With Down Syndrome: Perspectives From Siblings." American Journal of Medical Genetics. Part A, vol. 155A, no. 10, 2011, pp. 2348-59.
Skotko BG, Levine SP, Goldstein R. Having a brother or sister with Down syndrome: perspectives from siblings. Am J Med Genet A. 2011;155A(10):2348-59.
Skotko, B. G., Levine, S. P., & Goldstein, R. (2011). Having a brother or sister with Down syndrome: perspectives from siblings. American Journal of Medical Genetics. Part A, 155A(10), 2348-59. https://doi.org/10.1002/ajmg.a.34228
Skotko BG, Levine SP, Goldstein R. Having a Brother or Sister With Down Syndrome: Perspectives From Siblings. Am J Med Genet A. 2011;155A(10):2348-59. PubMed PMID: 21910244.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Having a brother or sister with Down syndrome: perspectives from siblings. AU - Skotko,Brian G, AU - Levine,Susan P, AU - Goldstein,Richard, Y1 - 2011/09/09/ PY - 2011/03/17/received PY - 2011/06/30/accepted PY - 2011/9/13/entrez PY - 2011/9/13/pubmed PY - 2012/1/19/medline SP - 2348 EP - 59 JF - American journal of medical genetics. Part A JO - Am. J. Med. Genet. A VL - 155A IS - 10 N2 - This study asks brothers and sisters about their feelings and perceptions toward their sibling with Down syndrome (DS). We analyzed valid and reliable surveys from 822 brothers and sisters whose families were on the mailing lists of six non-profit DS organizations around the country. More than 96% of brothers/sisters that responded to the survey indicated that they had affection toward their sibling with DS; and 94% of older siblings expressed feelings of pride. Less than 10% felt embarrassed, and less than 5% expressed a desire to trade their sibling in for another brother or sister without DS. Among older siblings, 88% felt that they were better people because of their siblings with DS, and more than 90% plan to remain involved in their sibling's lives as they become adults. The vast majority of brothers and sisters describe their relationship with their sibling with DS as positive and enhancing. SN - 1552-4833 UR - https://www.unboundmedicine.com/medline/citation/21910244/Having_a_brother_or_sister_with_Down_syndrome:_perspectives_from_siblings_ L2 - https://doi.org/10.1002/ajmg.a.34228 DB - PRIME DP - Unbound Medicine ER -