Tags

Type your tag names separated by a space and hit enter

Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP).
Health Qual Life Outcomes. 2012 Jan 30; 10:13.HQ

Abstract

BACKGROUND

Adolescents and young adult (AYA) cancer survivors may have unique physical, psychological and social needs due to their cancer occurring at a critical phase of development. The aim of this study was to develop a psychometrically rigorous measure of unmet need to capture the specific needs of this group.

METHODS

Items were developed following a comprehensive literature review, focus groups with AYAs, and feedback from health care providers, researchers and other professionals. The measure was pilot tested with 32 AYA cancer survivors recruited through a state-based cancer registry to establish face and content validity. A main sample of 139 AYA cancer patients and survivors were recruited through seven treatment centres and invited to complete the questionnaire. To establish test-retest reliability, a sub-sample of 34 participants completed the measure a second time. Exploratory factor analysis was performed and the measure was assessed for internal consistency, discriminative validity, potential responsiveness and acceptability.

RESULTS

The Cancer Needs Questionnaire - Young People (CNQ-YP) has established face and content validity, and acceptability. The final measure has 70 items and six factors: Treatment Environment and Care (33 items); Feelings and Relationships (14 items); Daily Life (12 items); Information and Activities (5 items); Education (3 items); and Work (3 items). All domains achieved Cronbach's alpha values greater than 0.80. Item-to-item test-retest reliability was also high, with all but four items reaching weighted kappa values above 0.60.

CONCLUSIONS

The CNQ-YP is the first multi-dimensional measure of unmet need which has been developed specifically for AYA cancer patients and survivors. The measure displays a strong factor structure, and excellent internal consistency and test-retest reliability. However, the small sample size has implications for the reliability of the statistical analyses undertaken, particularly the exploratory factor analysis. Future studies with a larger sample are recommended to confirm the factor structure of the measure. Longitudinal studies to establish responsiveness and predictive validity should also be undertaken.

Authors+Show Affiliations

Health Behaviour Research Group, Priority Research Centre for Health Behaviour, University of Newcastle and the Hunter Medical Research Institute, Callaghan, New South Wales, Australia. tara.clinton-mcharg@newcastle.edu.auNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Comparative Study
Journal Article
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

22284545

Citation

Clinton-McHarg, Tara, et al. "Preliminary Development and Psychometric Evaluation of an Unmet Needs Measure for Adolescents and Young Adults With Cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP)." Health and Quality of Life Outcomes, vol. 10, 2012, p. 13.
Clinton-McHarg T, Carey M, Sanson-Fisher R, et al. Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP). Health Qual Life Outcomes. 2012;10:13.
Clinton-McHarg, T., Carey, M., Sanson-Fisher, R., D'Este, C., & Shakeshaft, A. (2012). Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP). Health and Quality of Life Outcomes, 10, 13. https://doi.org/10.1186/1477-7525-10-13
Clinton-McHarg T, et al. Preliminary Development and Psychometric Evaluation of an Unmet Needs Measure for Adolescents and Young Adults With Cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP). Health Qual Life Outcomes. 2012 Jan 30;10:13. PubMed PMID: 22284545.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP). AU - Clinton-McHarg,Tara, AU - Carey,Mariko, AU - Sanson-Fisher,Rob, AU - D'Este,Catherine, AU - Shakeshaft,Anthony, Y1 - 2012/01/30/ PY - 2011/08/31/received PY - 2012/01/30/accepted PY - 2012/1/31/entrez PY - 2012/1/31/pubmed PY - 2012/6/8/medline SP - 13 EP - 13 JF - Health and quality of life outcomes JO - Health Qual Life Outcomes VL - 10 N2 - BACKGROUND: Adolescents and young adult (AYA) cancer survivors may have unique physical, psychological and social needs due to their cancer occurring at a critical phase of development. The aim of this study was to develop a psychometrically rigorous measure of unmet need to capture the specific needs of this group. METHODS: Items were developed following a comprehensive literature review, focus groups with AYAs, and feedback from health care providers, researchers and other professionals. The measure was pilot tested with 32 AYA cancer survivors recruited through a state-based cancer registry to establish face and content validity. A main sample of 139 AYA cancer patients and survivors were recruited through seven treatment centres and invited to complete the questionnaire. To establish test-retest reliability, a sub-sample of 34 participants completed the measure a second time. Exploratory factor analysis was performed and the measure was assessed for internal consistency, discriminative validity, potential responsiveness and acceptability. RESULTS: The Cancer Needs Questionnaire - Young People (CNQ-YP) has established face and content validity, and acceptability. The final measure has 70 items and six factors: Treatment Environment and Care (33 items); Feelings and Relationships (14 items); Daily Life (12 items); Information and Activities (5 items); Education (3 items); and Work (3 items). All domains achieved Cronbach's alpha values greater than 0.80. Item-to-item test-retest reliability was also high, with all but four items reaching weighted kappa values above 0.60. CONCLUSIONS: The CNQ-YP is the first multi-dimensional measure of unmet need which has been developed specifically for AYA cancer patients and survivors. The measure displays a strong factor structure, and excellent internal consistency and test-retest reliability. However, the small sample size has implications for the reliability of the statistical analyses undertaken, particularly the exploratory factor analysis. Future studies with a larger sample are recommended to confirm the factor structure of the measure. Longitudinal studies to establish responsiveness and predictive validity should also be undertaken. SN - 1477-7525 UR - https://www.unboundmedicine.com/medline/citation/22284545/Preliminary_development_and_psychometric_evaluation_of_an_unmet_needs_measure_for_adolescents_and_young_adults_with_cancer:_the_Cancer_Needs_Questionnaire___Young_People__CNQ_YP__ L2 - https://hqlo.biomedcentral.com/articles/10.1186/1477-7525-10-13 DB - PRIME DP - Unbound Medicine ER -