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End-of-life care for gay, lesbian, bisexual and transgender people.
Cult Health Sex. 2012; 14(5):537-48.CH

Abstract

There is little understanding in Australia of the special issues faced by gay, lesbian, bisexual and transgender people in end-of-life care and advance care planning. This exploratory study aimed to achieve an initial understanding of these issues to inform the development of a larger study involving gay, lesbian, bisexual and transgender service users. Consultations were carried out with 19 service providers and 6 gay, lesbian, bisexual and transgender community members in the Northern Rivers and metropolitan Sydney areas of New South Wales, Australia. Participants reported barriers to health care service access due to discrimination, inappropriate care and lack of knowledge among both consumers and health care workers of legal rights at the end of life. While advance care planning can assist with improving end-of-life care, respondents reported a number of obstacles. These included a lack of knowledge and absence of perceived need and the additional obstacle of social isolation, leading to difficulties identifying alternative decision-makers. The study highlighted the need for education for gay, lesbian, bisexual and transgender people and health and aged care providers on existing legal provisions to prevent discrimination in end-of-life care.

Authors+Show Affiliations

ASLaRC Aged Services Unit, School of Health and Human Sciences, Southern Cross University, Tweed Heads, Australia.No affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article

Language

eng

PubMed ID

22468824

Citation

Cartwright, Colleen, et al. "End-of-life Care for Gay, Lesbian, Bisexual and Transgender People." Culture, Health & Sexuality, vol. 14, no. 5, 2012, pp. 537-48.
Cartwright C, Hughes M, Lienert T. End-of-life care for gay, lesbian, bisexual and transgender people. Cult Health Sex. 2012;14(5):537-48.
Cartwright, C., Hughes, M., & Lienert, T. (2012). End-of-life care for gay, lesbian, bisexual and transgender people. Culture, Health & Sexuality, 14(5), 537-48. https://doi.org/10.1080/13691058.2012.673639
Cartwright C, Hughes M, Lienert T. End-of-life Care for Gay, Lesbian, Bisexual and Transgender People. Cult Health Sex. 2012;14(5):537-48. PubMed PMID: 22468824.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - End-of-life care for gay, lesbian, bisexual and transgender people. AU - Cartwright,Colleen, AU - Hughes,Mark, AU - Lienert,Tania, Y1 - 2012/04/02/ PY - 2012/4/4/entrez PY - 2012/4/4/pubmed PY - 2012/8/22/medline SP - 537 EP - 48 JF - Culture, health & sexuality JO - Cult Health Sex VL - 14 IS - 5 N2 - There is little understanding in Australia of the special issues faced by gay, lesbian, bisexual and transgender people in end-of-life care and advance care planning. This exploratory study aimed to achieve an initial understanding of these issues to inform the development of a larger study involving gay, lesbian, bisexual and transgender service users. Consultations were carried out with 19 service providers and 6 gay, lesbian, bisexual and transgender community members in the Northern Rivers and metropolitan Sydney areas of New South Wales, Australia. Participants reported barriers to health care service access due to discrimination, inappropriate care and lack of knowledge among both consumers and health care workers of legal rights at the end of life. While advance care planning can assist with improving end-of-life care, respondents reported a number of obstacles. These included a lack of knowledge and absence of perceived need and the additional obstacle of social isolation, leading to difficulties identifying alternative decision-makers. The study highlighted the need for education for gay, lesbian, bisexual and transgender people and health and aged care providers on existing legal provisions to prevent discrimination in end-of-life care. SN - 1464-5351 UR - https://www.unboundmedicine.com/medline/citation/22468824/End_of_life_care_for_gay_lesbian_bisexual_and_transgender_people_ DB - PRIME DP - Unbound Medicine ER -