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The Bereaved Parent Needs Assessment: a new instrument to assess the needs of parents whose children died in the pediatric intensive care unit*.
Crit Care Med. 2012 Nov; 40(11):3050-7.CC

Abstract

OBJECTIVES

To evaluate the reliability and validity of the Bereaved Parent Needs Assessment, a new instrument to measure parents' needs and need fulfillment around the time of their child's death in the pediatric intensive care unit. We hypothesized that need fulfillment would be negatively related to complicated grief and positively related to quality of life during bereavement.

DESIGN

Cross-sectional survey.

SETTING

Five U.S. children's hospital pediatric intensive care units.

SUBJECTS

Parents (n = 121) bereaved in a pediatric intensive care unit 6 months earlier.

INTERVENTIONS

Surveys included the 68-item Bereaved Parent Needs Assessment, the Inventory of Complicated Grief, and the abbreviated version of the World Health Organization Quality of Life questionnaire. Each Bereaved Parent Needs Assessment item described a potential need and was rated on two scales: 1) a 5-point rating of importance (1 = not at all important, 5 = very important) and 2) a 5-point rating of fulfillment (1 = not at all met, 5 = completely met). Three composite scales were computed: 1) total importance (percentage of all needs rated ≥4 for importance), 2) total fulfillment (percentage of all needs rated ≥4 for fulfillment), and 3) percent fulfillment (percentage of important needs that were fulfilled). Internal consistency reliability was assessed by Cronbach's α and Spearman-Brown-corrected split-half reliability. Generalized estimating equations were used to test predictions between composite scales and the Inventory of Complicated Grief and World Health Organization Quality of Life questionnaire.

MEASUREMENTS AND MAIN RESULTS

Two items had mean importance ratings <3, and 55 had mean ratings >4. Reliability of composite scores ranged from 0.92 to 0.94. Total fulfillment was negatively correlated with Inventory of Complicated Grief (r = -.29; p < .01) and positively correlated with World Health Organization Quality of Life questionnaire (r = .21; p < .05). Percent fulfillment was also significantly correlated with both outcomes. Adjusting for parent's age, education, and loss of an only child, percent fulfillment remained significantly correlated with Inventory of Complicated Grief but not with World Health Organization Quality of Life questionnaire.

CONCLUSIONS

The Bereaved Parent Needs Assessment demonstrated reliability and validity to assess the needs of parents bereaved in the pediatric intensive care unit. Meeting parents' needs around the time of their child's death may promote adjustment to loss.

Authors+Show Affiliations

Department of Pediatrics, Children's Hospital of Michigan, Detroit, MI, USA. kmeert@med.wayne.eduNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article
Research Support, N.I.H., Extramural

Language

eng

PubMed ID

22890254

Citation

Meert, Kathleen L., et al. "The Bereaved Parent Needs Assessment: a New Instrument to Assess the Needs of Parents Whose Children Died in the Pediatric Intensive Care Unit*." Critical Care Medicine, vol. 40, no. 11, 2012, pp. 3050-7.
Meert KL, Templin TN, Michelson KN, et al. The Bereaved Parent Needs Assessment: a new instrument to assess the needs of parents whose children died in the pediatric intensive care unit*. Crit Care Med. 2012;40(11):3050-7.
Meert, K. L., Templin, T. N., Michelson, K. N., Morrison, W. E., Hackbarth, R., Custer, J. R., Schim, S. M., Briller, S. H., & Thurston, C. S. (2012). The Bereaved Parent Needs Assessment: a new instrument to assess the needs of parents whose children died in the pediatric intensive care unit*. Critical Care Medicine, 40(11), 3050-7. https://doi.org/10.1097/CCM.0b013e31825fe164
Meert KL, et al. The Bereaved Parent Needs Assessment: a New Instrument to Assess the Needs of Parents Whose Children Died in the Pediatric Intensive Care Unit*. Crit Care Med. 2012;40(11):3050-7. PubMed PMID: 22890254.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - The Bereaved Parent Needs Assessment: a new instrument to assess the needs of parents whose children died in the pediatric intensive care unit*. AU - Meert,Kathleen L, AU - Templin,Thomas N, AU - Michelson,Kelly N, AU - Morrison,Wynne E, AU - Hackbarth,Richard, AU - Custer,Joseph R, AU - Schim,Stephanie M, AU - Briller,Sherylyn H, AU - Thurston,Celia S, PY - 2012/8/15/entrez PY - 2012/8/15/pubmed PY - 2013/1/9/medline SP - 3050 EP - 7 JF - Critical care medicine JO - Crit. Care Med. VL - 40 IS - 11 N2 - OBJECTIVES: To evaluate the reliability and validity of the Bereaved Parent Needs Assessment, a new instrument to measure parents' needs and need fulfillment around the time of their child's death in the pediatric intensive care unit. We hypothesized that need fulfillment would be negatively related to complicated grief and positively related to quality of life during bereavement. DESIGN: Cross-sectional survey. SETTING: Five U.S. children's hospital pediatric intensive care units. SUBJECTS: Parents (n = 121) bereaved in a pediatric intensive care unit 6 months earlier. INTERVENTIONS: Surveys included the 68-item Bereaved Parent Needs Assessment, the Inventory of Complicated Grief, and the abbreviated version of the World Health Organization Quality of Life questionnaire. Each Bereaved Parent Needs Assessment item described a potential need and was rated on two scales: 1) a 5-point rating of importance (1 = not at all important, 5 = very important) and 2) a 5-point rating of fulfillment (1 = not at all met, 5 = completely met). Three composite scales were computed: 1) total importance (percentage of all needs rated ≥4 for importance), 2) total fulfillment (percentage of all needs rated ≥4 for fulfillment), and 3) percent fulfillment (percentage of important needs that were fulfilled). Internal consistency reliability was assessed by Cronbach's α and Spearman-Brown-corrected split-half reliability. Generalized estimating equations were used to test predictions between composite scales and the Inventory of Complicated Grief and World Health Organization Quality of Life questionnaire. MEASUREMENTS AND MAIN RESULTS: Two items had mean importance ratings <3, and 55 had mean ratings >4. Reliability of composite scores ranged from 0.92 to 0.94. Total fulfillment was negatively correlated with Inventory of Complicated Grief (r = -.29; p < .01) and positively correlated with World Health Organization Quality of Life questionnaire (r = .21; p < .05). Percent fulfillment was also significantly correlated with both outcomes. Adjusting for parent's age, education, and loss of an only child, percent fulfillment remained significantly correlated with Inventory of Complicated Grief but not with World Health Organization Quality of Life questionnaire. CONCLUSIONS: The Bereaved Parent Needs Assessment demonstrated reliability and validity to assess the needs of parents bereaved in the pediatric intensive care unit. Meeting parents' needs around the time of their child's death may promote adjustment to loss. SN - 1530-0293 UR - https://www.unboundmedicine.com/medline/citation/22890254/The_Bereaved_Parent_Needs_Assessment:_a_new_instrument_to_assess_the_needs_of_parents_whose_children_died_in_the_pediatric_intensive_care_unit__ L2 - https://dx.doi.org/10.1097/CCM.0b013e31825fe164 DB - PRIME DP - Unbound Medicine ER -