Tags

Type your tag names separated by a space and hit enter

Exploring experiences and understandings of pain in adults with intellectual disabilities.
J Intellect Disabil Res 2014; 58(4):358-67JI

Abstract

BACKGROUND

People with intellectual disabilities (ID) are at risk that their health problems, many of which cause pain, go unrecognised and untreated. Their understanding and personal experiences of pain have received little research attention.

METHOD

Information was collected from 15 adults with ID using semi-structured interviews about their experiences and understanding of pain. Transcripts were analysed using content analysis.

RESULTS

Participants described pain using negative meanings and strong imagery, with various causes of pain suggested, but said little about how they coped with pain. Participants varied in whether they reported pains to carers, some choosing to hide the experience. There seemed a general belief that others can tell when someone is in pain.

CONCLUSIONS

Conversations regarding pain with adults with ID are a real challenge; health-care staff need to think carefully about the questions they ask. Possessing verbal skills cannot be taken as an indication that pain will be communicated.

Authors+Show Affiliations

Buckinghamshire Community Learning Disability Team, Southern Health NHS Foundation Trust, Aylesbury, UK.No affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article

Language

eng

PubMed ID

23356659

Citation

Findlay, L, et al. "Exploring Experiences and Understandings of Pain in Adults With Intellectual Disabilities." Journal of Intellectual Disability Research : JIDR, vol. 58, no. 4, 2014, pp. 358-67.
Findlay L, Williams AC, Scior K. Exploring experiences and understandings of pain in adults with intellectual disabilities. J Intellect Disabil Res. 2014;58(4):358-67.
Findlay, L., Williams, A. C., & Scior, K. (2014). Exploring experiences and understandings of pain in adults with intellectual disabilities. Journal of Intellectual Disability Research : JIDR, 58(4), pp. 358-67. doi:10.1111/jir.12020.
Findlay L, Williams AC, Scior K. Exploring Experiences and Understandings of Pain in Adults With Intellectual Disabilities. J Intellect Disabil Res. 2014;58(4):358-67. PubMed PMID: 23356659.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Exploring experiences and understandings of pain in adults with intellectual disabilities. AU - Findlay,L, AU - Williams,A C de C, AU - Scior,K, Y1 - 2013/01/28/ PY - 2013/01/03/accepted PY - 2013/1/30/entrez PY - 2013/1/30/pubmed PY - 2014/10/28/medline KW - experience KW - intellectual disability KW - learning disability KW - pain KW - service user SP - 358 EP - 67 JF - Journal of intellectual disability research : JIDR JO - J Intellect Disabil Res VL - 58 IS - 4 N2 - BACKGROUND: People with intellectual disabilities (ID) are at risk that their health problems, many of which cause pain, go unrecognised and untreated. Their understanding and personal experiences of pain have received little research attention. METHOD: Information was collected from 15 adults with ID using semi-structured interviews about their experiences and understanding of pain. Transcripts were analysed using content analysis. RESULTS: Participants described pain using negative meanings and strong imagery, with various causes of pain suggested, but said little about how they coped with pain. Participants varied in whether they reported pains to carers, some choosing to hide the experience. There seemed a general belief that others can tell when someone is in pain. CONCLUSIONS: Conversations regarding pain with adults with ID are a real challenge; health-care staff need to think carefully about the questions they ask. Possessing verbal skills cannot be taken as an indication that pain will be communicated. SN - 1365-2788 UR - https://www.unboundmedicine.com/medline/citation/23356659/Exploring_experiences_and_understandings_of_pain_in_adults_with_intellectual_disabilities_ L2 - https://doi.org/10.1111/jir.12020 DB - PRIME DP - Unbound Medicine ER -