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The experience of carers in supporting people with intellectual disabilities through the process of bereavement: an interpretative phenomenological analysis.
J Appl Res Intellect Disabil 2013; 26(3):186-94JA

Abstract

BACKGROUND

This study explored the personal experiences of family carers and residential care staff in supporting adults with intellectual disabilities through the process of bereavement.

METHOD

A semi-structured interview was used to interview 11 carers on their experience of supporting adults with intellectual disabilities through the process of bereavement. The transcripts were analysed using interpretative phenomenological analysis (IPA).

RESULTS

A total of five superordinate themes were identified: (i) Factors making the experience difficult for carers, (ii) Factors that helped carers, (iii) Carers' perspectives on the responses of people with intellectual disabilities, (iv) Approaches to supporting people with intellectual disabilities and (v) Carers' perspectives on support.

CONCLUSIONS

Supporting people with intellectual disabilities through bereavement is an emotionally demanding task for carers. The support needs of carers need to be acknowledged and addressed in order to ensure that adequate support is available to people with intellectual disabilities following bereavement.

Authors+Show Affiliations

Southwark Psychology Service for Adults with Learning Disabilities, South London and Maudsley NHS Trust, London, UK. emily.handley@slam.nhs.ukNo affiliation info available

Pub Type(s)

Journal Article
Multicenter Study

Language

eng

PubMed ID

23580205

Citation

Handley, Emily, and Nick Hutchinson. "The Experience of Carers in Supporting People With Intellectual Disabilities Through the Process of Bereavement: an Interpretative Phenomenological Analysis." Journal of Applied Research in Intellectual Disabilities : JARID, vol. 26, no. 3, 2013, pp. 186-94.
Handley E, Hutchinson N. The experience of carers in supporting people with intellectual disabilities through the process of bereavement: an interpretative phenomenological analysis. J Appl Res Intellect Disabil. 2013;26(3):186-94.
Handley, E., & Hutchinson, N. (2013). The experience of carers in supporting people with intellectual disabilities through the process of bereavement: an interpretative phenomenological analysis. Journal of Applied Research in Intellectual Disabilities : JARID, 26(3), pp. 186-94. doi:10.1111/jar.12025.
Handley E, Hutchinson N. The Experience of Carers in Supporting People With Intellectual Disabilities Through the Process of Bereavement: an Interpretative Phenomenological Analysis. J Appl Res Intellect Disabil. 2013;26(3):186-94. PubMed PMID: 23580205.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - The experience of carers in supporting people with intellectual disabilities through the process of bereavement: an interpretative phenomenological analysis. AU - Handley,Emily, AU - Hutchinson,Nick, PY - 2012/12/24/accepted PY - 2013/4/13/entrez PY - 2013/4/13/pubmed PY - 2013/9/26/medline SP - 186 EP - 94 JF - Journal of applied research in intellectual disabilities : JARID JO - J Appl Res Intellect Disabil VL - 26 IS - 3 N2 - BACKGROUND: This study explored the personal experiences of family carers and residential care staff in supporting adults with intellectual disabilities through the process of bereavement. METHOD: A semi-structured interview was used to interview 11 carers on their experience of supporting adults with intellectual disabilities through the process of bereavement. The transcripts were analysed using interpretative phenomenological analysis (IPA). RESULTS: A total of five superordinate themes were identified: (i) Factors making the experience difficult for carers, (ii) Factors that helped carers, (iii) Carers' perspectives on the responses of people with intellectual disabilities, (iv) Approaches to supporting people with intellectual disabilities and (v) Carers' perspectives on support. CONCLUSIONS: Supporting people with intellectual disabilities through bereavement is an emotionally demanding task for carers. The support needs of carers need to be acknowledged and addressed in order to ensure that adequate support is available to people with intellectual disabilities following bereavement. SN - 1468-3148 UR - https://www.unboundmedicine.com/medline/citation/23580205/The_experience_of_carers_in_supporting_people_with_intellectual_disabilities_through_the_process_of_bereavement:_an_interpretative_phenomenological_analysis_ L2 - https://doi.org/10.1111/jar.12025 DB - PRIME DP - Unbound Medicine ER -