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Sustaining engagement and partnership: model of enhancing cultural capital among nonaffiliated IRB members.
J Empir Res Hum Res Ethics. 2013 Jul; 8(3):34-45.JE

Abstract

Although federal regulations require the presence of at least one nonaffiliated member on the roster of an institutional review board (IRB), little research exists about how to foster their participation and satisfaction. Guided by principles of justice and diversity, the Kaiser Permanente Southern California IRB adapted the sociological concept of "cultural capital" to develop training and support with its nonaffiliated IRB members. Using in-depth qualitative interviews with four past and current nonaffiliated IRB members, we describe how our initial and ongoing activities enhanced their ability to analyze, communicate, and complete the ethical review of research. This case study is situated in the gaps of existing research about nonaffiliated IRB members by providing insights into how to sustain their engagement while protecting the rights of research volunteers, particularly from vulnerable communities.

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Authors+Show Affiliations

Hung Y
Institutional Review Board, Kaiser Permanente Southern California, Pasadena, CA 91188, USA. Yvonne.X.Hung@kp.org
Ayala A
No affiliation info available
Morales F
No affiliation info available
Frierman-Hunt G
No affiliation info available
Moreno A
No affiliation info available
Nwachuku I
No affiliation info available

MeSH

CaliforniaCommunity ParticipationCultural DiversityCultureEthical ReviewEthics Committees, ResearchEthics, ResearchHumansInterviews as TopicModels, EducationalSocial JusticeVulnerable Populations

Pub Type(s)

Journal Article

Language

eng

PubMed ID

23933774

Citation

Hung, Yvonne, et al. "Sustaining Engagement and Partnership: Model of Enhancing Cultural Capital Among Nonaffiliated IRB Members." Journal of Empirical Research On Human Research Ethics : JERHRE, vol. 8, no. 3, 2013, pp. 34-45.
Hung Y, Ayala A, Morales F, et al. Sustaining engagement and partnership: model of enhancing cultural capital among nonaffiliated IRB members. J Empir Res Hum Res Ethics. 2013;8(3):34-45.
Hung, Y., Ayala, A., Morales, F., Frierman-Hunt, G., Moreno, A., & Nwachuku, I. (2013). Sustaining engagement and partnership: model of enhancing cultural capital among nonaffiliated IRB members. Journal of Empirical Research On Human Research Ethics : JERHRE, 8(3), 34-45. https://doi.org/10.1525/jer.2013.8.3.34
Hung Y, et al. Sustaining Engagement and Partnership: Model of Enhancing Cultural Capital Among Nonaffiliated IRB Members. J Empir Res Hum Res Ethics. 2013;8(3):34-45. PubMed PMID: 23933774.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Sustaining engagement and partnership: model of enhancing cultural capital among nonaffiliated IRB members. AU - Hung,Yvonne, AU - Ayala,Armida, AU - Morales,Francisco, AU - Frierman-Hunt,Gina, AU - Moreno,Alva, AU - Nwachuku,Ijeoma, PY - 2013/8/13/entrez PY - 2013/8/13/pubmed PY - 2014/3/4/medline SP - 34 EP - 45 JF - Journal of empirical research on human research ethics : JERHRE JO - J Empir Res Hum Res Ethics VL - 8 IS - 3 N2 - Although federal regulations require the presence of at least one nonaffiliated member on the roster of an institutional review board (IRB), little research exists about how to foster their participation and satisfaction. Guided by principles of justice and diversity, the Kaiser Permanente Southern California IRB adapted the sociological concept of "cultural capital" to develop training and support with its nonaffiliated IRB members. Using in-depth qualitative interviews with four past and current nonaffiliated IRB members, we describe how our initial and ongoing activities enhanced their ability to analyze, communicate, and complete the ethical review of research. This case study is situated in the gaps of existing research about nonaffiliated IRB members by providing insights into how to sustain their engagement while protecting the rights of research volunteers, particularly from vulnerable communities. SN - 1556-2654 UR - https://www.unboundmedicine.com/medline/citation/23933774/Sustaining_engagement_and_partnership:_model_of_enhancing_cultural_capital_among_nonaffiliated_IRB_members_ L2 - https://journals.sagepub.com/doi/10.1525/jer.2013.8.3.34?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub=pubmed DB - PRIME DP - Unbound Medicine ER -