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The LIFEspan model of transitional rehabilitative care for youth with disabilities: healthcare professionals' perspectives on service delivery.
J Pediatr Rehabil Med 2014; 7(1):79-91JP

Abstract

PURPOSE

LIFEspan is a service delivery model of continuous coordinated care developed and implemented by a cross-organization partnership between a pediatric and an adult rehabilitation hospital. Previous work explored enablers and barriers to establishing the partnership service. This paper examines healthcare professionals' (HCPs') experiences of 'real world' service delivery aimed at supporting transitional rehabilitative care for youth with disabilities.

METHODS

This qualitative study - part of an ongoing mixed method longitudinal study - elicited HCPs' perspectives on their experiences of LIFEspan service delivery through in-depth interviews. Data were categorized into themes of service delivery activities, then interpreted from the lens of a service integration/coordination framework.

RESULTS

Five main service delivery themes were identified: 1) addressing youth's transition readiness and capacities; 2) shifting responsibility for healthcare management from parents to youth; 3) determining services based on organizational resources; 4) linking between pediatric and adult rehabilitation services; and, 5) linking with multi-sector services.

CONCLUSIONS

LIFEspan contributed to service delivery activities that coordinated care for youth and families and integrated inter-hospital services. However, gaps in service integration with primary care, education, social, and community services limited coordinated care to the rehabilitation sector. Recommendations are made to enhance service delivery using a systems/sector-based approach.

Authors+Show Affiliations

Dalla Lana School of Public Health, University of Toronto, Toronto, Canada Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada.Bloorview Research Institute, Toronto, Canada.Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada Bloorview Research Institute, Toronto, Canada Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada Bloorview Research Institute, Toronto, Canada Department of Rehabilitation Sciences, University of Toronto, Toronto, Canada.Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada Toronto Rehab Institute, University Health Network, Toronto, Canada.Dalla Lana School of Public Health, University of Toronto, Toronto, Canada Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada Department of Rehabilitation Sciences, University of Toronto, Toronto, Canada Toronto Rehab Institute, University Health Network, Toronto, Canada.Hospital for Sick Children, Toronto, Canada.Toronto Rehab Institute, University Health Network, Toronto, Canada Faculty of Medicine, University of Toronto, Toronto, Canada.

Pub Type(s)

Journal Article
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

24919941

Citation

Hamdani, Yani, et al. "The LIFEspan Model of Transitional Rehabilitative Care for Youth With Disabilities: Healthcare Professionals' Perspectives On Service Delivery." Journal of Pediatric Rehabilitation Medicine, vol. 7, no. 1, 2014, pp. 79-91.
Hamdani Y, Proulx M, Kingsnorth S, et al. The LIFEspan model of transitional rehabilitative care for youth with disabilities: healthcare professionals' perspectives on service delivery. J Pediatr Rehabil Med. 2014;7(1):79-91.
Hamdani, Y., Proulx, M., Kingsnorth, S., Lindsay, S., Maxwell, J., Colantonio, A., ... Bayley, M. (2014). The LIFEspan model of transitional rehabilitative care for youth with disabilities: healthcare professionals' perspectives on service delivery. Journal of Pediatric Rehabilitation Medicine, 7(1), pp. 79-91. doi:10.3233/PRM-140271.
Hamdani Y, et al. The LIFEspan Model of Transitional Rehabilitative Care for Youth With Disabilities: Healthcare Professionals' Perspectives On Service Delivery. J Pediatr Rehabil Med. 2014;7(1):79-91. PubMed PMID: 24919941.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - The LIFEspan model of transitional rehabilitative care for youth with disabilities: healthcare professionals' perspectives on service delivery. AU - Hamdani,Yani, AU - Proulx,Meghann, AU - Kingsnorth,Shauna, AU - Lindsay,Sally, AU - Maxwell,Joanne, AU - Colantonio,Angela, AU - Macarthur,Colin, AU - Bayley,Mark, PY - 2014/6/13/entrez PY - 2014/6/13/pubmed PY - 2015/1/27/medline KW - Transition KW - childhood disability KW - continuity of care KW - coordinated care KW - service delivery KW - young adults SP - 79 EP - 91 JF - Journal of pediatric rehabilitation medicine JO - J Pediatr Rehabil Med VL - 7 IS - 1 N2 - PURPOSE: LIFEspan is a service delivery model of continuous coordinated care developed and implemented by a cross-organization partnership between a pediatric and an adult rehabilitation hospital. Previous work explored enablers and barriers to establishing the partnership service. This paper examines healthcare professionals' (HCPs') experiences of 'real world' service delivery aimed at supporting transitional rehabilitative care for youth with disabilities. METHODS: This qualitative study - part of an ongoing mixed method longitudinal study - elicited HCPs' perspectives on their experiences of LIFEspan service delivery through in-depth interviews. Data were categorized into themes of service delivery activities, then interpreted from the lens of a service integration/coordination framework. RESULTS: Five main service delivery themes were identified: 1) addressing youth's transition readiness and capacities; 2) shifting responsibility for healthcare management from parents to youth; 3) determining services based on organizational resources; 4) linking between pediatric and adult rehabilitation services; and, 5) linking with multi-sector services. CONCLUSIONS: LIFEspan contributed to service delivery activities that coordinated care for youth and families and integrated inter-hospital services. However, gaps in service integration with primary care, education, social, and community services limited coordinated care to the rehabilitation sector. Recommendations are made to enhance service delivery using a systems/sector-based approach. SN - 1875-8894 UR - https://www.unboundmedicine.com/medline/citation/24919941/The_LIFEspan_model_of_transitional_rehabilitative_care_for_youth_with_disabilities:_Healthcare_professionals'_perspectives_on_service_delivery_ L2 - https://content.iospress.com/openurl?genre=article&id=doi:10.3233/PRM-140271 DB - PRIME DP - Unbound Medicine ER -