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What do bereaved parents want from professionals after the sudden death of their child: a systematic review of the literature.
BMC Pediatr. 2014 Oct 15; 14:269.BPed

Abstract

BACKGROUND

The death of a child is a devastating event for parents. In many high income countries, following an unexpected death, there are formal investigations to find the cause of death as part of wider integrated child death review processes. These processes have a clear aim of establishing the cause of death but it is less clear how bereaved families are supported. In order to inform better practice, a literature review was undertaken to identify what is known about what bereaved parents want from professionals following an unexpected child death.

METHODS

This was a mixed studies systematic review with a thematic analysis to synthesize findings. The review included papers from Europe, North America or Australasia; papers had to detail parents' experiences rather than professional practices.

RESULTS

The review includes data from 52 papers, concerning 4000 bereaved parents. After a child has died, parents wish to be able to say goodbye to them at the hospital or Emergency Department, they would like time and privacy to see and hold their child; parents may bitterly regret not being able to do so. Parents need to know the full details about their child's death and may feel that they are being deliberately evaded when not given this information. Parents often struggle to obtain and understand the autopsy results even in the cases where they consented for the procedure. Parents would like follow-up appointments from health care professionals after the death; this is to enable them to obtain further information as they may have been too distraught at the time of the death to ask appropriate questions or comprehend the answers. Parents also value the emotional support provided by continuing contact with health-care professionals.

CONCLUSION

All professionals involved with child deaths should ensure that procedures are in place to support parents; to allow them to say goodbye to their child, to be able to understand why their child died and to offer the parents follow-up appointments with appropriate health-care professionals.

Authors+Show Affiliations

Division of Mental Health and Wellbeing, Warwick Medical School, Coventry CV4 7AL, UK. Joanna.J.Garstang@warwick.ac.uk.No affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article
Review
Systematic Review

Language

eng

PubMed ID

25319926

Citation

Garstang, Joanna, et al. "What Do Bereaved Parents Want From Professionals After the Sudden Death of Their Child: a Systematic Review of the Literature." BMC Pediatrics, vol. 14, 2014, p. 269.
Garstang J, Griffiths F, Sidebotham P. What do bereaved parents want from professionals after the sudden death of their child: a systematic review of the literature. BMC Pediatr. 2014;14:269.
Garstang, J., Griffiths, F., & Sidebotham, P. (2014). What do bereaved parents want from professionals after the sudden death of their child: a systematic review of the literature. BMC Pediatrics, 14, 269. https://doi.org/10.1186/1471-2431-14-269
Garstang J, Griffiths F, Sidebotham P. What Do Bereaved Parents Want From Professionals After the Sudden Death of Their Child: a Systematic Review of the Literature. BMC Pediatr. 2014 Oct 15;14:269. PubMed PMID: 25319926.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - What do bereaved parents want from professionals after the sudden death of their child: a systematic review of the literature. AU - Garstang,Joanna, AU - Griffiths,Frances, AU - Sidebotham,Peter, Y1 - 2014/10/15/ PY - 2014/05/13/received PY - 2014/10/03/accepted PY - 2014/10/17/entrez PY - 2014/10/17/pubmed PY - 2016/3/19/medline SP - 269 EP - 269 JF - BMC pediatrics JO - BMC Pediatr VL - 14 N2 - BACKGROUND: The death of a child is a devastating event for parents. In many high income countries, following an unexpected death, there are formal investigations to find the cause of death as part of wider integrated child death review processes. These processes have a clear aim of establishing the cause of death but it is less clear how bereaved families are supported. In order to inform better practice, a literature review was undertaken to identify what is known about what bereaved parents want from professionals following an unexpected child death. METHODS: This was a mixed studies systematic review with a thematic analysis to synthesize findings. The review included papers from Europe, North America or Australasia; papers had to detail parents' experiences rather than professional practices. RESULTS: The review includes data from 52 papers, concerning 4000 bereaved parents. After a child has died, parents wish to be able to say goodbye to them at the hospital or Emergency Department, they would like time and privacy to see and hold their child; parents may bitterly regret not being able to do so. Parents need to know the full details about their child's death and may feel that they are being deliberately evaded when not given this information. Parents often struggle to obtain and understand the autopsy results even in the cases where they consented for the procedure. Parents would like follow-up appointments from health care professionals after the death; this is to enable them to obtain further information as they may have been too distraught at the time of the death to ask appropriate questions or comprehend the answers. Parents also value the emotional support provided by continuing contact with health-care professionals. CONCLUSION: All professionals involved with child deaths should ensure that procedures are in place to support parents; to allow them to say goodbye to their child, to be able to understand why their child died and to offer the parents follow-up appointments with appropriate health-care professionals. SN - 1471-2431 UR - https://www.unboundmedicine.com/medline/citation/25319926/What_do_bereaved_parents_want_from_professionals_after_the_sudden_death_of_their_child:_a_systematic_review_of_the_literature_ L2 - https://bmcpediatr.biomedcentral.com/articles/10.1186/1471-2431-14-269 DB - PRIME DP - Unbound Medicine ER -