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Knowledge, assessment, and management of adults with joint hypermobility syndrome/Ehlers-Danlos syndrome hypermobility type among Flemish physiotherapists.
Am J Med Genet C Semin Med Genet 2015; 169C(1):76-83AJ

Abstract

Physiotherapy plays a fundamental role in managing adults with the joint hypermobility syndrome/Ehlers-Danlos syndrome hypermobility type (JHS/EDS-HT). However, it is a challenge for both the patient and the physiotherapist as the condition is poorly understood and treatment for JHS/EDS-HT is currently undefined. Insight into current practice is, therefore, necessary in order to establish baseline knowledge in this area and in the long term to improve the standard of patient care. Therefore, the purpose of this study was to evaluate current physiotherapists' knowledge of JHS/EDS-HT and to gain insight into current physiotherapy practice with emphasis on assessment, management, and treatment efficacy. Three hundred twenty-five Flemish physiotherapists participated in the study by filling out electronically a modified version of the "Hypermobility and Hypermobility Syndrome Questionnaire" (HHQ), which covered theoretical constructs such as general knowledge, assessment, management, and learning in relation to generalized joint hypermobility and JHS/EDS-HT. The results show that physiotherapists report a low level of confidence with regard to assessment and management of JHS/EDS-HT. Knowledge of hypermobility and JHS/EDS-HT is weak, especially regarding the features associated with JHS/EDS-HT. Many treatment approaches are used by physiotherapists with the majority showing preference for education, reassurance, muscle strengthening, proprioceptive and core stability training. Almost all approaches were perceived as being clinically effective by the physiotherapists, highlighting a lack of consensus. In conclusion, this study in Flemish physiotherapists confirms that JHS/EDS-HT is under-recognized, not well known and deemed difficult to treat. Further education is required and sought by the physiotherapists surveyed, and future research is needed.

Authors

No affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article

Language

eng

PubMed ID

25821093

Citation

Rombaut, Lies, et al. "Knowledge, Assessment, and Management of Adults With Joint Hypermobility syndrome/Ehlers-Danlos Syndrome Hypermobility Type Among Flemish Physiotherapists." American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, vol. 169C, no. 1, 2015, pp. 76-83.
Rombaut L, Deane J, Simmonds J, et al. Knowledge, assessment, and management of adults with joint hypermobility syndrome/Ehlers-Danlos syndrome hypermobility type among Flemish physiotherapists. Am J Med Genet C Semin Med Genet. 2015;169C(1):76-83.
Rombaut, L., Deane, J., Simmonds, J., De Wandele, I., De Paepe, A., Malfait, F., & Calders, P. (2015). Knowledge, assessment, and management of adults with joint hypermobility syndrome/Ehlers-Danlos syndrome hypermobility type among Flemish physiotherapists. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, 169C(1), pp. 76-83. doi:10.1002/ajmg.c.31434.
Rombaut L, et al. Knowledge, Assessment, and Management of Adults With Joint Hypermobility syndrome/Ehlers-Danlos Syndrome Hypermobility Type Among Flemish Physiotherapists. Am J Med Genet C Semin Med Genet. 2015;169C(1):76-83. PubMed PMID: 25821093.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Knowledge, assessment, and management of adults with joint hypermobility syndrome/Ehlers-Danlos syndrome hypermobility type among Flemish physiotherapists. AU - Rombaut,Lies, AU - Deane,Janet, AU - Simmonds,Jane, AU - De Wandele,Inge, AU - De Paepe,Anne, AU - Malfait,Fransiska, AU - Calders,Patrick, PY - 2015/3/31/entrez PY - 2015/3/31/pubmed PY - 2015/12/17/medline KW - Ehlers-Danlos syndrome hypermobility type KW - assessment KW - generalized joint hypermobility KW - joint hypermobility syndrome KW - management KW - physiotherapy KW - treatment SP - 76 EP - 83 JF - American journal of medical genetics. Part C, Seminars in medical genetics JO - Am J Med Genet C Semin Med Genet VL - 169C IS - 1 N2 - Physiotherapy plays a fundamental role in managing adults with the joint hypermobility syndrome/Ehlers-Danlos syndrome hypermobility type (JHS/EDS-HT). However, it is a challenge for both the patient and the physiotherapist as the condition is poorly understood and treatment for JHS/EDS-HT is currently undefined. Insight into current practice is, therefore, necessary in order to establish baseline knowledge in this area and in the long term to improve the standard of patient care. Therefore, the purpose of this study was to evaluate current physiotherapists' knowledge of JHS/EDS-HT and to gain insight into current physiotherapy practice with emphasis on assessment, management, and treatment efficacy. Three hundred twenty-five Flemish physiotherapists participated in the study by filling out electronically a modified version of the "Hypermobility and Hypermobility Syndrome Questionnaire" (HHQ), which covered theoretical constructs such as general knowledge, assessment, management, and learning in relation to generalized joint hypermobility and JHS/EDS-HT. The results show that physiotherapists report a low level of confidence with regard to assessment and management of JHS/EDS-HT. Knowledge of hypermobility and JHS/EDS-HT is weak, especially regarding the features associated with JHS/EDS-HT. Many treatment approaches are used by physiotherapists with the majority showing preference for education, reassurance, muscle strengthening, proprioceptive and core stability training. Almost all approaches were perceived as being clinically effective by the physiotherapists, highlighting a lack of consensus. In conclusion, this study in Flemish physiotherapists confirms that JHS/EDS-HT is under-recognized, not well known and deemed difficult to treat. Further education is required and sought by the physiotherapists surveyed, and future research is needed. SN - 1552-4876 UR - https://www.unboundmedicine.com/medline/citation/25821093/Knowledge_assessment_and_management_of_adults_with_joint_hypermobility_syndrome/Ehlers_Danlos_syndrome_hypermobility_type_among_Flemish_physiotherapists_ L2 - https://doi.org/10.1002/ajmg.c.31434 DB - PRIME DP - Unbound Medicine ER -