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Enhancing stewardship of community-engaged research through governance.
Am J Public Health. 2015 Jun; 105(6):1161-7.AJ

Abstract

OBJECTIVES

We explored the relationship of community-engaged research final approval type (tribal government, health board, or public health office (TG/HB); agency staff or advisory board; or individual or no community approval) with governance processes, productivity, and perceived outcomes.

METHODS

We identified 294 federally funded community-engaged research projects in 2009 from the National Institutes of Health's Research Portfolio Online Reporting Tools, Centers for Disease Control and Prevention's Prevention Research Centers, and Native American Research Centers for Health databases. Two hundred (68.0%) investigators completed a survey about governance processes and productivity measures; 312 partners (77.2% of 404 invited) and 138 investigators (69.0% of 200 invited) completed a survey about perceived outcomes.

RESULTS

Projects with TG/HB approval had increased likelihood of community control of resources (odds ratios [ORs] ≥ 4.80). Projects with other approvals had decreased likelihood of development or revision of institutional review board policies (ORs ≤ 0.37), having written agreements (ORs ≤ 0.17), and agreements about publishing (ORs ≤ 0.28), data use (ORs ≤ 0.17), and publishing approval (ORs ≤ 0.14).

CONCLUSIONS

Community-engaged research projects with TG/HB approval had strong stewardship of project resources and agreements. Governance as stewardship protects community interests; thus, is an ethical imperative for communities, especially native communities, to adopt.

Links

PMC Free PDF

Authors+Show Affiliations

Oetzel JG
John G. Oetzel is with the Department of Management Communication, University of Waikato, New Zealand. Malia Villegas and Heather Zenone are with the Policy Research Center at the National Congress of American Indians, Washington, DC. Emily R. White Hat is with the Collaborative Research Center for American Indian Health at Sanford Research, Sioux Falls, SD. Nina Wallerstein is with the Center for Participatory Research at the University of New Mexico, Albuquerque. Bonnie Duran is with the School of Public Health, School of Social Work, and the Indigenous Wellness Research Institute at the University of Washington, Seattle.
Villegas M
No affiliation info available
Zenone H
No affiliation info available
White Hat ER
No affiliation info available
Wallerstein N
No affiliation info available
Duran B
No affiliation info available

MeSH

Centers for Disease Control and Prevention, U.S.Community-Based Participatory ResearchDatabases, FactualFinancing, GovernmentGovernment AgenciesHumansIndians, North AmericanNational Institutes of Health (U.S.)Public HealthRacial GroupsResearch DesignSurveys and QuestionnairesUnited States

Pub Type(s)

Journal Article
Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

25880952

Clinical Trial Links

MOms in REcovery (MORE) Study: Defining Optimal Care

Citation

Oetzel, John G., et al. "Enhancing Stewardship of Community-engaged Research Through Governance." American Journal of Public Health, vol. 105, no. 6, 2015, pp. 1161-7.
Oetzel JG, Villegas M, Zenone H, et al. Enhancing stewardship of community-engaged research through governance. Am J Public Health. 2015;105(6):1161-7.
Oetzel, J. G., Villegas, M., Zenone, H., White Hat, E. R., Wallerstein, N., & Duran, B. (2015). Enhancing stewardship of community-engaged research through governance. American Journal of Public Health, 105(6), 1161-7. https://doi.org/10.2105/AJPH.2014.302457
Oetzel JG, et al. Enhancing Stewardship of Community-engaged Research Through Governance. Am J Public Health. 2015;105(6):1161-7. PubMed PMID: 25880952.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Enhancing stewardship of community-engaged research through governance. AU - Oetzel,John G, AU - Villegas,Malia, AU - Zenone,Heather, AU - White Hat,Emily R, AU - Wallerstein,Nina, AU - Duran,Bonnie, Y1 - 2015/04/16/ PY - 2015/4/17/entrez PY - 2015/4/17/pubmed PY - 2015/7/28/medline SP - 1161 EP - 7 JF - American journal of public health JO - Am J Public Health VL - 105 IS - 6 N2 - OBJECTIVES: We explored the relationship of community-engaged research final approval type (tribal government, health board, or public health office (TG/HB); agency staff or advisory board; or individual or no community approval) with governance processes, productivity, and perceived outcomes. METHODS: We identified 294 federally funded community-engaged research projects in 2009 from the National Institutes of Health's Research Portfolio Online Reporting Tools, Centers for Disease Control and Prevention's Prevention Research Centers, and Native American Research Centers for Health databases. Two hundred (68.0%) investigators completed a survey about governance processes and productivity measures; 312 partners (77.2% of 404 invited) and 138 investigators (69.0% of 200 invited) completed a survey about perceived outcomes. RESULTS: Projects with TG/HB approval had increased likelihood of community control of resources (odds ratios [ORs] ≥ 4.80). Projects with other approvals had decreased likelihood of development or revision of institutional review board policies (ORs ≤ 0.37), having written agreements (ORs ≤ 0.17), and agreements about publishing (ORs ≤ 0.28), data use (ORs ≤ 0.17), and publishing approval (ORs ≤ 0.14). CONCLUSIONS: Community-engaged research projects with TG/HB approval had strong stewardship of project resources and agreements. Governance as stewardship protects community interests; thus, is an ethical imperative for communities, especially native communities, to adopt. SN - 1541-0048 UR - https://www.unboundmedicine.com/medline/citation/25880952/Enhancing_stewardship_of_community_engaged_research_through_governance_ DB - PRIME DP - Unbound Medicine ER -