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Relinquishing or taking control? Community perspectives on barriers and opportunities in advance care planning.
Aust Health Rev. 2015 Nov; 39(5):528-532.AH

Abstract

OBJECTIVE

This paper reports on the experiences and perspectives of community members in relation to advance healthcare directives and enduring power of attorney, including the factors that encourage or discourage engagement in advance care planning (ACP). METHODS; A qualitative methodology was used involving 26 in-depth telephone interviews with community members (mean age 66 years). The aims of the interview question were to gain an understanding of: (1) motivations for engaging in ACP; (2) barriers that prevent people from engaging in ACP; and (3) suggestions for promoting ACP.

RESULTS

The findings suggest that: (1) community members lack knowledge about ACP; (2) forms appear inaccessible and complex; (3) community members avoid ACP due to fear, mistrust and concerns over control; and (4) there are misperceptions regarding the relevance of ACP based on age and health.

CONCLUSIONS

There is unnecessary fear, avoidance and mistrust around ACP activities, largely resulting from misinformation. There is an undoubted need for greater education and support to be offered to individuals and their families regarding ACP, its benefits and its limitations.

Authors+Show Affiliations

Menzies Health Institute Queensland, Griffith University, Parklands Drive, Southport, Qld 4222, Australia. Email.Menzies Health Institute Queensland, Griffith University, Parklands Drive, Southport, Qld 4222, Australia. Email.School of Human Services and Social Work, Griffith University, Gold Coast Campus, Parklands Drive, Southport, Qld 4222, Australia. Email.Menzies Health Institute Queensland, Griffith University, Parklands Drive, Southport, Qld 4222, Australia. Email.

Pub Type(s)

Journal Article
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

26027685

Citation

McLennan, Vanette E J., et al. "Relinquishing or Taking Control? Community Perspectives On Barriers and Opportunities in Advance Care Planning." Australian Health Review : a Publication of the Australian Hospital Association, vol. 39, no. 5, 2015, pp. 528-532.
McLennan VEJ, Boddy JHM, Daly MG, et al. Relinquishing or taking control? Community perspectives on barriers and opportunities in advance care planning. Aust Health Rev. 2015;39(5):528-532.
McLennan, V. E. J., Boddy, J. H. M., Daly, M. G., & Chenoweth, L. M. (2015). Relinquishing or taking control? Community perspectives on barriers and opportunities in advance care planning. Australian Health Review : a Publication of the Australian Hospital Association, 39(5), 528-532. https://doi.org/10.1071/AH14152
McLennan VEJ, et al. Relinquishing or Taking Control? Community Perspectives On Barriers and Opportunities in Advance Care Planning. Aust Health Rev. 2015;39(5):528-532. PubMed PMID: 26027685.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Relinquishing or taking control? Community perspectives on barriers and opportunities in advance care planning. AU - McLennan,Vanette E J, AU - Boddy,Jennifer H M, AU - Daly,Michelle G, AU - Chenoweth,Lesley M, PY - 2014/09/09/received PY - 2015/03/26/accepted PY - 2015/6/2/entrez PY - 2015/6/2/pubmed PY - 2016/5/6/medline SP - 528 EP - 532 JF - Australian health review : a publication of the Australian Hospital Association JO - Aust Health Rev VL - 39 IS - 5 N2 - OBJECTIVE: This paper reports on the experiences and perspectives of community members in relation to advance healthcare directives and enduring power of attorney, including the factors that encourage or discourage engagement in advance care planning (ACP). METHODS; A qualitative methodology was used involving 26 in-depth telephone interviews with community members (mean age 66 years). The aims of the interview question were to gain an understanding of: (1) motivations for engaging in ACP; (2) barriers that prevent people from engaging in ACP; and (3) suggestions for promoting ACP. RESULTS: The findings suggest that: (1) community members lack knowledge about ACP; (2) forms appear inaccessible and complex; (3) community members avoid ACP due to fear, mistrust and concerns over control; and (4) there are misperceptions regarding the relevance of ACP based on age and health. CONCLUSIONS: There is unnecessary fear, avoidance and mistrust around ACP activities, largely resulting from misinformation. There is an undoubted need for greater education and support to be offered to individuals and their families regarding ACP, its benefits and its limitations. SN - 0156-5788 UR - https://www.unboundmedicine.com/medline/citation/26027685/Relinquishing_or_taking_control_Community_perspectives_on_barriers_and_opportunities_in_advance_care_planning_ L2 - http://www.publish.csiro.au/journals/abstractHTML.cfm?J=AH&F=AH14152abs.XML DB - PRIME DP - Unbound Medicine ER -