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Developing and evaluating guidelines for patient and public involvement (PPI) in research.
Int J Health Care Qual Assur. 2015; 28(2):141-55.IJ

Abstract

PURPOSE

A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines.

DESIGN/METHODOLOGY/APPROACH

PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners' experience within another project.

FINDINGS

The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation.

ORIGINALITY/VALUE

The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Service users involved as research partners in the project experienced unanticipated personal benefits.

Authors+Show Affiliations

Faculty of Health and Applied Sciences (HAS), University of the West of England, Bristol, UK.No affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

26335167

Citation

Pollard, Katherine, et al. "Developing and Evaluating Guidelines for Patient and Public Involvement (PPI) in Research." International Journal of Health Care Quality Assurance, vol. 28, no. 2, 2015, pp. 141-55.
Pollard K, Donskoy AL, Moule P, et al. Developing and evaluating guidelines for patient and public involvement (PPI) in research. Int J Health Care Qual Assur. 2015;28(2):141-55.
Pollard, K., Donskoy, A. L., Moule, P., Donald, C., Lima, M., & Rice, C. (2015). Developing and evaluating guidelines for patient and public involvement (PPI) in research. International Journal of Health Care Quality Assurance, 28(2), 141-55. https://doi.org/10.1108/IJHCQA-01-2014-0001
Pollard K, et al. Developing and Evaluating Guidelines for Patient and Public Involvement (PPI) in Research. Int J Health Care Qual Assur. 2015;28(2):141-55. PubMed PMID: 26335167.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Developing and evaluating guidelines for patient and public involvement (PPI) in research. AU - Pollard,Katherine, AU - Donskoy,Anne-Laure, AU - Moule,Pamela, AU - Donald,Christine, AU - Lima,Michelle, AU - Rice,Cathy, PY - 2015/9/4/entrez PY - 2015/9/4/pubmed PY - 2015/10/8/medline KW - Evaluation KW - Guidelines KW - PPI in research SP - 141 EP - 55 JF - International journal of health care quality assurance JO - Int J Health Care Qual Assur VL - 28 IS - 2 N2 - PURPOSE: A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines. DESIGN/METHODOLOGY/APPROACH: PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners' experience within another project. FINDINGS: The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation. ORIGINALITY/VALUE: The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Service users involved as research partners in the project experienced unanticipated personal benefits. SN - 0952-6862 UR - https://www.unboundmedicine.com/medline/citation/26335167/Developing_and_evaluating_guidelines_for_patient_and_public_involvement__PPI__in_research_ L2 - https://www.ingentaconnect.com/openurl?genre=article&issn=0952-6862&volume=28&issue=2&spage=141&aulast=Pollard DB - PRIME DP - Unbound Medicine ER -