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Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities.
J Appl Res Intellect Disabil 2017; 30(1):84-96JA

Abstract

BACKGROUND

Improved life expectancy means that more adults with intellectual disabilities are now living with ageing parents. This study explored older families' perceptions of the future.

METHODS

Semi-structured interviews were conducted with nine older parents and three adults with intellectual disabilities and analysed to produce an explanatory thematic framework.

RESULTS

'Tolerating uncertainty' was the major theme in participants' attempts to manage anxieties about the future, encompassing sub-themes of 'accepting the parenting role', 'facing challenges', 'being supported/isolated', 'positive meaning making', 're-evaluating as time moves on' and 'managing future thinking'. Some participants expressed preferences for their future which were in contrast to their parents' views, and provide a unique perspective that has often been neglected in prior research.

CONCLUSIONS

This research has found commonalities in how families tolerate the uncertainty of the future, but also unique differences that require tailored interventions and prospective action by services.

Authors+Show Affiliations

University of Staffordshire and Keele Doctorate in Clinical Psychology Programme, Staffordshire University, Stoke-on-Trent, UK.Advancing Change Team (ACT), NHS Improving Quality, Coventry, UK. Doctoral Programme in Clinical Psychology, Staffordshire University, Stoke-on-Trent, UK.Developmental Neurosciences & Learning Disabilities, South Staffordshire and Shropshire Healthcare NHS Foundation Trust, Shrewsbury Hospital, Shrewsbury, UK.School of Psychology, Keele University, Keele, UK. Staffordshire and Keele Doctorate in Clinical Psychology, Science Centre, Stoke-on-Trent, UK.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

26487335

Citation

Pryce, Laura, et al. "Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children With Intellectual Disabilities." Journal of Applied Research in Intellectual Disabilities : JARID, vol. 30, no. 1, 2017, pp. 84-96.
Pryce L, Tweed A, Hilton A, et al. Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities. J Appl Res Intellect Disabil. 2017;30(1):84-96.
Pryce, L., Tweed, A., Hilton, A., & Priest, H. M. (2017). Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities : JARID, 30(1), pp. 84-96. doi:10.1111/jar.12221.
Pryce L, et al. Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children With Intellectual Disabilities. J Appl Res Intellect Disabil. 2017;30(1):84-96. PubMed PMID: 26487335.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities. AU - Pryce,Laura, AU - Tweed,Alison, AU - Hilton,Amanda, AU - Priest,Helena M, Y1 - 2015/10/20/ PY - 2015/09/24/accepted PY - 2015/10/22/pubmed PY - 2017/4/13/medline PY - 2015/10/22/entrez KW - ageing KW - families KW - future KW - intellectual disabilities KW - parent carers KW - systemic SP - 84 EP - 96 JF - Journal of applied research in intellectual disabilities : JARID JO - J Appl Res Intellect Disabil VL - 30 IS - 1 N2 - BACKGROUND: Improved life expectancy means that more adults with intellectual disabilities are now living with ageing parents. This study explored older families' perceptions of the future. METHODS: Semi-structured interviews were conducted with nine older parents and three adults with intellectual disabilities and analysed to produce an explanatory thematic framework. RESULTS: 'Tolerating uncertainty' was the major theme in participants' attempts to manage anxieties about the future, encompassing sub-themes of 'accepting the parenting role', 'facing challenges', 'being supported/isolated', 'positive meaning making', 're-evaluating as time moves on' and 'managing future thinking'. Some participants expressed preferences for their future which were in contrast to their parents' views, and provide a unique perspective that has often been neglected in prior research. CONCLUSIONS: This research has found commonalities in how families tolerate the uncertainty of the future, but also unique differences that require tailored interventions and prospective action by services. SN - 1468-3148 UR - https://www.unboundmedicine.com/medline/citation/26487335/Tolerating_Uncertainty:_Perceptions_of_the_Future_for_Ageing_Parent_Carers_and_Their_Adult_Children_with_Intellectual_Disabilities_ L2 - https://doi.org/10.1111/jar.12221 DB - PRIME DP - Unbound Medicine ER -