Tags

Type your tag names separated by a space and hit enter

Shoulder function, pain and health related quality of life in adults with joint hypermobility syndrome/Ehlers-Danlos syndrome-hypermobility type.
Disabil Rehabil 2016; 38(14):1382-90DR

Abstract

Purpose To investigate shoulder function, pain and Health-Related Quality of life (HRQoL) among adults with joint hypermobility syndrome/Ehlers-Danlos syndrome-hypermobility type (JHS/EDS-HT), compared with the general population (controls). Method In a cross-sectional study using postal survey, 110 patients diagnosed with JHS/EDS-HT and 140 gender- and age-matched healthy controls from Statistics Norway participated. Shoulder function, pain and HRQol were registered by Western Ontario Shoulder Instability Index (WOSI), Numerical Rating Scale (NRS), pain drawings, 36-item Short Form (SF-36). Results Eighty-one individuals responded, with response rate 34% (JHS/EDS-HT: 53%, controls: 21%). JHS/EDS-HT had lower shoulder function (WOSI total: 49.9 versus 83.3; p < 0.001), lower HRQol on SF-36 Physical Component Scale (PCS: 28.1 versus 49.9; p < 0.001), and higher pain intensity (NRS: 6.4 versus 2.7; p < 0.001) than controls. Neck and shoulder joints were rated as primary painful areas in both groups, with significantly higher frequency in JHS/EDS-HT (neck: 90% versus 27%; shoulder: 80% versus 37%). Further, JHS/EDS-HT most often reported generalized pain (96%). Conclusions Adults with JHS/EDS-HT have impaired shoulder function, increased pain intensity, as well as reduced physical HRQoL compared with controls. Although neck and shoulder were most frequently rated as painful, significantly more JHS/EDS-HT also reported generalized pain compared to controls. Implications for Rehabilitation Adults with JHS/EDS-HT have impaired shoulder function, and most often painful areas in the neck and shoulder joints, which need to be targeted in the treatment strategy. Compared with the general population adults with JHS/EDS-HT have reduced physical HRQoL, supporting a physical approach for this group. Adults with JHS/EDS-HT may present with both specific painful joints and generalized pain.

Authors+Show Affiliations

a Institute of Occupational Therapy, Physiotherapy and Radiography, Bergen University College , Bergen , Norway.a Institute of Occupational Therapy, Physiotherapy and Radiography, Bergen University College , Bergen , Norway.b Uni Research Health , Bergen , Norway.a Institute of Occupational Therapy, Physiotherapy and Radiography, Bergen University College , Bergen , Norway. c Department of Physical Medicine and Rehabilitation , Haukeland University Hospital , Bergen , Norway.a Institute of Occupational Therapy, Physiotherapy and Radiography, Bergen University College , Bergen , Norway. d Institute of Sports Science and Clinical Biomechanics, University of Southern Denmark , Odense , Denmark.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

26824670

Citation

Johannessen, Elise Christine, et al. "Shoulder Function, Pain and Health Related Quality of Life in Adults With Joint Hypermobility syndrome/Ehlers-Danlos Syndrome-hypermobility Type." Disability and Rehabilitation, vol. 38, no. 14, 2016, pp. 1382-90.
Johannessen EC, Reiten HS, Løvaas H, et al. Shoulder function, pain and health related quality of life in adults with joint hypermobility syndrome/Ehlers-Danlos syndrome-hypermobility type. Disabil Rehabil. 2016;38(14):1382-90.
Johannessen, E. C., Reiten, H. S., Løvaas, H., Maeland, S., & Juul-Kristensen, B. (2016). Shoulder function, pain and health related quality of life in adults with joint hypermobility syndrome/Ehlers-Danlos syndrome-hypermobility type. Disability and Rehabilitation, 38(14), pp. 1382-90. doi:10.3109/09638288.2015.1102336.
Johannessen EC, et al. Shoulder Function, Pain and Health Related Quality of Life in Adults With Joint Hypermobility syndrome/Ehlers-Danlos Syndrome-hypermobility Type. Disabil Rehabil. 2016;38(14):1382-90. PubMed PMID: 26824670.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Shoulder function, pain and health related quality of life in adults with joint hypermobility syndrome/Ehlers-Danlos syndrome-hypermobility type. AU - Johannessen,Elise Christine, AU - Reiten,Helle Sundnes, AU - Løvaas,Helene, AU - Maeland,Silje, AU - Juul-Kristensen,Birgit, Y1 - 2016/01/29/ PY - 2016/1/30/entrez PY - 2016/1/30/pubmed PY - 2017/9/22/medline KW - Joint hypermobility syndrome KW - pain KW - physical quality of life KW - shoulder function SP - 1382 EP - 90 JF - Disability and rehabilitation JO - Disabil Rehabil VL - 38 IS - 14 N2 - Purpose To investigate shoulder function, pain and Health-Related Quality of life (HRQoL) among adults with joint hypermobility syndrome/Ehlers-Danlos syndrome-hypermobility type (JHS/EDS-HT), compared with the general population (controls). Method In a cross-sectional study using postal survey, 110 patients diagnosed with JHS/EDS-HT and 140 gender- and age-matched healthy controls from Statistics Norway participated. Shoulder function, pain and HRQol were registered by Western Ontario Shoulder Instability Index (WOSI), Numerical Rating Scale (NRS), pain drawings, 36-item Short Form (SF-36). Results Eighty-one individuals responded, with response rate 34% (JHS/EDS-HT: 53%, controls: 21%). JHS/EDS-HT had lower shoulder function (WOSI total: 49.9 versus 83.3; p < 0.001), lower HRQol on SF-36 Physical Component Scale (PCS: 28.1 versus 49.9; p < 0.001), and higher pain intensity (NRS: 6.4 versus 2.7; p < 0.001) than controls. Neck and shoulder joints were rated as primary painful areas in both groups, with significantly higher frequency in JHS/EDS-HT (neck: 90% versus 27%; shoulder: 80% versus 37%). Further, JHS/EDS-HT most often reported generalized pain (96%). Conclusions Adults with JHS/EDS-HT have impaired shoulder function, increased pain intensity, as well as reduced physical HRQoL compared with controls. Although neck and shoulder were most frequently rated as painful, significantly more JHS/EDS-HT also reported generalized pain compared to controls. Implications for Rehabilitation Adults with JHS/EDS-HT have impaired shoulder function, and most often painful areas in the neck and shoulder joints, which need to be targeted in the treatment strategy. Compared with the general population adults with JHS/EDS-HT have reduced physical HRQoL, supporting a physical approach for this group. Adults with JHS/EDS-HT may present with both specific painful joints and generalized pain. SN - 1464-5165 UR - https://www.unboundmedicine.com/medline/citation/26824670/Shoulder_function_pain_and_health_related_quality_of_life_in_adults_with_joint_hypermobility_syndrome/Ehlers_Danlos_syndrome_hypermobility_type_ L2 - http://www.tandfonline.com/doi/abs/10.3109/09638288.2015.1102336 DB - PRIME DP - Unbound Medicine ER -