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Interventions to build resilience in family caregivers of people living with dementia: a comprehensive systematic review.
JBI Database System Rev Implement Rep. 2016 06; 14(6):238-73.JD

Abstract

BACKGROUND

Recent studies have indicated that family caregivers of people with dementia have higher rates of depression, anxiety and hopelessness, as well as higher levels of burden, stress and distress. Not all caregivers, however, succumb to the negative effects of caring. Caregivers who are able to recover from, resist or adapt to the physical and psychological demands of caring can be considered "resilient".

OBJECTIVES

The objective of this review was to examine the existing evidence regarding interventions for building resilience in family caregivers of people living with dementia.

INCLUSION CRITERIA TYPES OF PARTICIPANTS

This review considered studies that included family caregivers of people with dementia.

TYPES OF INTERVENTION(S)/PHENOMENA OF INTEREST

Studies investigating interventions to build resilience in family caregivers were considered by the review. For qualitative studies, the phenomena of interest were family caregivers' experiences of the interventions including factors affecting implementation and their subjective experience of outcomes.

CONTEXT

Studies conducted in any cultural or geographical context and any settings including participants' homes in the community, residential aged care or hospital, medical or allied health practice were considered for inclusion.

TYPES OF STUDIES

Quantitative studies incorporating experimental and descriptive study designs and qualitative studies, including, but not limited to, phenomenology, grounded theory, ethnography, action research and feminist research were considered for inclusion.

OUTCOMES

Quantitative studies were included that contained either objective or subjective outcome measures (or a combination of both). In cases in which proxy measures of resilience were used, only those papers that explicitly related the aims of the intervention and the measurement of outcomes to resilience itself were considered for inclusion. Proxies could include, but were not limited to, self-efficacy, locus of control, perceived burden, psychological wellbeing, strength, coping, positive adjustment and resourcefulness. Qualitative studies were similarly considered for inclusion if they explicitly related the aims of the intervention to resilience.

SEARCH STRATEGY

Eleven electronic databases were searched for research studies published in English in or after 1990.

METHODOLOGICAL QUALITY

Quantitative and qualitative studies selected for retrieval were assessed by two independent reviewers for methodological validity using standardized critical appraisal instruments from the Joanna Briggs Institute Meta-Analysis of Statistics Assessment and Review Instrument (JBI-MAStARI) and Joanna Briggs Institute Qualitative Assessment and Review Instrument (JBI-QARI).

DATA EXTRACTION

Quantitative and qualitative data were extracted from publications included in the review using the standardized data extraction tools from JBI-MAStARI and JBI-QARI.

DATA SYNTHESIS

It was not possible to pool quantitative findings for statistical meta-analysis using JBI-MAStARI. Qualitative research findings were too limited to be pooled using the JBI-QARI. The findings are presented in narrative form.

RESULTS

The review included three publications reporting one quantitative intervention study and one mixed-method intervention study. There was a lack of available studies and, of the two intervention studies that were identified, neither found any statistically significant change in quantitative measures of resilience. Qualitative data suggested positive impacts of a poetry writing intervention and a positive experience of the intervention.

CONCLUSION IMPLICATIONS FOR PRACTICE

The studies differed in both the nature of the intervention and the way resilience was conceptualized and operationalized. Consequently, it was not possible to offer any recommendations for practice.

IMPLICATIONS FOR RESEARCH

Implications for research relate to the development of a more comprehensive theory of resilience in family caregivers that can be used to develop and rigorously evaluate reliable and valid measures of resilience in line with that theory. Further, well-designed, sufficiently powered intervention studies informed by theory are needed.

Authors+Show Affiliations

1The University of Queensland, School of Nursing, Midwifery and Social Work and the Australian Centre for Evidence Based Community Care: a Collaborating Centre of the Joanna Briggs Institute, The University of Queensland, Brisbane, Queensland 2The Centre for Applied Nursing Research, Ingham Medical Research Institute, Sydney, New South Wales 3Menzies Health Institute Queensland, Griffith University, Brisbane, Queensland, Australia.No affiliation info availableNo affiliation info availableNo affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article
Review
Systematic Review

Language

eng

PubMed ID

27532659

Citation

Petriwskyj, Andrea, et al. "Interventions to Build Resilience in Family Caregivers of People Living With Dementia: a Comprehensive Systematic Review." JBI Database of Systematic Reviews and Implementation Reports, vol. 14, no. 6, 2016, pp. 238-73.
Petriwskyj A, Parker D, O'Dwyer S, et al. Interventions to build resilience in family caregivers of people living with dementia: a comprehensive systematic review. JBI Database System Rev Implement Rep. 2016;14(6):238-73.
Petriwskyj, A., Parker, D., O'Dwyer, S., Moyle, W., & Nucifora, N. (2016). Interventions to build resilience in family caregivers of people living with dementia: a comprehensive systematic review. JBI Database of Systematic Reviews and Implementation Reports, 14(6), 238-73. https://doi.org/10.11124/JBISRIR-2016-002555
Petriwskyj A, et al. Interventions to Build Resilience in Family Caregivers of People Living With Dementia: a Comprehensive Systematic Review. JBI Database System Rev Implement Rep. 2016;14(6):238-73. PubMed PMID: 27532659.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Interventions to build resilience in family caregivers of people living with dementia: a comprehensive systematic review. AU - Petriwskyj,Andrea, AU - Parker,Deborah, AU - O'Dwyer,Siobhan, AU - Moyle,Wendy, AU - Nucifora,Nikki, PY - 2016/8/18/entrez PY - 2016/8/18/pubmed PY - 2018/4/17/medline SP - 238 EP - 73 JF - JBI database of systematic reviews and implementation reports JO - JBI Database System Rev Implement Rep VL - 14 IS - 6 N2 - BACKGROUND: Recent studies have indicated that family caregivers of people with dementia have higher rates of depression, anxiety and hopelessness, as well as higher levels of burden, stress and distress. Not all caregivers, however, succumb to the negative effects of caring. Caregivers who are able to recover from, resist or adapt to the physical and psychological demands of caring can be considered "resilient". OBJECTIVES: The objective of this review was to examine the existing evidence regarding interventions for building resilience in family caregivers of people living with dementia. INCLUSION CRITERIA TYPES OF PARTICIPANTS: This review considered studies that included family caregivers of people with dementia. TYPES OF INTERVENTION(S)/PHENOMENA OF INTEREST: Studies investigating interventions to build resilience in family caregivers were considered by the review. For qualitative studies, the phenomena of interest were family caregivers' experiences of the interventions including factors affecting implementation and their subjective experience of outcomes. CONTEXT: Studies conducted in any cultural or geographical context and any settings including participants' homes in the community, residential aged care or hospital, medical or allied health practice were considered for inclusion. TYPES OF STUDIES: Quantitative studies incorporating experimental and descriptive study designs and qualitative studies, including, but not limited to, phenomenology, grounded theory, ethnography, action research and feminist research were considered for inclusion. OUTCOMES: Quantitative studies were included that contained either objective or subjective outcome measures (or a combination of both). In cases in which proxy measures of resilience were used, only those papers that explicitly related the aims of the intervention and the measurement of outcomes to resilience itself were considered for inclusion. Proxies could include, but were not limited to, self-efficacy, locus of control, perceived burden, psychological wellbeing, strength, coping, positive adjustment and resourcefulness. Qualitative studies were similarly considered for inclusion if they explicitly related the aims of the intervention to resilience. SEARCH STRATEGY: Eleven electronic databases were searched for research studies published in English in or after 1990. METHODOLOGICAL QUALITY: Quantitative and qualitative studies selected for retrieval were assessed by two independent reviewers for methodological validity using standardized critical appraisal instruments from the Joanna Briggs Institute Meta-Analysis of Statistics Assessment and Review Instrument (JBI-MAStARI) and Joanna Briggs Institute Qualitative Assessment and Review Instrument (JBI-QARI). DATA EXTRACTION: Quantitative and qualitative data were extracted from publications included in the review using the standardized data extraction tools from JBI-MAStARI and JBI-QARI. DATA SYNTHESIS: It was not possible to pool quantitative findings for statistical meta-analysis using JBI-MAStARI. Qualitative research findings were too limited to be pooled using the JBI-QARI. The findings are presented in narrative form. RESULTS: The review included three publications reporting one quantitative intervention study and one mixed-method intervention study. There was a lack of available studies and, of the two intervention studies that were identified, neither found any statistically significant change in quantitative measures of resilience. Qualitative data suggested positive impacts of a poetry writing intervention and a positive experience of the intervention. CONCLUSION IMPLICATIONS FOR PRACTICE: The studies differed in both the nature of the intervention and the way resilience was conceptualized and operationalized. Consequently, it was not possible to offer any recommendations for practice. IMPLICATIONS FOR RESEARCH: Implications for research relate to the development of a more comprehensive theory of resilience in family caregivers that can be used to develop and rigorously evaluate reliable and valid measures of resilience in line with that theory. Further, well-designed, sufficiently powered intervention studies informed by theory are needed. SN - 2202-4433 UR - https://www.unboundmedicine.com/medline/citation/27532659/Interventions_to_build_resilience_in_family_caregivers_of_people_living_with_dementia:_a_comprehensive_systematic_review_ L2 - https://doi.org/10.11124/JBISRIR-2016-002555 DB - PRIME DP - Unbound Medicine ER -