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Recruiting bereaved parents for research after infant death in the neonatal intensive care unit.
Appl Nurs Res. 2016 11; 32:281-285.AN

Abstract

Understanding parental experiences following infant death in the neonatal intensive care unit (NICU) is a high research priority and a necessary first step to improving health services. However, recruiting bereaved parents to discuss their experiences on such an extremely sensitive topic can be challenging and research procedures must be planned carefully in order to get an adequate sample. There is little published in the literature detailing specific strategies for recruiting bereaved parents for grief research, especially strategies for contacting parents and identifying factors that might affect participation. The purpose of this paper is to describe the process of recruiting bereaved parents into a qualitative research study exploring parental NICU experiences and grief responses following infant death. We describe a successful recruitment plan that led to the enrollment of difficult to recruit participants such as fathers, and individuals representing minorities and those from lower socioeconomic (SES) groups. Bereaved parents of infants after an NICU hospitalization should continue to be recruited for research studies for their unique perspectives and valuable insights about the devastating experience of infant death. Participants in this study reported more benefits than harm and the results addressed a critical gap in the literature.

Authors+Show Affiliations

University of Alabama at Birmingham School of Nursing, Birmingham, AL 35294, USA. Electronic address: ecurrie@uab.edu.University of Alabama at Birmingham School of Nursing, Birmingham, AL 35294, USA. Electronic address: croche@uab.edu.University of Louisville School of Nursing, Louisville, KY 40292, USA. Electronic address: becky.christian@louisville.edu.University of Alabama at Birmingham School of Nursing, Birmingham, AL 35294, USA; University of Alabama at Birmingham, Center for Palliative and Supportive Care, Birmingham, AL 35233, USA. Electronic address: mbakitas@uab.edu.University of Alabama at Birmingham School of Nursing, Birmingham, AL 35294, USA. Electronic address: menesesk@uab.edu.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

27969043

Citation

Currie, Erin R., et al. "Recruiting Bereaved Parents for Research After Infant Death in the Neonatal Intensive Care Unit." Applied Nursing Research : ANR, vol. 32, 2016, pp. 281-285.
Currie ER, Roche C, Christian BJ, et al. Recruiting bereaved parents for research after infant death in the neonatal intensive care unit. Appl Nurs Res. 2016;32:281-285.
Currie, E. R., Roche, C., Christian, B. J., Bakitas, M., & Meneses, K. (2016). Recruiting bereaved parents for research after infant death in the neonatal intensive care unit. Applied Nursing Research : ANR, 32, 281-285. https://doi.org/10.1016/j.apnr.2016.08.012
Currie ER, et al. Recruiting Bereaved Parents for Research After Infant Death in the Neonatal Intensive Care Unit. Appl Nurs Res. 2016;32:281-285. PubMed PMID: 27969043.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Recruiting bereaved parents for research after infant death in the neonatal intensive care unit. AU - Currie,Erin R, AU - Roche,Cathy, AU - Christian,Becky J, AU - Bakitas,Marie, AU - Meneses,Karen, Y1 - 2016/08/31/ PY - 2016/07/05/received PY - 2016/08/22/revised PY - 2016/08/26/accepted PY - 2016/12/15/entrez PY - 2016/12/15/pubmed PY - 2018/1/18/medline KW - Bereaved parents KW - Infant death KW - Neonatal intensive care unit KW - Qualitative research KW - Recruitment KW - Sensitive topic SP - 281 EP - 285 JF - Applied nursing research : ANR JO - Appl Nurs Res VL - 32 N2 - Understanding parental experiences following infant death in the neonatal intensive care unit (NICU) is a high research priority and a necessary first step to improving health services. However, recruiting bereaved parents to discuss their experiences on such an extremely sensitive topic can be challenging and research procedures must be planned carefully in order to get an adequate sample. There is little published in the literature detailing specific strategies for recruiting bereaved parents for grief research, especially strategies for contacting parents and identifying factors that might affect participation. The purpose of this paper is to describe the process of recruiting bereaved parents into a qualitative research study exploring parental NICU experiences and grief responses following infant death. We describe a successful recruitment plan that led to the enrollment of difficult to recruit participants such as fathers, and individuals representing minorities and those from lower socioeconomic (SES) groups. Bereaved parents of infants after an NICU hospitalization should continue to be recruited for research studies for their unique perspectives and valuable insights about the devastating experience of infant death. Participants in this study reported more benefits than harm and the results addressed a critical gap in the literature. SN - 1532-8201 UR - https://www.unboundmedicine.com/medline/citation/27969043/Recruiting_bereaved_parents_for_research_after_infant_death_in_the_neonatal_intensive_care_unit_ L2 - https://linkinghub.elsevier.com/retrieve/pii/S0897-1897(16)30165-3 DB - PRIME DP - Unbound Medicine ER -