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Living with dementia in a nursing home, as described by persons with dementia: a phenomenological hermeneutic study.
BMC Health Serv Res. 2017 01 31; 17(1):93.BH

Abstract

BACKGROUND

Persons with dementia have described life in nursing home as difficult and lonely. Persons with dementia often reside in nursing homes for several years; therefore, knowledge is needed about how quality of life is affected in the nursing-home setting in order to be able to provide the best possible care. The aim of this study was to investigate the personal experience of living in a nursing home over time from the perspective of the person with dementia and to learn what makes life better or worse in the nursing home.

METHODS

A phenomenological hermeneutic research design was applied. Unstructured, face-to-face interviews and field observations were conducted twice, three months apart.

RESULTS

Twelve persons residing in three different nursing homes were included. The analysis revealed four themes: "Being in the nursing home is okay, but you must take things as they are"; "Everything is gone"; "Things that make it better and things that make it worse"; and "Persons - for better or worse? Staff, family, and co-residents".

CONCLUSIONS

Persons with dementia are able to communicate their feelings and thoughts about their lives in the nursing home and can name several factors that have impacts on their quality of life. They differentiate between members of the staff, and they prefer their primary nurse. They are content with life in general, but everyday life is boring, and their sense of contentment is based on acceptance of certain facts of reality and their ability to adjust their expectations.

Authors+Show Affiliations

Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Aldring og Helse, Postboks 2136, 3103, Tønsberg, Norway. marit.mjorud@aldringoghelse.no. Department of Geriatric Medicine, Oslo University Hospital, Aldring og Helse, Postboks 2136, 3103, Tønsberg, Norway. marit.mjorud@aldringoghelse.no.Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Aldring og Helse, Postboks 2136, 3103, Tønsberg, Norway. Department of Geriatric Medicine, Oslo University Hospital, Aldring og Helse, Postboks 2136, 3103, Tønsberg, Norway.Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Aldring og Helse, Postboks 2136, 3103, Tønsberg, Norway. Department of Geriatric Medicine, Oslo University Hospital, Aldring og Helse, Postboks 2136, 3103, Tønsberg, Norway.Department of Nursing Science, Institute of Health and Society, University of Oslo, Oslo, Norway.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

28143535

Citation

Mjørud, Marit, et al. "Living With Dementia in a Nursing Home, as Described By Persons With Dementia: a Phenomenological Hermeneutic Study." BMC Health Services Research, vol. 17, no. 1, 2017, p. 93.
Mjørud M, Engedal K, Røsvik J, et al. Living with dementia in a nursing home, as described by persons with dementia: a phenomenological hermeneutic study. BMC Health Serv Res. 2017;17(1):93.
Mjørud, M., Engedal, K., Røsvik, J., & Kirkevold, M. (2017). Living with dementia in a nursing home, as described by persons with dementia: a phenomenological hermeneutic study. BMC Health Services Research, 17(1), 93. https://doi.org/10.1186/s12913-017-2053-2
Mjørud M, et al. Living With Dementia in a Nursing Home, as Described By Persons With Dementia: a Phenomenological Hermeneutic Study. BMC Health Serv Res. 2017 01 31;17(1):93. PubMed PMID: 28143535.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Living with dementia in a nursing home, as described by persons with dementia: a phenomenological hermeneutic study. AU - Mjørud,Marit, AU - Engedal,Knut, AU - Røsvik,Janne, AU - Kirkevold,Marit, Y1 - 2017/01/31/ PY - 2016/03/29/received PY - 2017/01/24/accepted PY - 2017/2/2/entrez PY - 2017/2/2/pubmed PY - 2017/8/31/medline KW - Dementia KW - Interviews KW - Nursing home KW - Phenomenological KW - Quality of life SP - 93 EP - 93 JF - BMC health services research JO - BMC Health Serv Res VL - 17 IS - 1 N2 - BACKGROUND: Persons with dementia have described life in nursing home as difficult and lonely. Persons with dementia often reside in nursing homes for several years; therefore, knowledge is needed about how quality of life is affected in the nursing-home setting in order to be able to provide the best possible care. The aim of this study was to investigate the personal experience of living in a nursing home over time from the perspective of the person with dementia and to learn what makes life better or worse in the nursing home. METHODS: A phenomenological hermeneutic research design was applied. Unstructured, face-to-face interviews and field observations were conducted twice, three months apart. RESULTS: Twelve persons residing in three different nursing homes were included. The analysis revealed four themes: "Being in the nursing home is okay, but you must take things as they are"; "Everything is gone"; "Things that make it better and things that make it worse"; and "Persons - for better or worse? Staff, family, and co-residents". CONCLUSIONS: Persons with dementia are able to communicate their feelings and thoughts about their lives in the nursing home and can name several factors that have impacts on their quality of life. They differentiate between members of the staff, and they prefer their primary nurse. They are content with life in general, but everyday life is boring, and their sense of contentment is based on acceptance of certain facts of reality and their ability to adjust their expectations. SN - 1472-6963 UR - https://www.unboundmedicine.com/medline/citation/28143535/Living_with_dementia_in_a_nursing_home_as_described_by_persons_with_dementia:_a_phenomenological_hermeneutic_study_ L2 - https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-017-2053-2 DB - PRIME DP - Unbound Medicine ER -