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Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers.
Qual Life Res 2017; 26(6):1587-1595QL

Abstract

PURPOSE

Informal caregivers of individuals with cancer may experience substantial burdens. To develop interventions to support these caregivers, it is crucial to quantify and understand the domains of burdens potentially experienced by caregivers and factors contributing to each domain.

METHODS

Using data from two national surveys, the National Survey of Caregiving (NSOC) linked to the National Health and Aging Trends Survey (NHATS), we identified all participants in the NHATS diagnosed with cancer who had a caregiver participating in the NSOC. Guided by a theoretical model, twenty-two items in the NSOC related to caregiver health, mood and outlook were included in factor analysis to develop scales capturing domains of burden. Multivariable regression analyses examined whether activities performed by caregivers and supports for caregivers were associated with these burden scales.

RESULTS

Analysis of responses from 373 caregivers of cancer patients identified three scales: emotional burden; psychological burden; and relationship with the patient. Providing assistance managing medical care was associated with increased emotional and psychological burden, while assistance with non-medical issues increased psychological burden and worsened relationships with patients. Caregiver provision of direct patient care activities was also associated with increased burden but improved relationships with patients. Use of caregiver supports showed mixed associations with burden.

CONCLUSIONS

Using a nationally-representative sample of cancer patients and their caregivers and brief publicly-available survey questions, we present three scales addressing different aspects of caregiver burden that are responsive to caregiver activities and social supports. This may assist in developing and evaluating intervention to decrease caregiver burden.

Authors+Show Affiliations

Health Services Administration and Policy, Temple University College of Public Health, 1301 Cecil B. Moore Ave., #533, Philadelphia, PA, 19122, USA. michael.halpern@temple.edu.Epidemiology and Biostatistics Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, 85724, USA.Epidemiology and Biostatistics Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, 85724, USA.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

28210993

Citation

Halpern, Michael T., et al. "Impact of Caregiver Activities and Social Supports On Multidimensional Caregiver Burden: Analyses From Nationally-representative Surveys of Cancer Patients and Their Caregivers." Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, vol. 26, no. 6, 2017, pp. 1587-1595.
Halpern MT, Fiero MH, Bell ML. Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers. Qual Life Res. 2017;26(6):1587-1595.
Halpern, M. T., Fiero, M. H., & Bell, M. L. (2017). Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers. Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 26(6), pp. 1587-1595. doi:10.1007/s11136-017-1505-9.
Halpern MT, Fiero MH, Bell ML. Impact of Caregiver Activities and Social Supports On Multidimensional Caregiver Burden: Analyses From Nationally-representative Surveys of Cancer Patients and Their Caregivers. Qual Life Res. 2017;26(6):1587-1595. PubMed PMID: 28210993.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers. AU - Halpern,Michael T, AU - Fiero,Mallorie H, AU - Bell,Melanie L, Y1 - 2017/02/16/ PY - 2017/01/13/accepted PY - 2017/2/18/pubmed PY - 2017/12/1/medline PY - 2017/2/18/entrez KW - Cancer KW - Caregivers KW - Factor analysis KW - Interpersonal relations KW - Social support SP - 1587 EP - 1595 JF - Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation JO - Qual Life Res VL - 26 IS - 6 N2 - PURPOSE: Informal caregivers of individuals with cancer may experience substantial burdens. To develop interventions to support these caregivers, it is crucial to quantify and understand the domains of burdens potentially experienced by caregivers and factors contributing to each domain. METHODS: Using data from two national surveys, the National Survey of Caregiving (NSOC) linked to the National Health and Aging Trends Survey (NHATS), we identified all participants in the NHATS diagnosed with cancer who had a caregiver participating in the NSOC. Guided by a theoretical model, twenty-two items in the NSOC related to caregiver health, mood and outlook were included in factor analysis to develop scales capturing domains of burden. Multivariable regression analyses examined whether activities performed by caregivers and supports for caregivers were associated with these burden scales. RESULTS: Analysis of responses from 373 caregivers of cancer patients identified three scales: emotional burden; psychological burden; and relationship with the patient. Providing assistance managing medical care was associated with increased emotional and psychological burden, while assistance with non-medical issues increased psychological burden and worsened relationships with patients. Caregiver provision of direct patient care activities was also associated with increased burden but improved relationships with patients. Use of caregiver supports showed mixed associations with burden. CONCLUSIONS: Using a nationally-representative sample of cancer patients and their caregivers and brief publicly-available survey questions, we present three scales addressing different aspects of caregiver burden that are responsive to caregiver activities and social supports. This may assist in developing and evaluating intervention to decrease caregiver burden. SN - 1573-2649 UR - https://www.unboundmedicine.com/medline/citation/28210993/Impact_of_caregiver_activities_and_social_supports_on_multidimensional_caregiver_burden:_analyses_from_nationally_representative_surveys_of_cancer_patients_and_their_caregivers_ L2 - https://doi.org/10.1007/s11136-017-1505-9 DB - PRIME DP - Unbound Medicine ER -