Tags

Type your tag names separated by a space and hit enter

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child.
J Plast Surg Hand Surg. 2017 Feb; 51(1):81-87.JP

Abstract

BACKGROUND AND AIM

Few studies have explored children's emotional and behavioural reactions to cleft surgery and treatment-related stress. The objective was to investigate parents' evaluations of appearance and treatment outcomes in their 5-year-old child with unilateral cleft lip and palate (UCLP), and their perceptions of how their child was coping with treatment, comparing this information with recorded postsurgical complications.

DESIGN

Three parallel group randomised clinical trials were undertaken as an international multicentre study by 10 cleft teams in five countries: Denmark, Finland, Sweden, Norway, and the UK.

METHODS

Three different surgical procedures for primary palatal repair were tested against a common procedure in the total cohort of 448 children born with a non-syndromic UCLP. A total of 356 parents completed the Scandcleft Parent Questionnaire, and 346 parents completed the Cleft Evaluation Profile.

RESULTS

The results indicated that the majority of parents were satisfied with cleft-related features of their child's appearance. Further, most children coped well with treatment according to their parents. Nevertheless, 17.5% of the children showed minor or short-term reactions after treatment experiences, and 2% had major or lasting difficulties. There were no significant relationships between parent perceptions of treatment-related problems and the occurrence of post-surgical medical complications.

CONCLUSIONS

Most parents reported satisfaction with their child's appearance. However, treatment-related problems were described in some children, urging cleft centres to be aware of potential negative emotional and behavioural reactions to treatment in some young children, with a view to preventing the development of more severe treatment-related anxiety.

TRIAL REGISTRATION

ISRCTN29932826.

Authors+Show Affiliations

a Centre for Rare Disorders , Oslo University Hospital , Oslo , Norway. b Department of Speech and Language Disorders , Statped Sørøst , Oslo , Norway.c Dental School , University of Manchester , Manchester , UK. d Department of Plastic and Reconstructive Surgery , Oslo University Hospital Rikshospitalet , Oslo , Norway.e Cleft Palate and Craniofacial Centre , Helsinki University Central Hospital , Helsinki , Finland.f Division of Speech and Language Pathology , Karolinska Institutet, Karolinska University Hospital , Sweden.b Department of Speech and Language Disorders , Statped Sørøst , Oslo , Norway.g Copenhagen Cleft Palate Centre , University Hospital of Copenhagen , Denmark.h Division of Speech and Language Pathology , Sahlgrenska University Hospital , Gothenburg , Sweden.i Division of Speech and Language Pathology , Linköping University , Linköping , Sweden.j Stockholm Craniofacial Team , Karolinska University Hospital , Stockholm , Sweden.k Department of Speech and Language Disorders , Statped Vest , Bergen , Norway.l Cleft Palate Centre , Aarhus , Denmark.c Dental School , University of Manchester , Manchester , UK.m Private Practice , Manchester , UK.n Centre for Appearance Research , University of the West of England , Bristol , UK.

Pub Type(s)

Journal Article
Multicenter Study
Review

Language

eng

PubMed ID

28218558

Citation

Feragen, Kristin Billaud, et al. "Scandcleft Randomised Trials of Primary Surgery for Unilateral Cleft Lip and Palate: 10. Parental Perceptions of Appearance and Treatment Outcomes in Their 5-year-old Child." Journal of Plastic Surgery and Hand Surgery, vol. 51, no. 1, 2017, pp. 81-87.
Feragen KB, Semb G, Heliövaara A, et al. Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child. J Plast Surg Hand Surg. 2017;51(1):81-87.
Feragen, K. B., Semb, G., Heliövaara, A., Lohmander, A., Johannessen, E. C., Boysen, B. M., Havstam, C., Lundeborg, I., Nyberg, J., Pedersen, N. H., Bogh-Nielsen, J., Eyres, P., Bradbury, E., & Rumsey, N. (2017). Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child. Journal of Plastic Surgery and Hand Surgery, 51(1), 81-87. https://doi.org/10.1080/2000656X.2016.1254642
Feragen KB, et al. Scandcleft Randomised Trials of Primary Surgery for Unilateral Cleft Lip and Palate: 10. Parental Perceptions of Appearance and Treatment Outcomes in Their 5-year-old Child. J Plast Surg Hand Surg. 2017;51(1):81-87. PubMed PMID: 28218558.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child. AU - Feragen,Kristin Billaud, AU - Semb,Gunvor, AU - Heliövaara,Arja, AU - Lohmander,Anette, AU - Johannessen,Emma Christine, AU - Boysen,Betty Marie, AU - Havstam,Christina, AU - Lundeborg,Inger, AU - Nyberg,Jill, AU - Pedersen,Nina-Helen, AU - Bogh-Nielsen,Joan, AU - Eyres,Philip, AU - Bradbury,Eileen, AU - Rumsey,Nichola, PY - 2017/2/21/entrez PY - 2017/2/22/pubmed PY - 2017/12/16/medline KW - Parent satisfaction KW - appearance KW - cleft KW - coping KW - treatment anxiety KW - treatment-related problems SP - 81 EP - 87 JF - Journal of plastic surgery and hand surgery JO - J Plast Surg Hand Surg VL - 51 IS - 1 N2 - BACKGROUND AND AIM: Few studies have explored children's emotional and behavioural reactions to cleft surgery and treatment-related stress. The objective was to investigate parents' evaluations of appearance and treatment outcomes in their 5-year-old child with unilateral cleft lip and palate (UCLP), and their perceptions of how their child was coping with treatment, comparing this information with recorded postsurgical complications. DESIGN: Three parallel group randomised clinical trials were undertaken as an international multicentre study by 10 cleft teams in five countries: Denmark, Finland, Sweden, Norway, and the UK. METHODS: Three different surgical procedures for primary palatal repair were tested against a common procedure in the total cohort of 448 children born with a non-syndromic UCLP. A total of 356 parents completed the Scandcleft Parent Questionnaire, and 346 parents completed the Cleft Evaluation Profile. RESULTS: The results indicated that the majority of parents were satisfied with cleft-related features of their child's appearance. Further, most children coped well with treatment according to their parents. Nevertheless, 17.5% of the children showed minor or short-term reactions after treatment experiences, and 2% had major or lasting difficulties. There were no significant relationships between parent perceptions of treatment-related problems and the occurrence of post-surgical medical complications. CONCLUSIONS: Most parents reported satisfaction with their child's appearance. However, treatment-related problems were described in some children, urging cleft centres to be aware of potential negative emotional and behavioural reactions to treatment in some young children, with a view to preventing the development of more severe treatment-related anxiety. TRIAL REGISTRATION: ISRCTN29932826. SN - 2000-6764 UR - https://www.unboundmedicine.com/medline/citation/28218558/Scandcleft_randomised_trials_of_primary_surgery_for_unilateral_cleft_lip_and_palate:_10__Parental_perceptions_of_appearance_and_treatment_outcomes_in_their_5_year_old_child_ L2 - http://www.tandfonline.com/doi/full/10.1080/2000656X.2016.1254642 DB - PRIME DP - Unbound Medicine ER -