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Evaluating patient and public involvement in health research: from theoretical model to practical workshop.
Health Expect. 2017 10; 20(5):826-835.HE

Abstract

BACKGROUND

There is a growing literature on evaluating aspects of patient and public involvement (PPI). We have suggested that at the core of successful PPI is the dynamic interaction of different forms of knowledge, notably lay and professional. We have developed a four-dimensional theoretical framework for understanding these interactions.

AIM

We explore the practical utility of the theoretical framework as a tool for mapping and evaluating the experience of PPI in health services research.

METHODS

We conducted three workshops with different PPI groups in which participants were invited to map their PPI experiences on wall charts representing the four dimensions of our framework. The language used to describe the four dimensions was modified to make it more accessible to lay audiences. Participants were given sticky notes to indicate their own positions on the different dimensions and to write explanatory comments if they wished. Participants' responses were then discussed and analysed as a group.

RESULTS

The three groups were distinctive in their mapped responses suggesting different experiences in relation to having a strong or weak voice in their organization, having few or many ways of getting involved, addressing organizational or public concerns and believing that the organization was willing to change or not.

DISCUSSION

The framework has practical utility for mapping and evaluating PPI interactions and is sensitive to differences in PPI experiences within and between different organizations. The workshops enabled participants to reflect collaboratively on their experiences with a view to improving PPI experiences and planning for the future.

Authors+Show Affiliations

Department of Health and Applied Sciences, University of the West of England, Bristol, UK.Centre for Biomedical Modelling, University of Exeter, Exeter, UK.Institute of Health Research, University of Exeter Medical School, Exeter, UK.

Pub Type(s)

Journal Article
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

28664563

Citation

Gibson, Andy, et al. "Evaluating Patient and Public Involvement in Health Research: From Theoretical Model to Practical Workshop." Health Expectations : an International Journal of Public Participation in Health Care and Health Policy, vol. 20, no. 5, 2017, pp. 826-835.
Gibson A, Welsman J, Britten N. Evaluating patient and public involvement in health research: from theoretical model to practical workshop. Health Expect. 2017;20(5):826-835.
Gibson, A., Welsman, J., & Britten, N. (2017). Evaluating patient and public involvement in health research: from theoretical model to practical workshop. Health Expectations : an International Journal of Public Participation in Health Care and Health Policy, 20(5), 826-835. https://doi.org/10.1111/hex.12486
Gibson A, Welsman J, Britten N. Evaluating Patient and Public Involvement in Health Research: From Theoretical Model to Practical Workshop. Health Expect. 2017;20(5):826-835. PubMed PMID: 28664563.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Evaluating patient and public involvement in health research: from theoretical model to practical workshop. AU - Gibson,Andy, AU - Welsman,Jo, AU - Britten,Nicky, Y1 - 2017/06/30/ PY - 2016/06/27/accepted PY - 2017/7/1/pubmed PY - 2018/6/5/medline PY - 2017/7/1/entrez KW - evaluation KW - health research KW - knowledge spaces KW - mapping experiences KW - public involvement KW - theoretical framework SP - 826 EP - 835 JF - Health expectations : an international journal of public participation in health care and health policy JO - Health Expect VL - 20 IS - 5 N2 - BACKGROUND: There is a growing literature on evaluating aspects of patient and public involvement (PPI). We have suggested that at the core of successful PPI is the dynamic interaction of different forms of knowledge, notably lay and professional. We have developed a four-dimensional theoretical framework for understanding these interactions. AIM: We explore the practical utility of the theoretical framework as a tool for mapping and evaluating the experience of PPI in health services research. METHODS: We conducted three workshops with different PPI groups in which participants were invited to map their PPI experiences on wall charts representing the four dimensions of our framework. The language used to describe the four dimensions was modified to make it more accessible to lay audiences. Participants were given sticky notes to indicate their own positions on the different dimensions and to write explanatory comments if they wished. Participants' responses were then discussed and analysed as a group. RESULTS: The three groups were distinctive in their mapped responses suggesting different experiences in relation to having a strong or weak voice in their organization, having few or many ways of getting involved, addressing organizational or public concerns and believing that the organization was willing to change or not. DISCUSSION: The framework has practical utility for mapping and evaluating PPI interactions and is sensitive to differences in PPI experiences within and between different organizations. The workshops enabled participants to reflect collaboratively on their experiences with a view to improving PPI experiences and planning for the future. SN - 1369-7625 UR - https://www.unboundmedicine.com/medline/citation/28664563/Evaluating_patient_and_public_involvement_in_health_research:_from_theoretical_model_to_practical_workshop_ L2 - https://doi.org/10.1111/hex.12486 DB - PRIME DP - Unbound Medicine ER -