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Optimizing patient and public involvement (PPI): Identifying its "essential" and "desirable" principles using a systematic review and modified Delphi methodology.
Health Expect. 2018 02; 21(1):327-335.HE

Abstract

BACKGROUND

There is international interest in the active involvement of patients and the public. However, consensus on how best to optimize its application is currently unavailable.

OBJECTIVE

To identify and assess the underlying principles of patient and public involvement (PPI) in health and social care services, research, education and regulation across medicine, dentistry and nursing.

DESIGN

A four-phase methodology: (i) an extensive systematic review of published and grey literature; (ii) inductive thematic analysis of review findings; (iii) development of best practice principles; and (iv) consensus testing of identified principles using a modified Delphi methodology.

SETTING AND PARTICIPANTS

Twelve systematic reviews and 88 grey literature publications were reviewed leading to the unique identification of 13 principles later assessed by 18 PPI experts.

RESULTS

Essential consensus (>75% agreement) was obtained for nine principles reviewed. Working in equal partnership and sharing information achieved the highest consensus rates: 16/17 essential 94.1%; 1/17 desirable 5.8%. The four remaining principles that failed to reach essential consensus were categorized as desirable by expert respondents. No principles were considered irrelevant. No alternatives were suggested.

DISCUSSION

Expert respondents suggest essential principles must be achieved to optimize PPI best practice. To advance PPI practice, desirable principles should also be aspired to wherever possible.

CONCLUSIONS

This study's innovative approach advances existing knowledge by providing previously unavailable consensus about PPI best practice. Research findings hold important theoretical and practical implications for educators, regulators, researchers and practitioners looking to effectively work together.

Authors+Show Affiliations

Collaboration for the Advancement of Medical Education Research & Assessment, University of Plymouth, Plymouth, UK.Collaboration for the Advancement of Medical Education Research & Assessment, University of Plymouth, Plymouth, UK.

Pub Type(s)

Journal Article
Research Support, Non-U.S. Gov't
Systematic Review

Language

eng

PubMed ID

28929554

Citation

Baines, Rebecca L., and Sam Regan de Bere. "Optimizing Patient and Public Involvement (PPI): Identifying Its "essential" and "desirable" Principles Using a Systematic Review and Modified Delphi Methodology." Health Expectations : an International Journal of Public Participation in Health Care and Health Policy, vol. 21, no. 1, 2018, pp. 327-335.
Baines RL, Regan de Bere S. Optimizing patient and public involvement (PPI): Identifying its "essential" and "desirable" principles using a systematic review and modified Delphi methodology. Health Expect. 2018;21(1):327-335.
Baines, R. L., & Regan de Bere, S. (2018). Optimizing patient and public involvement (PPI): Identifying its "essential" and "desirable" principles using a systematic review and modified Delphi methodology. Health Expectations : an International Journal of Public Participation in Health Care and Health Policy, 21(1), 327-335. https://doi.org/10.1111/hex.12618
Baines RL, Regan de Bere S. Optimizing Patient and Public Involvement (PPI): Identifying Its "essential" and "desirable" Principles Using a Systematic Review and Modified Delphi Methodology. Health Expect. 2018;21(1):327-335. PubMed PMID: 28929554.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Optimizing patient and public involvement (PPI): Identifying its "essential" and "desirable" principles using a systematic review and modified Delphi methodology. AU - Baines,Rebecca L, AU - Regan de Bere,Sam, Y1 - 2017/09/19/ PY - 2017/08/01/accepted PY - 2017/9/21/pubmed PY - 2019/2/27/medline PY - 2017/9/21/entrez KW - delphi KW - health care KW - patient and public involvement KW - qualitative SP - 327 EP - 335 JF - Health expectations : an international journal of public participation in health care and health policy JO - Health Expect VL - 21 IS - 1 N2 - BACKGROUND: There is international interest in the active involvement of patients and the public. However, consensus on how best to optimize its application is currently unavailable. OBJECTIVE: To identify and assess the underlying principles of patient and public involvement (PPI) in health and social care services, research, education and regulation across medicine, dentistry and nursing. DESIGN: A four-phase methodology: (i) an extensive systematic review of published and grey literature; (ii) inductive thematic analysis of review findings; (iii) development of best practice principles; and (iv) consensus testing of identified principles using a modified Delphi methodology. SETTING AND PARTICIPANTS: Twelve systematic reviews and 88 grey literature publications were reviewed leading to the unique identification of 13 principles later assessed by 18 PPI experts. RESULTS: Essential consensus (>75% agreement) was obtained for nine principles reviewed. Working in equal partnership and sharing information achieved the highest consensus rates: 16/17 essential 94.1%; 1/17 desirable 5.8%. The four remaining principles that failed to reach essential consensus were categorized as desirable by expert respondents. No principles were considered irrelevant. No alternatives were suggested. DISCUSSION: Expert respondents suggest essential principles must be achieved to optimize PPI best practice. To advance PPI practice, desirable principles should also be aspired to wherever possible. CONCLUSIONS: This study's innovative approach advances existing knowledge by providing previously unavailable consensus about PPI best practice. Research findings hold important theoretical and practical implications for educators, regulators, researchers and practitioners looking to effectively work together. SN - 1369-7625 UR - https://www.unboundmedicine.com/medline/citation/28929554/Optimizing_patient_and_public_involvement__PPI_:_Identifying_its_"essential"_and_"desirable"_principles_using_a_systematic_review_and_modified_Delphi_methodology_ L2 - https://doi.org/10.1111/hex.12618 DB - PRIME DP - Unbound Medicine ER -