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Protocol for a national prevalence study of advance care planning documentation and self-reported uptake in Australia.
BMJ Open. 2017 Nov 03; 7(11):e018024.BO

Abstract

INTRODUCTION

Advance care planning (ACP) is a process between a person, their family/carer(s) and healthcare providers that supports adults at any age or stage of health in understanding and sharing their personal values, life goals and preferences regarding future medical care. The Australian government funds a number of national initiatives aimed at increasing ACP uptake; however, there is currently no standardised Australian data on formal ACP documentation or self-reported uptake. This makes it difficult to evaluate the impact of ACP initiatives. This study aims to determine the Australian national prevalence of ACP and completion of Advance Care Directives (ACDs) in hospitals, aged care facilities and general practices. It will also explore people's self-reported use of ACP and views about the process.

METHODS AND ANALYSIS

Researchers will conduct a national multicentre cross-sectional prevalence study, consisting of a record audit and surveys of people aged 65 years or more in three sectors. From 49 participating Australian organisations, 50 records will be audited (total of 2450 records). People whose records were audited, who speak English and have a decision-making capacity will also be invited to complete a survey. The primary outcome measure will be the number of people who have formal or informal ACP documentation that can be located in records within 15 min. Other outcomes will include demographics, measure of illness and functional capacity, details of ACP documentation (including type of document), location of documentation in the person's records and whether current clinical care plans are consistent with ACP documentation. People will be surveyed, to measure self-reported interest, uptake and use of ACP/ACDs, and self-reported quality of life.

ETHICS AND DISSEMINATION

This protocol has been approved by the Austin Health Human Research Ethics Committee (reference HREC/17/Austin/83). Results will be submitted to international peer-reviewed journals and presented at international conferences.

TRIAL REGISTRATION NUMBER

ACTRN12617000743369.

Authors+Show Affiliations

Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.Advance Care Planning Australia, Austin Health, Heidelberg, Victoria, Australia. Faculty of Medicine, Dentistry and Health Science, University of Melbourne, Melbourne, Victoria, Australia.Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.Advance Care Planning Australia, Austin Health, Heidelberg, Victoria, Australia.Advance Care Planning Australia, Austin Health, Heidelberg, Victoria, Australia.Rural Clinical School of Western Australia, University of Western Australia, Albany, Western Australia, Australia.Hammond Care Palliative and Supportive Care Service, Greenwich Hospital, Sydney, New South Wales, Australia.Advance Care Planning Australia, Austin Health, Heidelberg, Victoria, Australia.

Pub Type(s)

Journal Article
Multicenter Study

Language

eng

PubMed ID

29101142

Citation

Ruseckaite, Rasa, et al. "Protocol for a National Prevalence Study of Advance Care Planning Documentation and Self-reported Uptake in Australia." BMJ Open, vol. 7, no. 11, 2017, pp. e018024.
Ruseckaite R, Detering KM, Evans SM, et al. Protocol for a national prevalence study of advance care planning documentation and self-reported uptake in Australia. BMJ Open. 2017;7(11):e018024.
Ruseckaite, R., Detering, K. M., Evans, S. M., Perera, V., Walker, L., Sinclair, C., Clayton, J. M., & Nolte, L. (2017). Protocol for a national prevalence study of advance care planning documentation and self-reported uptake in Australia. BMJ Open, 7(11), e018024. https://doi.org/10.1136/bmjopen-2017-018024
Ruseckaite R, et al. Protocol for a National Prevalence Study of Advance Care Planning Documentation and Self-reported Uptake in Australia. BMJ Open. 2017 Nov 3;7(11):e018024. PubMed PMID: 29101142.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Protocol for a national prevalence study of advance care planning documentation and self-reported uptake in Australia. AU - Ruseckaite,Rasa, AU - Detering,Karen M, AU - Evans,Sue M, AU - Perera,Veronica, AU - Walker,Lynne, AU - Sinclair,Craig, AU - Clayton,Josephine M, AU - Nolte,Linda, Y1 - 2017/11/03/ PY - 2017/11/5/entrez PY - 2017/11/5/pubmed PY - 2018/7/13/medline KW - advance care planning KW - audit KW - general practice KW - hospital KW - prevalence KW - residential aged care SP - e018024 EP - e018024 JF - BMJ open JO - BMJ Open VL - 7 IS - 11 N2 - INTRODUCTION: Advance care planning (ACP) is a process between a person, their family/carer(s) and healthcare providers that supports adults at any age or stage of health in understanding and sharing their personal values, life goals and preferences regarding future medical care. The Australian government funds a number of national initiatives aimed at increasing ACP uptake; however, there is currently no standardised Australian data on formal ACP documentation or self-reported uptake. This makes it difficult to evaluate the impact of ACP initiatives. This study aims to determine the Australian national prevalence of ACP and completion of Advance Care Directives (ACDs) in hospitals, aged care facilities and general practices. It will also explore people's self-reported use of ACP and views about the process. METHODS AND ANALYSIS: Researchers will conduct a national multicentre cross-sectional prevalence study, consisting of a record audit and surveys of people aged 65 years or more in three sectors. From 49 participating Australian organisations, 50 records will be audited (total of 2450 records). People whose records were audited, who speak English and have a decision-making capacity will also be invited to complete a survey. The primary outcome measure will be the number of people who have formal or informal ACP documentation that can be located in records within 15 min. Other outcomes will include demographics, measure of illness and functional capacity, details of ACP documentation (including type of document), location of documentation in the person's records and whether current clinical care plans are consistent with ACP documentation. People will be surveyed, to measure self-reported interest, uptake and use of ACP/ACDs, and self-reported quality of life. ETHICS AND DISSEMINATION: This protocol has been approved by the Austin Health Human Research Ethics Committee (reference HREC/17/Austin/83). Results will be submitted to international peer-reviewed journals and presented at international conferences. TRIAL REGISTRATION NUMBER: ACTRN12617000743369. SN - 2044-6055 UR - https://www.unboundmedicine.com/medline/citation/29101142/Protocol_for_a_national_prevalence_study_of_advance_care_planning_documentation_and_self_reported_uptake_in_Australia_ L2 - http://bmjopen.bmj.com/cgi/pmidlookup?view=long&pmid=29101142 DB - PRIME DP - Unbound Medicine ER -