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It's not just 'What' you do, it's also the 'Way' that you do it: Patient and Public Involvement in the Development of Health Research.
Int J Qual Health Care. 2018 Mar 01; 30(2):152-156.IJ

Abstract

Purpose

This article presents a reflective account of Patient and Public Involvement (PPI) in the development of obesity and binge eating research.

Method

We established Patient Advisory Groups (PAGs) at two English regional National Health Service (NHS) weight management services. PPI was evaluated as follows: (i) PAG members completed a Post Participation Evaluation Questionnaire, (ii) PAG meetings captured group discussion on PPI involvement, (iii) practitioner and researchers produced written reflections on PPI and (iv) sources one to three were consolidated during reflections that took place via e-mail and telephone correspondence between researchers and practitioners, culminating in a summary SKYPE meeting between one practitioner and one researcher involved in the PAGs.

Results

Results in the form of reflections suggest guidelines on undertaking PPI were helpful with regard 'what to do', but less helpful on 'how'. For example, suggestions for the management of interpersonal factors such as eliciting self-disclosure and managing power differentials are insufficiently addressed in existing guidelines.

Conclusions

The present case study illustrated how interpersonal considerations can help or hinder the optimal use of PPI. Recommendations for practitioners and researchers planning PPI are offered.

Authors+Show Affiliations

Institute of Sport and Human Science, University of Wolverhampton, Gorway Road, Walsall, West Midlands, WS1 3BD, UK.Institute of Sport and Human Science, University of Wolverhampton, Gorway Road, Walsall, West Midlands, WS1 3BD, UK.City Hospitals Sunderland NHS Foundation Trust, Psychology Services 4th Floor, Chester Lodge, Kayll Road, Sunderland, SR4 7TP, UK.Institute of Sport and Human Science, University of Wolverhampton, Gorway Road, Walsall, West Midlands, WS1 3BD, UK.City Hospitals Sunderland NHS Foundation Trust, Psychology Services 4th Floor, Chester Lodge, Kayll Road, Sunderland, SR4 7TP, UK. City Hospitals Sunderland NHS Foundation Trust, Dietetics Department, Kayll Road, Sunderland, SR4 7TP, UK.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

29346582

Citation

Devonport, Tracey J., et al. "It's Not Just 'What' You Do, It's Also the 'Way' That You Do It: Patient and Public Involvement in the Development of Health Research." International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care, vol. 30, no. 2, 2018, pp. 152-156.
Devonport TJ, Nicholls W, Johnston LH, et al. It's not just 'What' you do, it's also the 'Way' that you do it: Patient and Public Involvement in the Development of Health Research. Int J Qual Health Care. 2018;30(2):152-156.
Devonport, T. J., Nicholls, W., Johnston, L. H., Gutteridge, R., & Watt, A. (2018). It's not just 'What' you do, it's also the 'Way' that you do it: Patient and Public Involvement in the Development of Health Research. International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care, 30(2), 152-156. https://doi.org/10.1093/intqhc/mzx177
Devonport TJ, et al. It's Not Just 'What' You Do, It's Also the 'Way' That You Do It: Patient and Public Involvement in the Development of Health Research. Int J Qual Health Care. 2018 Mar 1;30(2):152-156. PubMed PMID: 29346582.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - It's not just 'What' you do, it's also the 'Way' that you do it: Patient and Public Involvement in the Development of Health Research. AU - Devonport,Tracey J, AU - Nicholls,Wendy, AU - Johnston,Lynne H, AU - Gutteridge,Robin, AU - Watt,Angela, PY - 2016/11/21/received PY - 2017/12/06/accepted PY - 2018/1/19/pubmed PY - 2018/8/18/medline PY - 2018/1/19/entrez SP - 152 EP - 156 JF - International journal for quality in health care : journal of the International Society for Quality in Health Care JO - Int J Qual Health Care VL - 30 IS - 2 N2 - Purpose: This article presents a reflective account of Patient and Public Involvement (PPI) in the development of obesity and binge eating research. Method: We established Patient Advisory Groups (PAGs) at two English regional National Health Service (NHS) weight management services. PPI was evaluated as follows: (i) PAG members completed a Post Participation Evaluation Questionnaire, (ii) PAG meetings captured group discussion on PPI involvement, (iii) practitioner and researchers produced written reflections on PPI and (iv) sources one to three were consolidated during reflections that took place via e-mail and telephone correspondence between researchers and practitioners, culminating in a summary SKYPE meeting between one practitioner and one researcher involved in the PAGs. Results: Results in the form of reflections suggest guidelines on undertaking PPI were helpful with regard 'what to do', but less helpful on 'how'. For example, suggestions for the management of interpersonal factors such as eliciting self-disclosure and managing power differentials are insufficiently addressed in existing guidelines. Conclusions: The present case study illustrated how interpersonal considerations can help or hinder the optimal use of PPI. Recommendations for practitioners and researchers planning PPI are offered. SN - 1464-3677 UR - https://www.unboundmedicine.com/medline/citation/29346582/It's_not_just_'What'_you_do_it's_also_the_'Way'_that_you_do_it:_Patient_and_Public_Involvement_in_the_Development_of_Health_Research_ L2 - https://academic.oup.com/intqhc/article-lookup/doi/10.1093/intqhc/mzx177 DB - PRIME DP - Unbound Medicine ER -