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An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial.
JAMA Intern Med. 2018 07 01; 178(7):961-969.JIM

Abstract

Importance

Better advance care planning (ACP) can help promote goal-directed care in patients with advanced dementia.

Objectives

To test whether an ACP video (vs usual care) has an effect on documented advance directives, level of care preferences, goals-of-care discussions, and burdensome treatments among nursing home residents with advanced dementia.

Design, Setting, and Participants

The Educational Video to Improve Nursing home Care in End-stage dementia (EVINCE) trial was a cluster randomized clinical trial conducted between February 2013 and July 2017, at 64 Boston-area nursing homes (32 facilities per arm). A total of 402 residents with advanced dementia and their proxies (intervention arm, n = 212; control arm, n = 190) were assessed quarterly for 12 months.

Interventions

A 12-minute ACP video for proxies with written communication of their preferred level of care (comfort, basic, or intensive) to the primary care team.

Main Outcomes and Measures

The primary outcome was the proportion of residents with do-not-hospitalize (DNH) directives by 6 months. Secondary outcomes included preference for comfort care, documented directives to withhold tube-feeding and intravenous hydration, documented goals-of-care discussions, and burdensome treatments (hospital transfers, tube-feeding, or parenteral therapy) per 1000 resident-days. Exploratory analyses examined associations between trial arm and documented advance directives when comfort care was preferred.

Results

The mean age of the 402 study residents was 86.7 years [range, 67-102 years]; 350 were white (87.1%) and 323 were female (80.3%), with DNH directives that by 6 months did not differ between arms (63% in both arms; adjusted odds ratio [AOR], 1.08; 95% CI, 0.69-1.69). Preferences for comfort care, directives to withhold intravenous hydration, and burdensome treatments did not differ between arms. Residents in intervention vs control facilities were more likely to have directives for no tube-feeding at 6 months (70.10% vs 61.90%; AOR, 1.79; 95% CI, 1.13-2.82) and all other time periods, and documented goals-of-care discussions at 3 months (16.10% vs 7.90%; AOR, 2.58; 95% CI, 1.20-5.54). When comfort care was preferred, residents in the intervention arm were more likely to have both DNH and no tube-feeding directives (72.20% vs 52.80%; AOR, 2.68; 95% CI, 2.68-5.85).

Conclusions and Relevance

An ACP video did not have an effect on preferences, DNH status, or burdensome treatments among residents with advanced dementia, but did increase directives to withhold tube-feeding. When proxies preferred comfort care, advance directives of residents in the intervention arm were more likely to align with that preference.

Trial Registration

clinicaltrials.gov Identifier: NCT01774799.

Authors+Show Affiliations

Hebrew SeniorLife Institute for Aging Research, Boston, Massachusetts. Department of Medicine, Beth Israel Deaconess Medical Center, Boston, Massachusetts.Department of Statistics, University of Washington, Seattle.Hebrew SeniorLife Institute for Aging Research, Boston, Massachusetts.Cecil G. Sheps Center for Health Services Research and School of Medicine, Division of Geriatric Medicine, University of North Carolina at Chapel Hill, Chapel Hill.Hebrew SeniorLife Institute for Aging Research, Boston, Massachusetts.Department of Medicine, Massachusetts General Hospital, Boston.

Pub Type(s)

Journal Article
Randomized Controlled Trial
Research Support, N.I.H., Extramural

Language

eng

PubMed ID

29868778

Citation

Mitchell, Susan L., et al. "An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: a Cluster Randomized Clinical Trial." JAMA Internal Medicine, vol. 178, no. 7, 2018, pp. 961-969.
Mitchell SL, Shaffer ML, Cohen S, et al. An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial. JAMA Intern Med. 2018;178(7):961-969.
Mitchell, S. L., Shaffer, M. L., Cohen, S., Hanson, L. C., Habtemariam, D., & Volandes, A. E. (2018). An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial. JAMA Internal Medicine, 178(7), 961-969. https://doi.org/10.1001/jamainternmed.2018.1506
Mitchell SL, et al. An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: a Cluster Randomized Clinical Trial. JAMA Intern Med. 2018 07 1;178(7):961-969. PubMed PMID: 29868778.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial. AU - Mitchell,Susan L, AU - Shaffer,Michele L, AU - Cohen,Simon, AU - Hanson,Laura C, AU - Habtemariam,Daniel, AU - Volandes,Angelo E, PY - 2018/6/6/pubmed PY - 2019/5/1/medline PY - 2018/6/6/entrez SP - 961 EP - 969 JF - JAMA internal medicine JO - JAMA Intern Med VL - 178 IS - 7 N2 - Importance: Better advance care planning (ACP) can help promote goal-directed care in patients with advanced dementia. Objectives: To test whether an ACP video (vs usual care) has an effect on documented advance directives, level of care preferences, goals-of-care discussions, and burdensome treatments among nursing home residents with advanced dementia. Design, Setting, and Participants: The Educational Video to Improve Nursing home Care in End-stage dementia (EVINCE) trial was a cluster randomized clinical trial conducted between February 2013 and July 2017, at 64 Boston-area nursing homes (32 facilities per arm). A total of 402 residents with advanced dementia and their proxies (intervention arm, n = 212; control arm, n = 190) were assessed quarterly for 12 months. Interventions: A 12-minute ACP video for proxies with written communication of their preferred level of care (comfort, basic, or intensive) to the primary care team. Main Outcomes and Measures: The primary outcome was the proportion of residents with do-not-hospitalize (DNH) directives by 6 months. Secondary outcomes included preference for comfort care, documented directives to withhold tube-feeding and intravenous hydration, documented goals-of-care discussions, and burdensome treatments (hospital transfers, tube-feeding, or parenteral therapy) per 1000 resident-days. Exploratory analyses examined associations between trial arm and documented advance directives when comfort care was preferred. Results: The mean age of the 402 study residents was 86.7 years [range, 67-102 years]; 350 were white (87.1%) and 323 were female (80.3%), with DNH directives that by 6 months did not differ between arms (63% in both arms; adjusted odds ratio [AOR], 1.08; 95% CI, 0.69-1.69). Preferences for comfort care, directives to withhold intravenous hydration, and burdensome treatments did not differ between arms. Residents in intervention vs control facilities were more likely to have directives for no tube-feeding at 6 months (70.10% vs 61.90%; AOR, 1.79; 95% CI, 1.13-2.82) and all other time periods, and documented goals-of-care discussions at 3 months (16.10% vs 7.90%; AOR, 2.58; 95% CI, 1.20-5.54). When comfort care was preferred, residents in the intervention arm were more likely to have both DNH and no tube-feeding directives (72.20% vs 52.80%; AOR, 2.68; 95% CI, 2.68-5.85). Conclusions and Relevance: An ACP video did not have an effect on preferences, DNH status, or burdensome treatments among residents with advanced dementia, but did increase directives to withhold tube-feeding. When proxies preferred comfort care, advance directives of residents in the intervention arm were more likely to align with that preference. Trial Registration: clinicaltrials.gov Identifier: NCT01774799. SN - 2168-6114 UR - https://www.unboundmedicine.com/medline/citation/29868778/An_Advance_Care_Planning_Video_Decision_Support_Tool_for_Nursing_Home_Residents_With_Advanced_Dementia:_A_Cluster_Randomized_Clinical_Trial_ L2 - https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/10.1001/jamainternmed.2018.1506 DB - PRIME DP - Unbound Medicine ER -