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A Qualitative Exploratory Study of Informal Carers' Experiences of Identifying and Managing Oral Pain and Discomfort in Community-Dwelling Older People Living with Dementia.
Geriatrics (Basel). 2018 Jun 21; 3(3)G

Abstract

Increased prevalence of dementia and poor oral health in older people is associated with more people living with dementia who experience oral pain and discomfort. However, little is known about how informal carers manage oral pain for people living with dementia in the community. This study aimed to explore informal carers' experiences of identifying and managing oral pain and discomfort in people living with dementia, and barriers and enablers they encountered. Focus groups with informal carers of people living with dementia were conducted, transcribed verbatim, and analysed using thematic analysis. Carers' accounts suggested that day-to-day contact was required to identify oral pain and discomfort, and a symptomology of the signs and symptoms was developed. Carers' accounts also highlighted issues in maintaining oral health, difficulties in accessing the mouth, managing dentures, competing demands, and difficulties in accessing treatment due to health service-, behavioural- and treatment- related barriers. Enablers included informal carers' pivotal role in the identifying and managing oral pain and discomfort in people living with dementia. The study concludes that carers want more partnership work with dental professionals, and clearer care pathways are required to meet the oral health needs of people living with dementia who experience oral pain.

Authors+Show Affiliations

Department of Adult Nursing and Paramedic Science, Faculty of Education and Health, University of Greenwich, Avery Hill Campus, Southwood Site, London SE9 2UG, UK. P.D.Newton@greenwich.ac.uk.Special Care Dentistry, King's College Hospital NHS Foundation Trust, King's College Dental Hospital, Denmark Hill, London SE5 9RS, UK. charlotte.curl@nhs.net.Special Care Dentistry, King's College Hospital NHS Foundation Trust, King's College Dental Hospital, Denmark Hill, London SE5 9RS, UK. ria.prasad@nhs.net.Department of Adult Nursing and Paramedic Science, Faculty of Education and Health, University of Greenwich, Avery Hill Campus, Southwood Site, London SE9 2UG, UK. p.pass@greenwich.ac.uk.Department of Adult Nursing and Paramedic Science, Faculty of Education and Health, University of Greenwich, Avery Hill Campus, Southwood Site, London SE9 2UG, UK. j.e.bowden@greenwich.ac.uk.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

31011070

Citation

Newton, Paul, et al. "A Qualitative Exploratory Study of Informal Carers' Experiences of Identifying and Managing Oral Pain and Discomfort in Community-Dwelling Older People Living With Dementia." Geriatrics (Basel, Switzerland), vol. 3, no. 3, 2018.
Newton P, Curl C, Prasad R, et al. A Qualitative Exploratory Study of Informal Carers' Experiences of Identifying and Managing Oral Pain and Discomfort in Community-Dwelling Older People Living with Dementia. Geriatrics (Basel). 2018;3(3).
Newton, P., Curl, C., Prasad, R., Pass, P., & Bowden, J. (2018). A Qualitative Exploratory Study of Informal Carers' Experiences of Identifying and Managing Oral Pain and Discomfort in Community-Dwelling Older People Living with Dementia. Geriatrics (Basel, Switzerland), 3(3). https://doi.org/10.3390/geriatrics3030032
Newton P, et al. A Qualitative Exploratory Study of Informal Carers' Experiences of Identifying and Managing Oral Pain and Discomfort in Community-Dwelling Older People Living With Dementia. Geriatrics (Basel). 2018 Jun 21;3(3) PubMed PMID: 31011070.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - A Qualitative Exploratory Study of Informal Carers' Experiences of Identifying and Managing Oral Pain and Discomfort in Community-Dwelling Older People Living with Dementia. AU - Newton,Paul, AU - Curl,Charlotte, AU - Prasad,Ria, AU - Pass,Patricia, AU - Bowden,Julie, Y1 - 2018/06/21/ PY - 2018/05/14/received PY - 2018/06/11/revised PY - 2018/06/16/accepted PY - 2019/4/24/entrez PY - 2019/4/24/pubmed PY - 2019/4/24/medline KW - dementia KW - identification KW - informal carers KW - management KW - older people KW - oral pain and discomfort JF - Geriatrics (Basel, Switzerland) JO - Geriatrics (Basel) VL - 3 IS - 3 N2 - Increased prevalence of dementia and poor oral health in older people is associated with more people living with dementia who experience oral pain and discomfort. However, little is known about how informal carers manage oral pain for people living with dementia in the community. This study aimed to explore informal carers' experiences of identifying and managing oral pain and discomfort in people living with dementia, and barriers and enablers they encountered. Focus groups with informal carers of people living with dementia were conducted, transcribed verbatim, and analysed using thematic analysis. Carers' accounts suggested that day-to-day contact was required to identify oral pain and discomfort, and a symptomology of the signs and symptoms was developed. Carers' accounts also highlighted issues in maintaining oral health, difficulties in accessing the mouth, managing dentures, competing demands, and difficulties in accessing treatment due to health service-, behavioural- and treatment- related barriers. Enablers included informal carers' pivotal role in the identifying and managing oral pain and discomfort in people living with dementia. The study concludes that carers want more partnership work with dental professionals, and clearer care pathways are required to meet the oral health needs of people living with dementia who experience oral pain. SN - 2308-3417 UR - https://www.unboundmedicine.com/medline/citation/31011070/A_Qualitative_Exploratory_Study_of_Informal_Carers'_Experiences_of_Identifying_and_Managing_Oral_Pain_and_Discomfort_in_Community-Dwelling_Older_People_Living_with_Dementia L2 - http://www.mdpi.com/resolver?pii=geriatrics3030032 DB - PRIME DP - Unbound Medicine ER -
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