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Living, loving, dying: Insights into rural compassion.
Aust J Rural Health 2019; 27(4):328-335AJ

Abstract

OBJECTIVE

To improve understandings of the enablers and barriers to maintaining good quality of life for people dying, caring and grieving in rural areas.

DESIGN AND SETTING

In-depth interviews designed on participatory research principles were held with bereaved carers living in a small community in rural Tasmania. Participants had cared for someone until their death within the 3-year period prior.

PARTICIPANTS

Nineteen participants comprising 18 bereaved former carers and one person with a life-limiting illness, and all but four were over retirement age.

STUDY AIM

To explore experiences of end-of-life care in a rural community.

RESULTS

Participants discussed the challenges they experienced during end-of-life caring, including transport into the city for treatment, and access to basic and specialised services. However, they also reported positive aspects of formal and informal palliative care, and described experiences of personable, expert, flexible and innovative caregiving.

CONCLUSIONS

The rural location enabled personalised and innovative expressions of care. This research adds new insight into rural end-of-life palliation, as a complex intersection of supererogation, innovation and place-driven care.

Authors+Show Affiliations

Centre for Rural Health, UTas, Hobart, Tasmania, Australia.Centre for Rural Health, UTas, Hobart, Tasmania, Australia.Centre for Rural Health, UTas, Hobart, Tasmania, Australia.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

31241231

Citation

Marsh, Pauline, et al. "Living, Loving, Dying: Insights Into Rural Compassion." The Australian Journal of Rural Health, vol. 27, no. 4, 2019, pp. 328-335.
Marsh P, Thompson S, Mond J. Living, loving, dying: Insights into rural compassion. Aust J Rural Health. 2019;27(4):328-335.
Marsh, P., Thompson, S., & Mond, J. (2019). Living, loving, dying: Insights into rural compassion. The Australian Journal of Rural Health, 27(4), pp. 328-335. doi:10.1111/ajr.12530.
Marsh P, Thompson S, Mond J. Living, Loving, Dying: Insights Into Rural Compassion. Aust J Rural Health. 2019;27(4):328-335. PubMed PMID: 31241231.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Living, loving, dying: Insights into rural compassion. AU - Marsh,Pauline, AU - Thompson,Stephanie, AU - Mond,Jonathan, Y1 - 2019/06/26/ PY - 2018/10/22/received PY - 2019/05/08/revised PY - 2019/05/15/accepted PY - 2019/6/27/pubmed PY - 2019/6/27/medline PY - 2019/6/27/entrez KW - bereavement KW - compassion KW - end-of-life care KW - health promoting palliative care KW - rural palliative care SP - 328 EP - 335 JF - The Australian journal of rural health JO - Aust J Rural Health VL - 27 IS - 4 N2 - OBJECTIVE: To improve understandings of the enablers and barriers to maintaining good quality of life for people dying, caring and grieving in rural areas. DESIGN AND SETTING: In-depth interviews designed on participatory research principles were held with bereaved carers living in a small community in rural Tasmania. Participants had cared for someone until their death within the 3-year period prior. PARTICIPANTS: Nineteen participants comprising 18 bereaved former carers and one person with a life-limiting illness, and all but four were over retirement age. STUDY AIM: To explore experiences of end-of-life care in a rural community. RESULTS: Participants discussed the challenges they experienced during end-of-life caring, including transport into the city for treatment, and access to basic and specialised services. However, they also reported positive aspects of formal and informal palliative care, and described experiences of personable, expert, flexible and innovative caregiving. CONCLUSIONS: The rural location enabled personalised and innovative expressions of care. This research adds new insight into rural end-of-life palliation, as a complex intersection of supererogation, innovation and place-driven care. SN - 1440-1584 UR - https://www.unboundmedicine.com/medline/citation/31241231/Living,_loving,_dying:_Insights_into_rural_compassion L2 - https://doi.org/10.1111/ajr.12530 DB - PRIME DP - Unbound Medicine ER -