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Health-related quality-of-life assessment in dementia: Evidence of cross-cultural validity in Latin America.

Abstract

All health-related quality-of-life (HRQL) measures for dementia have been developed in high-income countries and none were validated for cross-cultural use. Yet, the global majority of people living with dementia reside in low- and middle-income countries. We therefore investigated the measurement invariance of a set of self- and informant-report HRQL measures developed in the United Kingdom when used in Latin America. Self-reported HRQL was obtained using (DEMQOL) at a memory assessment service in the United Kingdom (n = 868) and a population cohort study in Latin America (n = 417). Informant reports were collected using DEMQOL-Proxy at both sites (n = 909 and n = 495). Multiple-group confirmatory bifactor models for ordered categorical item responses were estimated to evaluate measurement invariance. Results support configural, metric, and scalar invariance for the concept of general HRQL in DEMQOL and DEMQOL-Proxy. The dominant impact of general HRQL on item responses was evident across U.K. English and Ibero American Spanish versions of DEMQOL (ωh = 0.87-0.90) and DEMQOL-Proxy (ωh = 0.88-0.89). Ratings of "positive emotion" did not show a major impact on general HRQL appraisal, particularly for Latin American respondents. Item information curves show that self- and informant-reports were highly informative about the presence rather than the absence of HRQL impairment. We found no major difference in conceptual meaning, sensitivity, and relevance of DEMQOL and DEMQOL-Proxy for older adults in the United Kingdom and Latin America. Further replication is needed for consensus over which HRQL measures are appropriate for making cross-national comparisons in global dementia research. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

Authors+Show Affiliations

Centre for Implementation Science, Institute of Psychiatry, Psychology, and Neuroscience.School of Nursing and Health Sciences, University of Dundee.King's Global Health Institute, Institute of Psychiatry, Psychology, and Neuroscience, King's College London.Centre for Dementia Studies, Brighton and Sussex Medical School, University of Sussex.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

31282701

Citation

Chua, Kia-Chong, et al. "Health-related Quality-of-life Assessment in Dementia: Evidence of Cross-cultural Validity in Latin America." Psychological Assessment, 2019.
Chua KC, Böhnke JR, Prince M, et al. Health-related quality-of-life assessment in dementia: Evidence of cross-cultural validity in Latin America. Psychol Assess. 2019.
Chua, K. C., Böhnke, J. R., Prince, M., & Banerjee, S. (2019). Health-related quality-of-life assessment in dementia: Evidence of cross-cultural validity in Latin America. Psychological Assessment, doi:10.1037/pas0000743.
Chua KC, et al. Health-related Quality-of-life Assessment in Dementia: Evidence of Cross-cultural Validity in Latin America. Psychol Assess. 2019 Jul 8; PubMed PMID: 31282701.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Health-related quality-of-life assessment in dementia: Evidence of cross-cultural validity in Latin America. AU - Chua,Kia-Chong, AU - Böhnke,Jan R, AU - Prince,Martin, AU - Banerjee,Sube, Y1 - 2019/07/08/ PY - 2019/7/9/entrez JF - Psychological assessment JO - Psychol Assess N2 - All health-related quality-of-life (HRQL) measures for dementia have been developed in high-income countries and none were validated for cross-cultural use. Yet, the global majority of people living with dementia reside in low- and middle-income countries. We therefore investigated the measurement invariance of a set of self- and informant-report HRQL measures developed in the United Kingdom when used in Latin America. Self-reported HRQL was obtained using (DEMQOL) at a memory assessment service in the United Kingdom (n = 868) and a population cohort study in Latin America (n = 417). Informant reports were collected using DEMQOL-Proxy at both sites (n = 909 and n = 495). Multiple-group confirmatory bifactor models for ordered categorical item responses were estimated to evaluate measurement invariance. Results support configural, metric, and scalar invariance for the concept of general HRQL in DEMQOL and DEMQOL-Proxy. The dominant impact of general HRQL on item responses was evident across U.K. English and Ibero American Spanish versions of DEMQOL (ωh = 0.87-0.90) and DEMQOL-Proxy (ωh = 0.88-0.89). Ratings of "positive emotion" did not show a major impact on general HRQL appraisal, particularly for Latin American respondents. Item information curves show that self- and informant-reports were highly informative about the presence rather than the absence of HRQL impairment. We found no major difference in conceptual meaning, sensitivity, and relevance of DEMQOL and DEMQOL-Proxy for older adults in the United Kingdom and Latin America. Further replication is needed for consensus over which HRQL measures are appropriate for making cross-national comparisons in global dementia research. (PsycINFO Database Record (c) 2019 APA, all rights reserved). SN - 1939-134X UR - https://www.unboundmedicine.com/medline/citation/31282701/Health-related_quality-of-life_assessment_in_dementia:_Evidence_of_cross-cultural_validity_in_Latin_America DB - PRIME DP - Unbound Medicine ER -
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