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Interaction and innovation: practical strategies for inclusive consumer-driven research in health services.
BMJ Open. 2019 12 16; 9(12):e031555.BO

Abstract

INTRODUCTION

Despite advances in the co-creation of clinical research involving consumers in the last few decades, consumer engagement in health services research generally remains inconsistent and is too often treated as a perfunctory exercise.

OBJECTIVE

Drawing on a health services study on diagnostic test result management, communication and follow-up, we: (1) outline practical strategies used to enhance the contribution of health consumer representatives across all stages of health services research, including active involvement in prioritising objectives for data analysis and participating in data analysis and the dissemination of findings; and (2) describe the impact of continued engagement of consumers on the programme of research, the interpretation of findings and their translational potential.

KEY INNOVATIONS

Key enabling innovations for engagement included: (1) planned opportunities for long-term consumer involvement across all stages of the research process from conception to dissemination; (2) enhanced consumer engagement capacity; (3) purposeful recruitment of appropriately trained consumers; (4) provision of support structures for active consumer involvement in research design, analysis and write-up; and (5) financial support for consumer involvement.

IMPACT/CONCLUSION

Enhancing consumer contribution and establishing inclusive research design requires a negotiated, interactive, meaningful and transparent process. As a collaborative approach, consumer-driven research involvement offers opportunities for new, often unexpected or unexplored perspectives to feature across the whole research process. In a move away from tokenistic consumer involvement, consumers and researchers who participated in this novel and immersive research project identified inclusive research as a powerful tool to enhance health services research and its translation into effective policy.

Authors+Show Affiliations

Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia maria.dahm@mq.edu.au. Institute for Communication in Health Care, ANU College of Arts and Social Sciences, Australian National University, Canberra, Australian Capital Territory, Australia.Health Consumers New South Wales, Sydney, New South Wales, Australia. Western Sydney University, Penrith South, New South Wales, Australia.Consumer Representative, Sydney, New South Wales, Australia.Consumer Representative, Sydney, New South Wales, Australia.Health Consumers New South Wales, Sydney, New South Wales, Australia.Consumer Representative, Sydney, New South Wales, Australia. Australasian Society for Ultrasound in Medicine, Crows Nest, New South Wales, Australia.Health Consumers New South Wales, Sydney, New South Wales, Australia.Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia.Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia.Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia.Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia.

Pub Type(s)

Journal Article
Research Support, Non-U.S. Gov't

Language

eng

PubMed ID

31848163

Citation

Dahm, Maria R., et al. "Interaction and Innovation: Practical Strategies for Inclusive Consumer-driven Research in Health Services." BMJ Open, vol. 9, no. 12, 2019, pp. e031555.
Dahm MR, Brown A, Martin D, et al. Interaction and innovation: practical strategies for inclusive consumer-driven research in health services. BMJ Open. 2019;9(12):e031555.
Dahm, M. R., Brown, A., Martin, D., Williams, M., Osborne, B., Basseal, J., Potter, M., Hardie, R. A., Li, J., Thomas, J., & Georgiou, A. (2019). Interaction and innovation: practical strategies for inclusive consumer-driven research in health services. BMJ Open, 9(12), e031555. https://doi.org/10.1136/bmjopen-2019-031555
Dahm MR, et al. Interaction and Innovation: Practical Strategies for Inclusive Consumer-driven Research in Health Services. BMJ Open. 2019 12 16;9(12):e031555. PubMed PMID: 31848163.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Interaction and innovation: practical strategies for inclusive consumer-driven research in health services. AU - Dahm,Maria R, AU - Brown,Anthony, AU - Martin,Dean, AU - Williams,Maureen, AU - Osborne,Brian, AU - Basseal,Jocelyne, AU - Potter,Mary, AU - Hardie,Rae-Anne, AU - Li,Julie, AU - Thomas,Judith, AU - Georgiou,Andrew, Y1 - 2019/12/16/ PY - 2019/12/19/entrez PY - 2019/12/19/pubmed PY - 2019/12/19/medline KW - consumer engagement KW - health services research KW - test result management SP - e031555 EP - e031555 JF - BMJ open JO - BMJ Open VL - 9 IS - 12 N2 - INTRODUCTION: Despite advances in the co-creation of clinical research involving consumers in the last few decades, consumer engagement in health services research generally remains inconsistent and is too often treated as a perfunctory exercise. OBJECTIVE: Drawing on a health services study on diagnostic test result management, communication and follow-up, we: (1) outline practical strategies used to enhance the contribution of health consumer representatives across all stages of health services research, including active involvement in prioritising objectives for data analysis and participating in data analysis and the dissemination of findings; and (2) describe the impact of continued engagement of consumers on the programme of research, the interpretation of findings and their translational potential. KEY INNOVATIONS: Key enabling innovations for engagement included: (1) planned opportunities for long-term consumer involvement across all stages of the research process from conception to dissemination; (2) enhanced consumer engagement capacity; (3) purposeful recruitment of appropriately trained consumers; (4) provision of support structures for active consumer involvement in research design, analysis and write-up; and (5) financial support for consumer involvement. IMPACT/CONCLUSION: Enhancing consumer contribution and establishing inclusive research design requires a negotiated, interactive, meaningful and transparent process. As a collaborative approach, consumer-driven research involvement offers opportunities for new, often unexpected or unexplored perspectives to feature across the whole research process. In a move away from tokenistic consumer involvement, consumers and researchers who participated in this novel and immersive research project identified inclusive research as a powerful tool to enhance health services research and its translation into effective policy. SN - 2044-6055 UR - https://www.unboundmedicine.com/medline/citation/31848163/Interaction_and_innovation:_practical_strategies_for_inclusive_consumer-driven_research_in_health_services L2 - http://bmjopen.bmj.com/cgi/pmidlookup?view=long&pmid=31848163 DB - PRIME DP - Unbound Medicine ER -
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