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Citizen science to further precision medicine: from vision to implementation.
JAMIA Open. 2020 Apr; 3(1):2-8.JO

Abstract

The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.

Authors+Show Affiliations

Division of Biomedical Statistics and Informatics, Mayo Clinic, Rochester, Minnesota, USA.School of Nursing, University of Minnesota, Minneapolis, Minnesota, USA.Nursing & Healthcare Leadership, University of Washington Tacoma, Tacoma, Washington, USA. Biomedical Informatics & Medical Education, University of Washington School of Medicine, Seattle, Washington, USA.Kaiser Permanente, Kaiser Permanente Innovation, Oakland, California, USA.Departments of Internal Medicine and Pediatrics & the Program on Health & Clinical Informatics, UNC School of Medicine, Chapel Hill, North Carolina, USA.Department of Family Medicine & Public Health, Center for Wireless & Population Health Systems, Design Lab, Qualcomm Institute, University of California-San Diego, San Diego, California, USA.Center for Computational Health, IBM TJ Watson Research Center, Yorktown Heights, New York, USA.Betty Irene Moore School of Nursing, Department of Public Health Sciences-School of Medicine, University of California-Davis, Sacramento, California, USA.School of Nursing, Columbia University, New York, New York, USA.OpenNotes/Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA.Family Medicine, NorthShore University HealthSystem, Evanston, Illinois, USA.Department of Public Health Sciences, University of Virginia School of Medicine, Charlottesville, Virginia, USA.

Pub Type(s)

Journal Article

Language

eng

PubMed ID

32607481

Citation

Petersen, Carolyn, et al. "Citizen Science to Further Precision Medicine: From Vision to Implementation." JAMIA Open, vol. 3, no. 1, 2020, pp. 2-8.
Petersen C, Austin RR, Backonja U, et al. Citizen science to further precision medicine: from vision to implementation. JAMIA Open. 2020;3(1):2-8.
Petersen, C., Austin, R. R., Backonja, U., Campos, H., Chung, A. E., Hekler, E. B., Hsueh, P. S., Kim, K. K., Pho, A., Salmi, L., Solomonides, A., & Valdez, R. S. (2020). Citizen science to further precision medicine: from vision to implementation. JAMIA Open, 3(1), 2-8. https://doi.org/10.1093/jamiaopen/ooz060
Petersen C, et al. Citizen Science to Further Precision Medicine: From Vision to Implementation. JAMIA Open. 2020;3(1):2-8. PubMed PMID: 32607481.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Citizen science to further precision medicine: from vision to implementation. AU - Petersen,Carolyn, AU - Austin,Robin R, AU - Backonja,Uba, AU - Campos,Hugo, AU - Chung,Arlene E, AU - Hekler,Eric B, AU - Hsueh,Pei-Yun S, AU - Kim,Katherine K, AU - Pho,Anthony, AU - Salmi,Liz, AU - Solomonides,Anthony, AU - Valdez,Rupa S, Y1 - 2019/12/03/ PY - 2019/01/15/received PY - 2019/09/04/revised PY - 2019/10/25/accepted PY - 2020/7/2/entrez PY - 2020/7/2/pubmed PY - 2020/7/2/medline KW - citizen science KW - community participation KW - consumer involvement KW - healthcare systems KW - patient acceptance of healthcare KW - research methodology SP - 2 EP - 8 JF - JAMIA open JO - JAMIA Open VL - 3 IS - 1 N2 - The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare. SN - 2574-2531 UR - https://www.unboundmedicine.com/medline/citation/32607481/Citizen_science_to_further_precision_medicine:_from_vision_to_implementation L2 - https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/32607481/ DB - PRIME DP - Unbound Medicine ER -
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