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Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials with American Indian Communities.
Prev Chronic Dis. 2020 11 12; 17:E143.PC

Abstract

PURPOSE AND OBJECTIVES

Academic literature indicates a need for more integration of Indigenous and colonial research systems in the design, implementation, and evaluation of randomized controlled trials (RCTs) with American Indian communities. In this article, we describe ways to implement RCTs with Tribal Nations using community-based participatory research (CBPR) principles and practices.

INTERVENTION APPROACH

We used a multiple case study research design to examine how Tribal Nations and researchers collaborated to develop, implement, and evaluate CBPR RCTs.

EVALUATION METHODS

Discussion questions within existing tribal-academic partnerships were developed to identify the epistemologic, methodologic, and analytic strengths and challenges of 3 case studies.

RESULTS

We identified commonalities that were foundational to the success of CBPR RCTs with Tribal Nations. Long-standing community-researcher relationships were critical to development, implementation, and evaluation of RCTs, although what constituted success in the 3 CBPR RCTs was diverse and dependent on the context of each trial. Respect for the importance of diverse knowledge systems that account for both Indigenous knowledge and colonial science also contributed to the success of the RCTs.

IMPLICATIONS FOR PUBLIC HEALTH

Tribal-academic partnerships using CBPR RCTs must include 1) establishing trusted CBPR partnerships and receiving tribal approval before embarking on RCTs with Tribal Nations; 2) balancing tribal community interests and desires with the colonial scientific rigor of RCTs; and 3) using outcomes that include tribal community concepts of success as well as outcomes found in standard colonial scientific research practices to measure the success of the CBPR RCTs.

Links

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Authors+Show Affiliations

Rink E
Department of Health and Human Development, Montana State University, 318 Herrick Hall, Bozeman, MT 59717. Email: elizabeth.rink@montana.edu.
Knight K
Department of Sociology and Anthropology, Montana State University, Bozeman, Montana.
Ellis C
Department of Sociology and Anthropology, Montana State University, Bozeman, Montana.
McCormick A
Messengers for Health, Crow Indian Reservation, Crow Agency, Montana.
FireMoon P
Fort Peck Community College, Fort Peck Indian Reservation, Poplar, Montana.
Held S
Department of Health and Human Development, Montana State University, Bozeman, Montana.
Webber E
Center for American Indian and Rural Health Equity, Montana State University, Bozeman, Montana.
Adams A
Center for American Indian and Rural Health Equity, Montana State University, Bozeman, Montana.

MeSH

Community-Based Participatory ResearchCommunity-Institutional RelationsCooperative BehaviorHumansRandomized Controlled Trials as TopicResearch DesignAmerican Indian or Alaska Native

Pub Type(s)

Journal Article
Research Support, N.I.H., Extramural

Language

eng

PubMed ID

33180688

Clinical Trial Links

Clinical trial which this article describes [1]
Clinical trial which this article describes [2]
Clinical trial which this article describes [3]

Citation

Rink, Elizabeth, et al. "Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials With American Indian Communities." Preventing Chronic Disease, vol. 17, 2020, pp. E143.
Rink E, Knight K, Ellis C, et al. Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials with American Indian Communities. Prev Chronic Dis. 2020;17:E143.
Rink, E., Knight, K., Ellis, C., McCormick, A., FireMoon, P., Held, S., Webber, E., & Adams, A. (2020). Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials with American Indian Communities. Preventing Chronic Disease, 17, E143. https://doi.org/10.5888/pcd17.200099
Rink E, et al. Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials With American Indian Communities. Prev Chronic Dis. 2020 11 12;17:E143. PubMed PMID: 33180688.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials with American Indian Communities. AU - Rink,Elizabeth, AU - Knight,Kelly, AU - Ellis,Colter, AU - McCormick,Alma, AU - FireMoon,Paula, AU - Held,Suzanne, AU - Webber,Eliza, AU - Adams,Alexandra, Y1 - 2020/11/12/ PY - 2020/11/12/entrez PY - 2020/11/13/pubmed PY - 2021/8/17/medline SP - E143 EP - E143 JF - Preventing chronic disease JO - Prev Chronic Dis VL - 17 N2 - PURPOSE AND OBJECTIVES: Academic literature indicates a need for more integration of Indigenous and colonial research systems in the design, implementation, and evaluation of randomized controlled trials (RCTs) with American Indian communities. In this article, we describe ways to implement RCTs with Tribal Nations using community-based participatory research (CBPR) principles and practices. INTERVENTION APPROACH: We used a multiple case study research design to examine how Tribal Nations and researchers collaborated to develop, implement, and evaluate CBPR RCTs. EVALUATION METHODS: Discussion questions within existing tribal-academic partnerships were developed to identify the epistemologic, methodologic, and analytic strengths and challenges of 3 case studies. RESULTS: We identified commonalities that were foundational to the success of CBPR RCTs with Tribal Nations. Long-standing community-researcher relationships were critical to development, implementation, and evaluation of RCTs, although what constituted success in the 3 CBPR RCTs was diverse and dependent on the context of each trial. Respect for the importance of diverse knowledge systems that account for both Indigenous knowledge and colonial science also contributed to the success of the RCTs. IMPLICATIONS FOR PUBLIC HEALTH: Tribal-academic partnerships using CBPR RCTs must include 1) establishing trusted CBPR partnerships and receiving tribal approval before embarking on RCTs with Tribal Nations; 2) balancing tribal community interests and desires with the colonial scientific rigor of RCTs; and 3) using outcomes that include tribal community concepts of success as well as outcomes found in standard colonial scientific research practices to measure the success of the CBPR RCTs. SN - 1545-1151 UR - https://www.unboundmedicine.com/medline/citation/33180688/Using_Community_Based_Participatory_Research_to_Design_Conduct_and_Evaluate_Randomized_Controlled_Trials_with_American_Indian_Communities_ DB - PRIME DP - Unbound Medicine ER -