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Impact of a chronic illness in childhood: siblings' perceptions.
Issues Compr Pediatr Nurs 1996 Apr-Jun; 19(2):135-47IC

Abstract

This project investigated siblings' perceptions of family disruption when a brother or sister had cystic fibrosis (CF) or asthma. Data were gathered by phone interviews and questionnaires. Phone interviews were conducted with siblings of chronically ill children and employed open-ended questions focusing on the impact of the illness on the sibling and the family unit. Along with the interview, siblings also completed a separate self-esteem measure. Assessments of family functioning and demographic variables were obtained through parental questionnaires. Only the sibling interview data are addressed in this article. Fifteen families from the two illness groups participated. There were 6 male and 9 female respondents, with a mean age of 10.1 years. The average age of the well sibling was slightly older than the average age of the chronically ill child. For siblings of both disease groups, positive outcomes included strengthening some family relationships, achieving more personal independence, and experiencing satisfaction in seeing improvement in the ill child. Negative outcomes included worrying about the brother's or sister's illness, being jealous of the attention paid to the ill child, and the restriction of family events. Appropriate family interventions are suggested, as well as feedback as to the efficacy of phone interviews with school-age children.

Authors

No affiliation info availableNo affiliation info available

Pub Type(s)

Journal Article

Language

eng

PubMed ID

8920331

Citation

Derouin, D, and P O. Jessee. "Impact of a Chronic Illness in Childhood: Siblings' Perceptions." Issues in Comprehensive Pediatric Nursing, vol. 19, no. 2, 1996, pp. 135-47.
Derouin D, Jessee PO. Impact of a chronic illness in childhood: siblings' perceptions. Issues Compr Pediatr Nurs. 1996;19(2):135-47.
Derouin, D., & Jessee, P. O. (1996). Impact of a chronic illness in childhood: siblings' perceptions. Issues in Comprehensive Pediatric Nursing, 19(2), pp. 135-47.
Derouin D, Jessee PO. Impact of a Chronic Illness in Childhood: Siblings' Perceptions. Issues Compr Pediatr Nurs. 1996;19(2):135-47. PubMed PMID: 8920331.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Impact of a chronic illness in childhood: siblings' perceptions. AU - Derouin,D, AU - Jessee,P O, PY - 1996/4/1/pubmed PY - 1996/4/1/medline PY - 1996/4/1/entrez SP - 135 EP - 47 JF - Issues in comprehensive pediatric nursing JO - Issues Compr Pediatr Nurs VL - 19 IS - 2 N2 - This project investigated siblings' perceptions of family disruption when a brother or sister had cystic fibrosis (CF) or asthma. Data were gathered by phone interviews and questionnaires. Phone interviews were conducted with siblings of chronically ill children and employed open-ended questions focusing on the impact of the illness on the sibling and the family unit. Along with the interview, siblings also completed a separate self-esteem measure. Assessments of family functioning and demographic variables were obtained through parental questionnaires. Only the sibling interview data are addressed in this article. Fifteen families from the two illness groups participated. There were 6 male and 9 female respondents, with a mean age of 10.1 years. The average age of the well sibling was slightly older than the average age of the chronically ill child. For siblings of both disease groups, positive outcomes included strengthening some family relationships, achieving more personal independence, and experiencing satisfaction in seeing improvement in the ill child. Negative outcomes included worrying about the brother's or sister's illness, being jealous of the attention paid to the ill child, and the restriction of family events. Appropriate family interventions are suggested, as well as feedback as to the efficacy of phone interviews with school-age children. SN - 0146-0862 UR - https://www.unboundmedicine.com/medline/citation/8920331/Impact_of_a_chronic_illness_in_childhood:_siblings'_perceptions_ L2 - https://medlineplus.gov/cysticfibrosis.html DB - PRIME DP - Unbound Medicine ER -