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Genetic testing for cystic fibrosis.
NIH Consens Statement. 1997 Apr 14-16; 15(4):1-37.NC

Abstract

OBJECTIVE

To provide health care providers, patients, and the general public with a responsible assessment of the optimal practices for genetic testing for cystic fibrosis (CF).

PARTICIPANTS

A non-Federal, nonadvocate, 14-member panel representing the fields of genetics, obstetrics, internal medicine, nursing, social work, epidemiology, pediatrics, psychiatry, genetic counseling, bioethics, health economics, health services research, law, and the public. In addition, 21 experts from these same fields presented data to the panel and a conference audience of 500.

EVIDENCE

The literature was searched through Medline, and an extensive bibliography of references was provided to the panel and the conference audience. Experts prepared abstracts with relevant citations from the literature. Scientific evidence was given precedence over clinical anecdotal experience.

CONSENSUS PROCESS

The panel, answering predefined questions, developed its conclusions based on the scientific evidence presented in open forum and the scientific literature. The panel composed a draft statement that was read in its entirety and circulated to the experts and the audience for comment. Thereafter, the panel resolved conflicting recommendations and released a revised statement at the end of the conference. The panel finalized the revisions within a few weeks after the conference.

Pub Type(s)

Consensus Development Conference
Journal Article
Review

Language

eng

PubMed ID

9532980

Citation

"Genetic Testing for Cystic Fibrosis." NIH Consensus Statement, vol. 15, no. 4, 1997, pp. 1-37.
Genetic testing for cystic fibrosis. NIH Consens Statement. 1997;15(4):1-37.
(1997). Genetic testing for cystic fibrosis. NIH Consensus Statement, 15(4), 1-37.
Genetic Testing for Cystic Fibrosis. NIH Consens Statement. 1997 Apr 14-16;15(4):1-37. PubMed PMID: 9532980.
* Article titles in AMA citation format should be in sentence-case
TY - JOUR T1 - Genetic testing for cystic fibrosis. PY - 1997/4/14/pubmed PY - 1998/4/9/medline PY - 1997/4/14/entrez SP - 1 EP - 37 JF - NIH consensus statement JO - NIH Consens Statement VL - 15 IS - 4 N2 - OBJECTIVE: To provide health care providers, patients, and the general public with a responsible assessment of the optimal practices for genetic testing for cystic fibrosis (CF). PARTICIPANTS: A non-Federal, nonadvocate, 14-member panel representing the fields of genetics, obstetrics, internal medicine, nursing, social work, epidemiology, pediatrics, psychiatry, genetic counseling, bioethics, health economics, health services research, law, and the public. In addition, 21 experts from these same fields presented data to the panel and a conference audience of 500. EVIDENCE: The literature was searched through Medline, and an extensive bibliography of references was provided to the panel and the conference audience. Experts prepared abstracts with relevant citations from the literature. Scientific evidence was given precedence over clinical anecdotal experience. CONSENSUS PROCESS: The panel, answering predefined questions, developed its conclusions based on the scientific evidence presented in open forum and the scientific literature. The panel composed a draft statement that was read in its entirety and circulated to the experts and the audience for comment. Thereafter, the panel resolved conflicting recommendations and released a revised statement at the end of the conference. The panel finalized the revisions within a few weeks after the conference. SN - 1080-1707 UR - https://www.unboundmedicine.com/medline/citation/9532980/Genetic_testing_for_cystic_fibrosis_ L2 - http://babysfirsttest.org/newborn-screening/conditions/cystic-fibrosis-cf DB - PRIME DP - Unbound Medicine ER -