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218,538 results
  • "Paid to Endure": Paid Research Participation, Passivity, and the Goods of Work. [Journal Article]
    Am J Bioeth 2019; 19(9):11-20Malmqvist E
  • A growing literature documents the existence of individuals who make a living by participating in phase I clinical trials for money. Several scholars have noted that the concerns about risks, consent, and exploitation raised by this phenomenon apply to many (other) jobs, too, and therefore proposed improving subject protections by regulating phase I trial participation as work. This article contr…
  • How Payment for Research Participation Can Be Coercive. [Journal Article]
    Am J Bioeth 2019; 19(9):21-31Millum J, Garnett M
  • The idea that payment for research participation can be coercive appears widespread among research ethics committee members, researchers, and regulatory bodies. Yet analysis of the concept of coercion by philosophers and bioethicists has mostly concluded that payment does not coerce, because coercion necessarily involves threats, not offers. In this article we aim to resolve this disagreement by …
  • Saving whom? The ethical challenges of harvesting tissue from savior siblings. [Journal Article]
    Eur J Haematol 2019Rubeis G, Steger F
  • CONCLUSIONS: Decision-making is complex when decisions within the family are concerned, especially when non-competent young children are involved. The therapeutic team does not only have to recognize the principal vulnerability of children, but also the different scales of vulnerability depending on their age. This article is protected by copyright. All rights reserved.
  • Disquiet in the consulting room: everything/nothing that is said here is confidential. [Journal Article]
    J Anal Psychol 2019; 64(4):565-586Meyerowitz-Katz J
  • Writing from experiences in the consulting room in private practice in Australia, the author refers to the layered complexity of a conflict of ethical duty which has legal and social implications. The paper explores how the ethics that are congruent with creating a safe vas bene claustrum can be diametrically opposed to the social and legal structures and processes on which we all rely. It is sug…
  • From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients. [Journal Article]
    J Med Internet Res 2019; 21(8):e13022Scott Duncan T, Riggare S, … Hägglund M
  • CONCLUSIONS: Like the first generation of e-patients, the participants frequently searched for Web-based information. However, the second generation of e-patients also produce their own health data, which they learn from and share. They also engage in the innovation of digital tools to meet health-related needs. Utilizing technological developments comes naturally to the second generation of e-patients, even if the health care system is not prepared to support them under these new circumstances.
  • Subsidizing PGD: The Moral Case for Funding Genetic Selection. [Journal Article]
    J Bioeth Inq 2019Kemper JM, Gyngell C, Savulescu J
  • Preimplantation genetic diagnosis (PGD) allows the detection of genetic abnormalities in embryos produced through in vitro fertilization (IVF). Current funding models in Australia provide governmental subsidies for couples undergoing IVF, but do not extend to PGD. There are strong reasons for publicly funding PGD that follow from the moral principles of autonomy, beneficence and justice for both …
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